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Cluster Headache Help and Support >> Getting to Know Ya >> I didn't want her to see this... not this soon.
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Message started by Jerry Smith on Nov 2nd, 2009 at 8:52pm

Title: I didn't want her to see this... not this soon.
Post by Jerry Smith on Nov 2nd, 2009 at 8:52pm
Never thought I would ever be reduced to complaining about pain. I'd always thought I was strong enough to maintain my privacy dealing with CH's. Yet here I am, cap in hand-- feeling solace in realizing that I'm not the only person in the world that God decided to take a big dump on (I don''t really feel that way-- until my cycles start).

Here's the kicker-- some of you guys have this chronically, every single day, while mine only happen twice a year. I wouldn't be able to take it every day. I'm not that strong. I'm not-- I know I'd take the easy way out if I never had a vacation from them.

My new cycle started two weeks and one day ago, at a brunch with my girlfriend after church. I had a glass of wine, and knew twenty minutes later that I was a walking dead man. The shadow popped up, and that evening, I was in my familiar position, laying down in the living room, left temple on the tile, my foot quickly rocking my body back and forth. Tears coming out, nose stopped up, too much pain to think. I woke up later that night in the same position and started crying because I knew that it was the first of a brand new litter.

This past Saturday night and all day Sunday was the worst-- five Ch attacks in 36 hours. A grand total of three hours of sleep. Today, nothing so far. But the night is still young, and it's back there in the darkness, waiting for me to let my guard down.

I started going out with a young lady recently. I mentioned them to her offhandedly a few weeks before the new cycle started. I think she's taking it seriously after I bailed on her from church yesterday morning. I thought I handled myself pretty well while making as graceful an exit as I could, but she told me via an email this morning that I looked and sounded like a different man as I told her I was leaving. She's right to an extent: I was different, but when the attacks hit, I'm certainly not a man, I'm reduced to a petulant, whimpering, simpering, child.

I didn't want her to see this... not this soon. I didn't want her to be part of this world. It's not enough that I have to go through this stuff by myself, oh no! Fate dictated to me that if I want to have a special young lady in my life, that she also has to bear a certain amount of the burden. But I suppose that's par for the course, isn't it? I mean, this stuff has no sense of fair play or good form. It's going to take a big, steaming dump not just on me (and you guys too), but on the people closest to us also.

My cycles hit me in late June and early October-- no fail since 1986. This year, I had zero attacks in the summer. But my autumnal attack, while not more severe than in previous years are all over the place time wise. I used to be able to set my clock by the attacks, and after the first week, knew precisely when my two a days would hit. This time, I'm getting, 1, 2, even 3 attacks per day with no rhyme or reason, no set times, and it's scaring the living daylights out of me. I can't have these things hitting me while I'm at work... I just can't.

Anyways, here I am-- typing out my fears to a bunch of people I don't know and probably never will because you guys are the only ones who know that these aren't headaches-- it's a curse.

I'd love to be able to say, "but at least there's one solace in all of this..." but there's not. There's no solace to be found in this and we all know it. There's simply the pain, or dread of the pain. A Shakespearean tragedy write small every single day for the next four or five weeks.

I think I'll read some of your posts til I either go to sleep or the next one hits. I'm sorry you have to go through this too-- it's not anything I'd want anyone else in the world to have.

Title: Re: I didn't want her to see this... not this soon.
Post by thebbz on Nov 2nd, 2009 at 9:05pm
Geez Jerry, you need a break. You didn't mention any meds. Do you have a treatment plan? Not a good thing for anyone to see you getting hit. Have to practice your dissappearing act.
Here are some treatmentsSTART PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or RegisterEND PRINTPAGE
all the best
the bb

Title: Re: I didn't want her to see this... not this soon.
Post by Jeannie on Nov 2nd, 2009 at 9:37pm
Hi Jerry!  Welcome to CH.com.   Glad you found us but sorry you had to.  I wish you a short, mild cycle.

Jeannie

Title: Re: I didn't want her to see this... not this soon.
Post by jon019 on Nov 2nd, 2009 at 9:44pm

Jerry Smith wrote on Nov 2nd, 2009 at 8:52pm:
Never thought I would ever be reduced to complaining about pain. I'd always thought I was strong enough to maintain my privacy dealing with CH's.

Been there...done that...that's why there is a ch.com. It aint complaining...it's sharing. You will find love and understanding here...and the best info available ANYWHERE...just give us a chance...

Yet here I am, cap in hand-- feeling solace in realizing that I'm not the only person in the world that God decided to take a big dump on (I don''t really feel that way-- until my cycles start).

You got it right...it aint God...it's life...how you deal with it is how you will be judged....

Here's the kicker-- some of you guys have this chronically, every single day, while mine only happen twice a year. I wouldn't be able to take it every day. I'm not that strong. I'm not-- I know I'd take the easy way out if I never had a vacation from them.

Well...I'm chronic...didn't think I could handle it either....you can...you WILL...

My new cycle started two weeks and one day ago, at a brunch with my girlfriend after church. I had a glass of wine, and knew twenty minutes later that I was a walking dead man.

Good lesson, now you know.........

The shadow popped up, and that evening, I was in my familiar position, laying down in the living room, left temple on the tile, my foot quickly rocking my body back and forth. Tears coming out, nose stopped up, too much pain to think. I woke up later that night in the same position and started crying because I knew that it was the first of a brand new litter.

This past Saturday night and all day Sunday was the worst-- five Ch attacks in 36 hours. A grand total of three hours of sleep. Today, nothing so far. But the night is still young, and it's back there in the darkness, waiting for me to let my guard down.

I started going out with a young lady recently. I mentioned them to her offhandedly a few weeks before the new cycle started. I think she's taking it seriously after I bailed on her from church yesterday morning. I thought I handled myself pretty well while making as graceful an exit as I could, but she told me via an email this morning that I looked and sounded like a different man as I told her I was leaving. She's right to an extent: I was different, but when the attacks hit, I'm certainly not a man, I'm reduced to a petulant, whimpering, simpering, child.

Get her to the supporters section here....sounds like she'll get it....

I didn't want her to see this... not this soon. I didn't want her to be part of this world. It's not enough that I have to go through this stuff by myself, oh no! Fate dictated to me that if I want to have a special young lady in my life, that she also has to bear a certain amount of the burden. But I suppose that's par for the course, isn't it? I mean, this stuff has no sense of fair play or good form. It's going to take a big, steaming dump not just on me (and you guys too), but on the people closest to us also.

Life aint fair...the beast certainly doesn't play it that way...

My cycles hit me in late June and early October-- no fail since 1986. This year, I had zero attacks in the summer. But my autumnal attack, while not more severe than in previous years are all over the place time wise. I used to be able to set my clock by the attacks, and after the first week, knew precisely when my two a days would hit. This time, I'm getting, 1, 2, even 3 attacks per day with no rhyme or reason, no set times, and it's scaring the living daylights out of me. I can't have these things hitting me while I'm at work... I just can't.

YES, you can! The more you learn, the better prepared you are...the less it affects your life.


Anyways, here I am-- typing out my fears to a bunch of people I don't know and probably never will because you guys are the only ones who know that these aren't headaches-- it's a curse.

Type away...we understand...I've never met a single person here...but I CAN say I have never felt more love....or loved more

I'd love to be able to say, "but at least there's one solace in all of this..." but there's not. There's no solace to be found in this and we all know it. There's simply the pain, or dread of the pain. A Shakespearean tragedy write small every single day for the next four or five weeks.


Now then....I HAVE found solace here....give it a chance...you"ll see...

I think I'll read some of your posts til I either go to sleep or the next one hits. I'm sorry you have to go through this too-- it's not anything I'd want anyone else in the world to have.

Read EVERYTHING here.....you will find help.....

Best,

Jon


Title: Re: I didn't want her to see this... not this soon.
Post by bejeeber on Nov 2nd, 2009 at 10:01pm
Jerry I think you will probably be able to prevent, and if necessary, abort the vast majority of these attacks.

I say that a someone whose years of just allowing the beast to rage out of control are over.

Learn here about how to counterpunch with some vicious blows, and knock the beast out, or at least down hard.

You might want to start off by using O2 a la the "oxygen info" link on the left side of the forum view, and start using it yesterday.

Any other treatments you consider, you can bounce 'em off us, because some of us members could have some "been there done that" type opinions (although not professional medical advice).

Title: Re: I didn't want her to see this... not this soon.
Post by Guiseppi on Nov 2nd, 2009 at 10:53pm
Yeah...what they said! Simply sitting back and taking what the beast has to offer is completely unacceptable. Many find relief using the 2 pronged approach...myself included.

1: A good preventative med..that's a med you take every day while on cycle to reduce the number and intensity of your hits. I use lithium at 1200 mg a day, blocks 70% of my attacks. Verapamil is a popular first try prevent as is topomax. All require working closely with your doc.

2: A good abortive routine. You feel the familiar twinge coming on, now what? First line abortive should be oxygen. Read the oxygen info on the left complete with pretty pics and directions! I can abort an attack in 6-8 minutes using oxygen. Beats the hell outta the old 90 minute rides.

Imitrex injectables and nasal sprays work great but for me they extend cycles so I avoid them.

If you are not working with a doctor who specializes in headaches, you're setting yourself up for a lot of pain. This is not a condition you go to a GP, sit in front of them and say fix me. It's incumbent on you to educate yourself and work with your doc to treat these things...we're with you every step.

Joe

Title: Re: I didn't want her to see this... not this soon.
Post by Jimi on Nov 2nd, 2009 at 11:00pm
What Joe said................and Joe why aren't you protecting the citizens instead of on the puter ? :-*

Title: Re: I didn't want her to see this... not this soon.
Post by Guiseppi on Nov 3rd, 2009 at 3:11am
Damn...I hate that it snitches off the address I'm typing from!!!!! ;D ;D

Joe

Title: Re: I didn't want her to see this... not this soon.
Post by Orothe on Nov 3rd, 2009 at 3:43am
I'm posting this before I even actually introduce myself. XD I couldn't help it. Your title caught my eye...

I'm a Romantic so it's a huge thing to see.. A lot of couples don't like letting the other see themselves exposed in such a weakened state. (Especially guys who have to be the 'strong protector') And let's face it, when the 'beast strikes', we're usually knocked on our butts, waiting for the beast to get bored wailing on us and leave us alone...

The only thing I can help with is the ease of the 'love' issue. If she truly cares about you.. seeing you in such a weakened state, she may want to step up and be the 'strong one' in that situation.. To try and comfort you.. Remember, a relationship is a partnership. Like it or not, you come with a chain attached from your heart to the beast. Anybody you want to be with, is going to have to learn that sooner or later...

Title: Re: I didn't want her to see this... not this soon.
Post by Jerry Smith on Nov 3rd, 2009 at 8:52am
Thanks everyone. Seems like I'll have to bite a bullet and get a Dr.'s appt. scheduled despite having no health insurance at work. from what I've read, I'm beginning to hold out hope for the O2, and I'm hoping it's not too expensive.

Just one attack yesterday at 11:30pm and it lasted less than 90 minutes from start to finish. Only one. I guess I've set my standards pretty low if that makes me happy.

This place may help.

Title: Re: I didn't want her to see this... not this soon.
Post by Iddy on Nov 3rd, 2009 at 9:29am
Hi Jerry, glad to hear you are starting to arrange a defense against the "Beast"

o2 is a blessing for many of us.

This site "will" help you!!! Stick around and learn from those with vast experience.

All the best

Iddy

Title: Re: I didn't want her to see this... not this soon.
Post by Jeannie on Nov 3rd, 2009 at 9:31am

Quote:
This place may help.

This place WILL help!

Lots of folks use welders 02.  I hear it is the same thing as medical and not very expensive.   Drinking an energy drink at the first sign of a hit helps abort HAs for some.  Red Bull or even the generic type will do.  As long as it has Taurine and caffeine in it.  I use the Aldi brand called Red Thunder.   Ice  also helps me during a hit but others find heat to be more beneficial.  I have a knot on the back of my neck just at the base of my skull.  If I apply ice to it, it greatly reduces the intensity and duration of an attack.

Make that Dr. appt! ;)

Jeannie

Title: Re: I didn't want her to see this... not this soon.
Post by Redd on Nov 3rd, 2009 at 10:31am
Hi Jerry,

I too use the Aldi Brand of Red Bull, and keep a supply on hand at all times.

Not having insurance can be a real PITA when it comes to treating this condition, but there are organizations that help with medications. 

There is also a site you may want to read up at.

START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or RegisterEND PRINTPAGE

they also have a message board that you can get to from the left hand bar.

<< bottom button

And don't be a stranger round here.  We folks aren't ALL crazy.  But watch out for ClusterChuck.  He's a bit daffy. :D

Title: Re: I didn't want her to see this... not this soon.
Post by thebbz on Nov 3rd, 2009 at 3:08pm

Quote:
This place may help.

This place and clusterbusters has changed my life and my headaches. From intractable and debilitating, to managable and less frequent. Night to Day. If I ever meet DJ and Bob I will hug them so tight it'll squeeze out a turd. Man hugs of course. [smiley=beer.gif] [smiley=beer.gif]
Beat it headache
the bb

Title: Re: I didn't want her to see this... not this soon.
Post by Brew on Nov 3rd, 2009 at 4:01pm

Quote:
If I ever meet DJ and Bob I will hug them so tight it'll squeeze out a turd.

I'm saying right here, right now: I hope to God I'm not there to witness that.

Title: Re: I didn't want her to see this... not this soon.
Post by Guiseppi on Nov 3rd, 2009 at 8:34pm

Brew wrote on Nov 3rd, 2009 at 4:01pm:

Quote:
If I ever meet DJ and Bob I will hug them so tight it'll squeeze out a turd.

I'm saying right here, right now: I hope to God I'm not there to witness that.


I...on the other hand...wouldn't miss it for the world! ;D

Joe

Title: Re: I didn't want her to see this... not this soon.
Post by Bstrong on Nov 4th, 2009 at 3:20am
Jerry!  This site and people here, that I've talked to or not, is and are wonderful!!!   I was just like you, up until a year and a half ago.  OXYGEN!!!!!!!!!  Wow, what a miracle it is.  And I learned all about it here.  I would have tried anything to help me, anything!!!!   But after talking to my Dr. and getting this lifesaver, I can better cope with life when these cycles start.  My cycle just started again 2 weeks ago, seen my doctor and o2 was set up right away again.  I recently purchased the non-rebreather from the ch store here also, and that really helps.  Bottom line, get what you have to get done with the Dr. but for Gods Sake try this!!!
My heart is whith you and everyone in or out of a cycle right now.  God Bless you all!!!

Title: Re: I didn't want her to see this... not this soon.
Post by Cathi_Pierce on Nov 6th, 2009 at 12:15am
It's TRUE!  Cluster Chuck is a card-carrying LOON!
Aside from that, Jerry, please listen.....this IS the place where you can vent........these people have been in the thick of things for so long, and they have soo much strength and soo much knowledge..and they WANT to share it with you!
It is also important that those around you UNDERSTAND! This is an affliction....and it takes you places YOU don't want to go......but by explaining, and asking your girlfriend to come do some reading with you about CH, she can become a supporter for you as well.......and she will understand!
About 02, yes, it has helped soo many here!
Print out the info on the left- take the quiz, put all this information in your Dr's hot lil hand, and make SURE you get what you need to manage this beast!
Meanwhile, Red Bull, hot strong coffee, a bag of frozen peas for your noggin will help you stand strong against the beast, and if you EVER begin to think this is all too much..plenty here will remind you,,,,,,,,,CH does not kill.....though sometimes it feels like it.....and, most importantly, LIFE IS GOOD! Beats the heck out of the alternative........
Anywhoo, that's my 2 centavos worth.....remember, the light's always on, drop in anytime........
Welcome to Clusterville. sorry you have to be here, but glad you found the place!
PF  wishes!
Cathi

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