The beast decided to start paying me a visit about a week ago.  At first I thought the small headaches were just the side-effects of the cold I caught from my wife and son, but then I noticed they started to happen around the same time.  Two days ago I started to get K7 and K8 headaches right around mid-night.  Last night I had it at mid-night and then it woke me up again at 2 a.m. Luckily they haven't lasted over 45 minutes but man am I tired today. 

Seems like my cycle kicks in at the start of fall.  Hopefully it won't last more then a few weeks like it did last time. 

I keep worrying about my little boy, he's 19 months and I'm praying I didn't pass this along to him.....to me that would more painful than anything this damned beast could do to me. :'(

Marc123 wrote on Oct 1^st, 2009 at 11:29am:

Hopefully it won't last more then a few weeks like it did last time.

Here's hoping....!

Are you on 02...and why not try a wee drab of melatonin for those night time hits, apparently it can work wonders...


lefty..!

Was able to get into my doctor's office yesterday, although I couldn't see him, I was able to see the nurse practicioner (sp?).  She prescribed the Imitrex 100 mg tabs and I was also talking with her about how I read testosterone levels may be a factor for the headaches.  So she's sending me to have blood work and a urinalysis done.  It'll be interesting to see what my results say.

You people kill me being gone for years then decide to come back just when the HA's return. [smiley=cool2.gif]

Lawrence wrote on Oct 3^rd, 2009 at 1:47pm:

You people kill me being gone for years then decide to come back just when the HA's return. [smiley=cool2.gif]

[smiley=wow.gif] [smiley=wtf.gif]

That's been a heated topic around here for years, people come and go.

I admire the folks who stay here and offer help and support when they aren't hurting, but I don't hate people who decide to move on.

Marc

Where did he say he'd been HERE three years ago? He just said "Back after 3 years."

In that case I withdraw my comments  ;D

Brew wrote on Oct 3^rd, 2009 at 5:17pm:

Where did he say he'd been HERE three years ago? He just said "Back after 3 years."

He didnt have to say it. Its right here:


Date Registered:
Nov 13th, 2006 at 5:27pm
1054 Days since joining

Dudes been a member for 3 years and has 6 posts.
Brew you need to quit, seriously.

Marc wrote on Oct 3^rd, 2009 at 4:25pm:

That's been a heated topic around here for years, people come and go. I admire the folks who stay here and offer help and support when they aren't hurting, but I don't hate people who decide to move on. Marc

I feel the same way, its just maaaddd redundant to see this crap all the time yaknow ::)

Sorry, but to me it's a judgment that can't be made. Do we know anything about Marc123 and what his life has been like for the last 3 years? For instance, I too was pf for 3 years and stopped coming here. I started a new cycle recently but am pf again now. This time I have decided to stay to see if I can help others. But during my 3 year break I have been through 3 jobs, have moved several times, have lost evertything I own and regained it again...and there's more. I'm just sayin'...the last thing on my mind was going to the CH forum. So, does that make me bad?
Plus, IMO, some people just aren't made to hang out in forums, chat and help everyone else. Sure, it may seem a bit selfish but we're not all made the same.
I say...glad you know of this wonderful place Marc123 and these wonderful people. For your sake, sorry you're back but welcome. I know you'll find help here.

Quote:

You people kill me being gone for years then decide to come back just when the HA's return.

You just joined in August of this year and you think you have the right to criticize people for not being here?  This site is for helping others and there is a great bunch of folks here that do just that. Marc123 is back because he needs support again so quit being  a jackass and give him some.

Chris

Lawrence wrote on Oct 3^rd, 2009 at 5:50pm:

Brew you need to quit, seriously.

'Scuse me? Who brought it up?

You need to give it a rest, dude.

Lawrence wrote on Oct 3^rd, 2009 at 1:47pm:

You people kill me being gone for years then decide to come back just when the HA's return. [smiley=cool2.gif]

I dont see where the guy even asked for anything. When you are the webmaster then maybe you can decide when its appropriate for people to come and go. As of right now........Your not.

So anyway. I assume you have been CH free for three years? Did you stockpile any meds?

Whether people come & go or stay forever is of no concern to me;but when they are here they want help or want to help, not to be criticised or to criticise.

Welcome Mark

Cheers
Barry

Coming and going is pretty common for the episodics here.  And why not?  It's not the Hotel California. 

Some people stop by from time to time, contributing to the discussion, and offering help where they can.  Others choose to stick around. 

It's good to see familiar names and occasional visitors alike.

Best,

George 

George - Your Black-capped Chickadee is a red X.

Brew wrote on Oct 3^rd, 2009 at 8:52pm:

George - Your Black-capped Chickadee is a red X.

Dang.

Well, it's time for a new bird picture anyway.   ;)

Brew - it comes through as a picture of a bird for me. 

Grandma_Sweet_Boy wrote on Oct 3^rd, 2009 at 9:02pm:

Brew - it comes through as a picture of a bird for me.

Hmmm....All I'm getting is the broken link thingy.

George wrote on Oct 3^rd, 2009 at 8:54pm:

Brew wrote on Oct 3rd, 2009 at 8:52pm: George - Your Black-capped Chickadee is a red X. Dang. Well, it's time for a new bird picture anyway.   ;)

George - Your Black-capped Chickadee is still a Black-capped Chickadee down here, but then again I'm a long way away & the Red X  may not have flown this far south yet ;)

Cheers
Barry

Well, greater minds than mine know how this link stuff works. I'm not going to lose any sleep over it, and I hope you won't either.

Keep your Black-capped Chickadee pic, George. I know how to find one if'n I really want to see one.

Imagecave's servers dorked out on them.  Service has apparently been in and out--which is apparently why the chickadee has been playing hide and seek.

I put another image in that I ran through photobucket.

Man, we've hijacked this thread with a chickadee.  That's gotta be a first.   ;)

Apologies to Marc123...

Best,

George

Brew wrote on Oct 3^rd, 2009 at 9:07pm:

Grandma_Sweet_Boy wrote on Oct 3rd, 2009 at 9:02pm: Brew - it comes through as a picture of a bird for me.  Hmmm....All I'm getting is the broken link thingy.

Thats because birds dont like you.

seaworthy wrote on Oct 3^rd, 2009 at 9:19pm:

Brew wrote on Oct 3rd, 2009 at 9:07pm: Grandma_Sweet_Boy wrote on Oct 3rd, 2009 at 9:02pm: Brew - it comes through as a picture of a bird for me.  Hmmm....All I'm getting is the broken link thingy. Thats because birds dont like you.

The feeling is mutual.

ClusterChris wrote on Oct 3^rd, 2009 at 6:40pm:

Quote: You people kill me being gone for years then decide to come back just when the HA's return. You just joined in August of this year and you think you have the right to criticize people for not being here?  Chris

When Ijoined is irrelevant. And as a member I should be able to speak MY mind and voice MY opinion without being criticized for it even if my opinion is different from the masses.

Lawrence wrote on Oct 3^rd, 2009 at 9:46pm:

When Ijoined is irrelevant. And as a member I should be able to speak MY mind and voice MY opinion without being criticized for it even if my opinion is different from the masses.

The same respect should be given to those who choose not to post, for whatever length of time, as well.  Don't you think?

George wrote on Oct 3^rd, 2009 at 8:46pm:

Coming and going is pretty common for the episodics here.  And why not?  It's not the Hotel California.

Well, i'm an episodic. So I guess i'll leave when my cycles over too. And since so many of you guys dont feel one way or another about it, I guess I can leave and not feel bad about it either.

Lawrence wrote on Oct 3^rd, 2009 at 9:51pm:

George wrote on Oct 3rd, 2009 at 8:46pm: Coming and going is pretty common for the episodics here.  And why not?  It's not the Hotel California.    Well, i'm an episodic. So I guess i'll leave when my cycles over too. And since so many of you guys dont feel one way or another about it, I guess I can leave and not feel bad about it either.

Check.

Melissa wrote on Oct 3^rd, 2009 at 9:51pm:

Lawrence wrote on Oct 3rd, 2009 at 9:46pm: When Ijoined is irrelevant. And as a member I should be able to speak MY mind and voice MY opinion without being criticized for it even if my opinion is different from the masses. The same respect should be given to those who choose not to post, for whatever length of time, as well.  Don't you think?

Ahhh, no.

If a person makes one post a year, why would I give them the same respect as a guy who is here everyday, laboring, and praying, typing messages to save lives, and help on a regular basis, sharing knowledge, personal tricks, offering advice. This is a labor of love.
So no. Hell no....I'm not gonna show the same level of respect to someone that comes in here once a year to basically find out, "whats new"....GTFOH with that >:(

Easy friend.....it's not worth getting worked up over. Really.

Lawrence wrote on Oct 3^rd, 2009 at 9:57pm:

Melissa wrote on Oct 3rd, 2009 at 9:51pm: Lawrence wrote on Oct 3rd, 2009 at 9:46pm: When Ijoined is irrelevant. And as a member I should be able to speak MY mind and voice MY opinion without being criticized for it even if my opinion is different from the masses. The same respect should be given to those who choose not to post, for whatever length of time, as well.  Don't you think? Ahhh, no. If a person makes one post a year, why would I give them the same respect as a guy who is here everyday, laboring, and praying, typing messages to save lives, and help on a regular basis, sharing knowledge, personal tricks, offering advice. This is a labor of love. So no. Hell no....I'm not gonna show the same level of respect to someone that comes in here once a year to basically find out, "whats new"....GTFOH with that >:(

So you're saying that you are worth more to this site than the others who are here, regardless of the number of posts they have?

Get over yourself.


ETA: sorry, that should have said "according too" the number of posts.

Melissa wrote on Oct 3^rd, 2009 at 10:02pm:

Lawrence wrote on Oct 3rd, 2009 at 9:57pm: Melissa wrote on Oct 3rd, 2009 at 9:51pm: Lawrence wrote on Oct 3rd, 2009 at 9:46pm: When Ijoined is irrelevant. And as a member I should be able to speak MY mind and voice MY opinion without being criticized for it even if my opinion is different from the masses. The same respect should be given to those who choose not to post, for whatever length of time, as well.  Don't you think? Ahhh, no. If a person makes one post a year, why would I give them the same respect as a guy who is here everyday, laboring, and praying, typing messages to save lives, and help on a regular basis, sharing knowledge, personal tricks, offering advice. This is a labor of love. So no. Hell no....I'm not gonna show the same level of respect to someone that comes in here once a year to basically find out, "whats new"....GTFOH with that >:( So you're saying that you are worth more to this site than the others who are here, regardless of the number of posts they have? Get over yourself.

Look, its NOT ABOUT ME. Get that. If you can get that part FIRST, we can move forward. If a guy makes one post a year he's barely a member.

Lawrence wrote on Oct 3^rd, 2009 at 10:08pm:

[quote author=4C50525A4B56525A4C3F0 link=1254410987/31#31 date=1254621730] Look, its NOT ABOUT ME. Get that. If you can get that part FIRST, we can move forward. If a guy makes one post a year he's barely a member.

Lawrence, ANYONE who suffers with cluster headaches or supports someone who has them, IS A MEMBER.  No matter how many posts they have or not! 




edited to add: as long as the rules of the forum are followed

seaworthy wrote on Oct 3^rd, 2009 at 7:42pm:

Lawrence wrote on Oct 3rd, 2009 at 1:47pm: You people kill me being gone for years then decide to come back just when the HA's return. [smiley=cool2.gif] I dont see where the guy even asked for anything. When you are the webmaster then maybe you can decide when its appropriate for people to come and go. As of right now........Your not.

Dude, I dont need to be a webmster to voice my opinion. You're defending a guy who isn't even here enough to even defend HIMSELF.

Undoubtedly I typed something which some members have thought at least one time or another, but were afraid to say. So what does it matter?

[smiley=deadhorse2.gif]

Somehow, I don't think this horse is going to get any better.

Melissa wrote on Oct 3^rd, 2009 at 10:10pm:

Lawrence wrote on Oct 3rd, 2009 at 10:08pm: [quote author=4C50525A4B56525A4C3F0 link=1254410987/31#31 date=1254621730] Look, its NOT ABOUT ME. Get that. If you can get that part FIRST, we can move forward. If a guy makes one post a year he's barely a member. Lawrence, ANYONE who suffers with cluster headaches or supports someone who has them, IS A MEMBER.  No matter how many posts they have or not!

And yeah, with that being said I'm out.
If i'm going to get gang-jumped by you guys for voicing my opinion, I see I don't fit the norm in here. Because I SAY things, and sometimes I'll be the one to say what others were thinking and just afraid to say.
At most I shoulda got ONE, maybe TWO PEOPLE to go against what I said....namely the guy in question.....cus I wasn't even TALKING TO Nobody else.

George wrote on Oct 3^rd, 2009 at 10:19pm:

[smiley=deadhorse2.gif] Somehow, I don't think this horse is going to get any better.

Don't worry about it George, i'm out.

Lawrence wrote on Oct 3^rd, 2009 at 10:15pm:

seaworthy wrote on Oct 3rd, 2009 at 7:42pm: Lawrence wrote on Oct 3rd, 2009 at 1:47pm: You people kill me being gone for years then decide to come back just when the HA's return. [smiley=cool2.gif] I dont see where the guy even asked for anything. When you are the webmaster then maybe you can decide when its appropriate for people to come and go. As of right now........Your not. Dude, I dont need to be a webmster to voice my opinion. You're defending a guy who isn't even here enough to even defend HIMSELF. Undoubtedly I typed something which some members have thought at least one time or another, but were afraid to say. So what does it matter?

No one seems to give a rat fuck how long members stay away,  we're just damned sad/glad they choose to make a return visit. 
        Get over yourself and don't make it personal.


          Potter

Me thinks a little light reading should take place.

START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or END PRINTPAGE

Peace
Barry

But what about the black-capped chickadee? He doesn't come around all the time? As evidenced by the dreaded on-again, off-again red X.

Brew wrote on Oct 3^rd, 2009 at 10:39pm:

But what about the black-capped chickadee? He doesn't come around all the time? As evidenced by the dreaded on-again, off-again red X.

He's an episodic kinda bird.   ;)

Quote:

Hello all, My name is Lawrence. I've been here before, but its been a long time since I posted here. I frequent this board weekly though. I'm 31, been having CH since I was in middle school as a kid, so i'm familiar with the beast. Right now I am in a cycle thats been going on since April. My cycles usually last two months of every year, in the spring, with daily one-hit wonders of a KIP-10-- then they go away, but this year, the beast has stayed with me a little longer than normal. Hate to say this, but i try not to come to this message board, sometimes it seems like just thinking about CH, or being reminded of them helps bring them back...

Hypocrite much?

Having said that, I understand that feeling. Just be a little more tolerant to others that feel the way that you say that you have felt in the past

Well IMO Lawrence is a good guy, a real good contributor here, and from what I've seen in recent posts, someone who has been in a particularly intense, getting desperate, locked horn battle with the beast lately.

So how's about we cut him a little slack too, now that he's had his good bakers dozen or so reprimands, and just kinda let this thing slide awayyyy?

First off, thanks to all of the folks who had the kind and understanding words.   :)

Secondly, I have no obligation as to explain why I have or have not posted, or what I 've been doing for these three years, but here it is in a nutshell.....

My wife and I had our first chld, so with the sleepless nights of raising a child who continually gets ear infections (even with tubes in his ears) that soaks up about 2 years of time.  Also I have a genetic defect with my heart that I have to deal with on a daily basis. 

So needless to say, when the end of the long day comes, I would rather sit with my loving wife and child on the couch then be in front of a computer typing away.  And if some people don't like that, well that's just too bad, because for all the crap my family has to go through with my medical problems, I'm going to give them as much of my time as possible when I'm feeling good.

~Peace out

Quote:

Dude, I dont need to be a webmster to voice my opinion. You're defending a guy who isn't even here enough to even defend HIMSELF.

He doesn't need to defend himself.


Quote:

So needless to say, when the end of the long day comes, I would rather sit with my loving wife and child on the couch then be in front of a computer typing away.

KUDOS! Dont let the beast rule or control your life.

seaworthy wrote on Oct 3^rd, 2009 at 11:48pm:

Quote: Dude, I dont need to be a webmster to voice my opinion. You're defending a guy who isn't even here enough to even defend HIMSELF. He doesn't need to defend himself.

He doesn't need to defend himself? But I DO?
Peace to all, I'm out. Bejeeber I'll holla at you later.

Quote:

I'm out.

Again?


Quote:

But what about the black-capped chickadee?

He's out to.

Lawrence wrote on Oct 3^rd, 2009 at 9:46pm:

...I should be able to speak MY mind and voice MY opinion without being criticized for it even if my opinion is different from the masses.

Freedom of speech does not mean freedom to say anything you want without being criticized. If you're going to say something, especially if it's contrary to popular belief, you better be ready to be criticized and be ready to defend what you've said.

Damn, don't they teach anything in high school composition anymore? This is a basic concept.

I think this thread is pretty much done.

Marc, sorry you had to come back.

Lawrence, we'll be here if you decide to come back next cycle... just like we are for everyone else that doesn't like to visit when they're not in pain.  The decision to go or stay is very much a personal one... and one we don't criticize people for.

DJ

Marc123 wrote on Oct 3^rd, 2009 at 11:32pm:

First off, thanks to all of the folks who had the kind and understanding words.   :) Secondly, I have no obligation as to explain why I have or have not posted, or what I 've been doing for these three years, but here it is in a nutshell..... My wife and I had our first chld, so with the sleepless nights of raising a child who continually gets ear infections (even with tubes in his ears) that soaks up about 2 years of time.  Also I have a genetic defect with my heart that I have to deal with on a daily basis.  So needless to say, when the end of the long day comes, I would rather sit with my loving wife and child on the couch then be in front of a computer typing away.  And if some people don't like that, well that's just too bad, because for all the crap my family has to go through with my medical problems, I'm going to give them as much of my time as possible when I'm feeling good. ~Peace out

Marc Welcome Back!!!

I am sorry the beast is beating on you again and I'm even sorrier that your welcome back became such testy experience.  That should not have happened no matter if you had been gone for 3 years or not!

Kudo's to you for all you have to deal with and the way you still put family first, I truly commend that!

Hope to speak to you again soon and don't let some of the more loose tongued people here get to you, we all suffer from the beast and handle it different!

Pain Free Days and Nights to you!

Welcome back and give the little one a hug for me. Congrats and all that....

As to your question about passing on CH... so far nothing has shown that it's heriterity (sp). There are a couple of families here that have it, but they're few and far between. My family has a history of migraines (as do some others) but even that isn't conclusive to CH.

Have you got O2. In the past few years there's been a lot of "improvements" made in that area. High flow rates (15-25 liters per minute) with a Non-Rebreater mask (or the Opt2tic mask from the Ch.com store on the left - the BEST) have proven to work better than anything to abort (for over 70% of us).

I take Melatonin (12-15mg) at night before bed to stop night-time hits (and it works REALLY well for me and a lot of others - not everyone, but a lot).

Anyhow, talk to your doc about the O2 (with your heart you have to be careful with aborts and the O2 is safe).

Welcome back.

Hugs BD :-*

I sure hope Lawrence comes back! I hate that it ended up sounding like we were ganging up on him. Lawrence, I sure didn't mean for that to happen...sorry. I just thought what you originally said was a little harsh, that's it. Subject over. Let's move on! Then all this...sheesh.
It's all good. Come back!   :)

And I as well hope that Lawrence comes back.  I don't hold any grudges against him or anyone else that has the same feelings.  He was very passionate about his opinion and stood by it.  That's the nice thing about living in a free country, you can voice your opinion and others can voice theirs.   ;)

This site serves a purpose for all that come here.  Even for those of us that just stop by once in a blue moon.

MARC123...altho I am new to this forum and a CH sufferer for only 1 1/2 years (chronic), I have done alot of research on clusters.  I have read about circadian rhythms and circadian clocks, hormone related, stress related, trauma related, but nowhere have I read that they are hereditary. (unless I've missed something in my research)  I for one have a son who is now 24 and he does not suffer from these hellacious things.  Does anyone out there have a child who suffers from these???  Anyway, I'm trying to ease your mind, as I know we (I) would die for our children without batting an eye.  So I understand your concern, but keep that negative thought far from your mind.  Sorry to hear your beast is back...try killing it with some kudzu.  I'm pretty new to this so I haven't tried everything this site has to offer.  There's some veterans here with so much advice and support who are more than willing to help (and not judge).  Good luck to you!

Two people on this board (that I know of) have offspring that suffer as well. They can identify themselves if they choose.

My brother also has CH's. He's a couple of years younger, but his started sooner than mine. (Made my DX really easy)

His youngest son (22 years old) has now had three random hits, starting recently.

My Mother told stories of her Father holding his head rocking, crying and moaning for about an hour at a time. She had vivid memories of this happening with a very rapid onset and the pain leaving almost as quickly. They stopped when he was in his mid 70's, about 10 years before he passed away.

A few years ago, I traded emails with a doctor who was working with Goadsby when he was still in the UK. He was pretty convinced that there was a genetic factor, and was thinking about getting blood samples from CH sufferers in the same family. Funding didn't happen.

IMHO, there can be a connection.

Marc

Interesting thread to say the least.  I've suffered from CH's for about 20 years now and have been coming here on and off for what seems like eight years or so.  Yes, I'm episodic and yes I come here on and off but I thought I'd throw in my $0.02 since this thing got derailed from the initial post.

1.  Whether chronic or episodic, CH's suck both for those of us who suffer with it and our families.
2.  Since CH is often mis or undiagnosed, I think many people (including yours truly) initially came here to try to make sense of the nuclear pinging behind the eye.  As humans, it's my experience that we seek to understand things that don't easily make sense like CH
3.  I have posted both in and out of cycle.  I will say that if I was ever to be chronic I would most likely spend a lot more time here.  But, when I'm PF, I don't come around as much as I'm too busy enjoying that PF time.  Not that I don't enjoy being here but you get the point.
4.  I don't see a lot of sense criticizing people who choose not to hang out here day-in and day-out any more than there's any point in criticizing people who are here all the time.  I think we are all old enough to figure out where we want to spend our time and how much time we want to spent there.

For one, I have ALWAYS found this site to be an oasis in an otherwise barren wasteland of information on CH.  I have used the information here when working with my Neuro and it's been beyond helpful.  Along the way, I hope I've been helpful to a few as well with tips, tricks, thoughts, support, etc. 

I see that I'm rambling so I'll end the rant.  This site and it's members are very important to every member of this community - let's not get all pissy about how often someone comes here or not.

PFDAN to all.

Out.

wip5150 wrote on Oct 8^th, 2009 at 12:43pm:

Interesting thread to say the least.  I've suffered from CH's for about 20 years now and have been coming here on and off for what seems like eight years or so.  Yes, I'm episodic and yes I come here on and off but I thought I'd throw in my $0.02 since this thing got derailed from the initial post. 1.  Whether chronic or episodic, CH's suck both for those of us who suffer with it and our families. 2.  Since CH is often mis or undiagnosed, I think many people (including yours truly) initially came here to try to make sense of the nuclear pinging behind the eye.  As humans, it's my experience that we seek to understand things that don't easily make sense like CH 3.  I have posted both in and out of cycle.  I will say that if I was ever to be chronic I would most likely spend a lot more time here.  But, when I'm PF, I don't come around as much as I'm too busy enjoying that PF time.  Not that I don't enjoy being here but you get the point. 4.  I don't see a lot of sense criticizing people who choose not to hang out here day-in and day-out any more than there's any point in criticizing people who are here all the time.  I think we are all old enough to figure out where we want to spend our time and how much time we want to spent there. For one, I have ALWAYS found this site to be an oasis in an otherwise barren wasteland of information on CH.  I have used the information here when working with my Neuro and it's been beyond helpful.  Along the way, I hope I've been helpful to a few as well with tips, tricks, thoughts, support, etc.  I see that I'm rambling so I'll end the rant.  This site and it's members are very important to every member of this community - let's not get all pissy about how often someone comes here or not. PFDAN to all. Out.

Great post.

            Potter

Marc, I understand why you never visit in between.  Denial.  4 years ago I visited the site for info.  2 years ago I read the message board for moral support.  I applaud those of you who can help others while PF.  I just like to pretend life is OK (with the ever present fear).