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Cluster Headache Help and Support >> Getting to Know Ya >> hello to all http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1259193254 Message started by davedmk on Nov 25th, 2009 at 6:54pm |
Title: hello to all Post by davedmk on Nov 25th, 2009 at 6:54pm
hello to all ,well where do i start? i have had chronic chs for 12 years now but have only been diagnosed for six months ,sound familier to anyone?.well i am a 33 year old guy with a great partner and two wonderful children and without them i doubt that i would still be here .I live an good life now but it was not always so,six months ago myself and family had to move from our home because of threats from neighbours because i did not agree with the way they made their money ,pusfing misery onto others ,i had to move my family four hundred miles away on the recomendation of the police as our safety was at severe risk.So we moved , we had to leave everything behind so basically left with the clothes on our backs,throughout this time my chs hit an all time high and i found myself standing on a chair beneath a loft hatch thinking that i could not go on any more.well i am still here and fighting on .Now it may seem like i am getting the violins out but basically i would like some contact with the outside world lol,it would be nice to hear from other people who suffer from chs as talking always helps !!! so feel free to come over and have a chat etc and i look forward to hearing from you guys whoever you are ,,,,Dave
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Title: Re: hello to all Post by angela.lambert on Nov 25th, 2009 at 7:27pm
Wow Dave!
Sounds like you and the family have been through a lot. And then add some really bad and rare headaches in to the batch. Are you on any medication? Got a good a doctor? Using the O2 yet? PFD, Angela |
Title: Re: hello to all Post by Jrcox on Nov 25th, 2009 at 9:23pm
Hey Dave we know your pain. Truly do. We can fight it though. Glad your here. read up on this site and take it to hit doctor get a plan setup.
Wish you the best, PFDAN Jrcox |
Title: Re: hello to all Post by Jrcox on Nov 25th, 2009 at 9:29pm
Oops can't type. I meant to say take what you find from this site the the doctor. Not hit the doctor. :)
jrcox |
Title: Re: hello to all Post by Guiseppi on Nov 26th, 2009 at 2:59am
Welcome Dave. When you get a second, tell us a little about your regimen, meds that have and haven't worked, what you're using now. You've got a gazillion years of real life CH experience on the boards, maybe we can make a suggestion to take back to your doc that'll help you out.
Glad you found us, you're not alone with CH anymore! joe |
Title: Re: hello to all Post by barry_sword on Nov 26th, 2009 at 12:48pm
Hi Dave and welcome. You are not alone with these anymore. I have to get back to work, but just wanted to say hi and feel free to talk anytime with us.
Barry :) |
Title: Re: hello to all Post by haylz on Nov 27th, 2009 at 7:44am
Hiya Dave, Ive been though a lot as well before i even started to get my headaches and sometimes you think why me? i suppose you have to keep on trying really there is always someone worse off i suppose but you never think that when you have got your headache. sometimes i just want the world to stop for me because I'm having a hard time but it doesn't work like that life goes on for everyone else while were suffering. Its nice to know someone who has been through a lot as well as suffering with the condition, makes you think...maybe I'm not alone??
Hayley x |
Title: Re: hello to all Post by exmed1 on Nov 27th, 2009 at 7:53am
Hi Dave,
We are maybe near neighbours - I live in north Cornwall. Understand some of your pain, we're all different but the chair under the loft hatch has some similar overtones. My worst point was about 3.30 one a.m. driving to some cliffs near our home and for a while the idea of putting it in gear and just flooring the throttle was not only real, but strong. Luckily I too have a fantastic pair of kids and an incredibly supportive wife. I'm not sure how many of us are in this part of the UK, but perhaps we'd email via site and take it from there. Due to your previous probs, understand if you not want to. Are you cared for locally, or like me seen at NHNN in London? Hang in there, I've found so much strength from this site. Andy |
Title: Re: hello to all Post by haylz on Nov 27th, 2009 at 8:00am
I'm from the UK. Liverpool to be accurate. nice to see other people from the UK actually. your a big further south than me i think though. nice to know someone close by who suffers sometimes i feel so alone.
Hayley x |
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