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Cluster Headache Help and Support >> Cluster Headache Specific >> looking for insight ...please read
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Message started by shanny on Oct 20th, 2009 at 5:00pm

Title: looking for insight ...please read
Post by shanny on Oct 20th, 2009 at 5:00pm
Hi there,
I have recently been diagnosed with chronic cluster headaches. my doc put me on verapamil and now he says i have to be taken off of it due to a primary heart block. He is now putting me on lithium to see how it works. Who else is on lithium? what were the side effects. On the research I have done it says it causes acne has any one found this becuase i dont want to add any more problems........Some insight would be wonderful. Thank you

Title: Re: looking for insight ...please read
Post by vietvet2tours on Oct 20th, 2009 at 5:49pm
What is a primary heart block?

            Potter

Title: Re: looking for insight ...please read
Post by jackh on Oct 20th, 2009 at 6:01pm
I dont know if it causes acne, but I would gladly deal with acne of CH any day. I wish lithium worked for me.

Title: Re: looking for insight ...please read
Post by Val_ on Oct 20th, 2009 at 7:01pm
Potter -
"Heart Block is a type of bradycardia (too-slow heartbeat) that also is called atrioventricular, or AV block. In this condition, the electrical signals that stimulate heart muscle contractions are partially or totally blocked between the upper chambers (atria) and the lower chambers (ventricles)."
(This can be caused by Verapamil at higher dosages and people who take over 500mg usu have ECGs regularly when upping dosages.)

I have gotten many ECGs to check for heart block - am on 960 Verap, soon to taper - doesn't work.  I have had no heart block though.

I was on 900 Lithium also Shanny when I was only on 480 Verap.  The side effects I noticed were having to pee often, and lethargy (coffee helped.)  No acne - but this also would not have been a worry to me had the lithium stopped my clusters.  I had to get my blood taken every time I changed dosages to check serum levels.  This was no big deal.  I hear some people get hand tremors.  Potassium is said to help... Talk to your doc if you experience anything though!
Best of luck to you with the Lithium!  Hope it helps you!  Some people here tell that it works well for them!!! 

Val

Title: Re: looking for insight ...please read
Post by [joHnny]w_ an_h on Oct 20th, 2009 at 11:57pm
theres a few on the board that have had really good results with low doses of lithium.

Title: Re: looking for insight ...please read
Post by bejeeber on Oct 21st, 2009 at 1:16am
I've been on lithium for CH before and didn't notice any side effects.

Title: Re: looking for insight ...please read
Post by Bob_Johnson on Oct 21st, 2009 at 3:09pm
A list of side effects is a statement of POSSIBILITIES. It is not a PREDICTION of what will occur. Wisdom calls for knowing both the risk and asking the doc what to look for, i.e., symptoms of side effects.

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