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Daily Chat >> General Posts >> 3 years ago today..
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Message started by barry_sword on Nov 11th, 2009 at 6:08pm

Title: 3 years ago today..
Post by barry_sword on Nov 11th, 2009 at 6:08pm
Angie discovered CH.com while researching CH's.
My neuro had me diagnosed already but we did not have the meds right and nothing about o2.
Thanks to DJ for creating this site and for all those, too many to mention individually, who came forward to help me. I was in full cycle at the time and the only thing working was the Prednisone taper but could not stay on that as we well know.
Today I have:
o2 and two 25 LPM regulators,
The new o2ptimask,
Verapamil at 480mg daily as my preventative while in cycle,
And all of you for support and life saving information and advise.
Thank you to each and everyone one of my family here, I do not know where I would be today without this site and all of you's. I am paying forward all I can to help the next person trying to deal with this crippling pain. I am proud to be one of the o2 Pushers! ;)

Barry 8-)


Title: Re: 3 years ago today..
Post by Jackie on Nov 11th, 2009 at 7:11pm
We're glad you found us, Barry...although sorry that you have the need to be here.  You and Angie are a lovely addition to the family.


Title: Re: 3 years ago today..
Post by LeLimey on Nov 11th, 2009 at 7:16pm
I'm sorry for you - but chuffed to bits for me! You and Angie brighten the days for a lot of us. I hate you have CH but I'm so glad to have got to know you both (((HUG)))

Title: Re: 3 years ago today..
Post by vietvet2tours on Nov 11th, 2009 at 7:20pm

barry_sword wrote on Nov 11th, 2009 at 6:08pm:
Angie discovered CH.com while researching CH's.
My neuro had me diagnosed already but we did not have the meds right and nothing about o2.
Thanks to DJ for creating this site and for all those, too many to mention individually, who came forward to help me. I was in full cycle at the time and the only thing working was the Prednisone taper but could not stay on that as we well know.
Today I have:
o2 and two 25 LPM regulators,
The new o2ptimask,
Verapamil at 480mg daily as my preventative while in cycle,
And all of you for support and life saving information and advise.
Thank you to each and everyone one of my family here, I do not know where I would be today without this site and all of you's. I am paying forward all I can to help the next person trying to deal with this crippling pain. I am proud to be one of the o2 Pushers! ;)

Barry 8-)

     You rock.  Don't fall off your bike

                Potter


Title: Re: 3 years ago today..
Post by Grandma_Sweet_Boy on Nov 11th, 2009 at 7:26pm
I'm so glad you and Angie are here, Barry.  I will always remember our dinner meeting, my daughter being worried about axe murders (;D) and you two being sweet enough to come to my birthday/retirement party and putting up with my crazy family and friends.  I treasure those memories and the pictures.

Hugs
Carol

Title: Re: 3 years ago today..
Post by Melissa on Nov 11th, 2009 at 7:44pm
So glad Angie found this site Barry, especially since I value your friendship and support immensely!

Love you brother!
:)mel

Title: Re: 3 years ago today..
Post by Linda_Howell on Nov 11th, 2009 at 8:16pm


Happy third anniversary Barry.

   Your contributions here, help all of us us too.   ;)

Title: Re: 3 years ago today..
Post by Guiseppi on Nov 11th, 2009 at 8:24pm
No question you've been one of the brighter lights on this board. Hugs to your wife for getting you here!

Joe

Title: Re: 3 years ago today..
Post by jon019 on Nov 11th, 2009 at 8:36pm
Well said Barry...classy as ALWAYS...

Proud to be in the same family.

Best to you and Angie,

Jon

Title: Re: 3 years ago today..
Post by Brew on Nov 11th, 2009 at 8:51pm
You seem to have a handle on this CH thing.

Now get yer ribs fixed. ;)

Title: Re: 3 years ago today..
Post by Guiseppi on Nov 11th, 2009 at 9:41pm
CH he's good with...........keeping the rubber side down...THAT he struggles with! ;D

Joe

Title: Re: 3 years ago today..
Post by barry_sword on Nov 11th, 2009 at 9:52pm
I have been here morning, my lunch, then after work almost everyday for three years, and will continue.
Thank you for being there for us and all the other suffers and supporters, you all are the best of the best! [smiley=bow.gif] [smiley=bow.gif]



Title: Re: 3 years ago today..
Post by Kevin_M on Nov 12th, 2009 at 7:35am
Thankin' Angie for looking out for you, happy for you handling through, and grateful to have you two being here.  Hey yeah you rock!

Title: Re: 3 years ago today..
Post by George on Nov 12th, 2009 at 12:21pm
Happy third anniversary, Barry. 

You and Angie are truly assets to this community.  Glad to know ya.

All the best,

George

Title: Re: 3 years ago today..
Post by Lefty on Nov 12th, 2009 at 1:05pm
Barry

I'm sure your sound advice has helped alot of people in those 3 years and we all enjoy the those crazy little mountain bike crash videos you post now and again... ;)

Lefty...!

Title: Re: 3 years ago today..
Post by Charlie on Nov 12th, 2009 at 3:42pm
Happy 3rd Barry and we'll all glad to know you.

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Charlie

Title: Re: 3 years ago today..
Post by cynjeep89 on Nov 12th, 2009 at 5:48pm
Three years??  Guess we have to keep you, eh?  Sheesh ;)

You and Angie are like my brother and sister and I love you both.   :-*

Title: Re: 3 years ago today..
Post by Callico on Nov 12th, 2009 at 9:36pm
Glad you found us.  You've been a big help to me over the last three years.  Here's hoping you go PF forever, but stay around to help the rest of us out.

Jerry

Title: Re: 3 years ago today..
Post by catlind on Nov 13th, 2009 at 7:55am
Sorry it took me so long to post to this.  Barry, you and Angie have been genuine angels on earth since joining this family.  You have both been there for me through some pretty difficult times, and your support and encouragement has made a huge impact on me and in my life. 

I want you both to know, that sometimes people won't ever say a word, and may remain completely anonymous to you, but you have done things that have made tremendous impacts in their lives.  I just want to be sure you 'hear' it, that you have had certain and absolute influence for the better over the life of another person and probably made sure that I kept going when I might otherwise have chosen not to.

I hate that you have this dreaded disorder, but if it's what was necessary for me to cross paths with you, the benefits have far outweighed the costs, and I will return the favo(u)r to you both every opportunity I get.

Cat

p.s. Wiley says that Ceasar is fine but wishes you would really get a bigger bed so he has more room ;)

Title: Re: 3 years ago today..
Post by barry_sword on Nov 14th, 2009 at 3:12pm
This is one awesome family and damn proud to be a part of it.
Thank you for all the kind words, means so much to me and Angie. [smiley=hug.gif] [smiley=hug.gif]

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