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http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl Cluster Headache Help and Support >> Getting to Know Ya >> new. question about neurontin http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1259205549 Message started by jameson on Nov 25^th, 2009 at 10:19pm

Title: new. question about neurontin
Post by jameson on Nov 25^th, 2009 at 10:19pm

i'm new to the site
i'm male, 22 and from northern ireland (anyone else from NI?)
had CH for about 3 years, diagnosed 2009

have a question- what can anyone tell me about the drug neurontin?

also i might just want to let of some steam sometime about CH, they are horrible

thanks

Title: Re: new. question about neurontin
Post by Marc on Nov 25^th, 2009 at 10:39pm

Welcome.

My experiences with Neurontin may be different than others, but it did nothing at all for me. I was desperate for some relief, so I tried as high as 4,000+ mg per day ramped up slowly over three months.

I was trying a mixture of meds at the time and thought that it was working, but when I stopped - it had zero impact - good or bad.

Please keep in mind that we all respond in different ways to the wide variety of medications out there!

Marc

Title: Re: new. question about neurontin
Post by exmed1 on Nov 26^th, 2009 at 11:27am

Hi Jameson,
I'm in the UK and have about 6 years experience of Neurontin. The actual generic name that you will be supplied is usually Gabapentin, not the more expensive trade named version. I started on 300mg per day and slowly over a period of about a month went to 1800mg per day.
For me there were only one or two side effects. 1/ I found as the dose went higher (in my case I ended up on 4000mg per day (no that is not a typing error!) my speech was very 'stammery' and not easy to understand and 2/ The other one was some loss of libido at the very high doses.
Now I'm back to 2400mg per day. I did go lower but the chronic got even more painful, so in my case it does seem as if Gabapentin does have some beneficial effect.
It's a well tried drug and so I can only suggest giving it a go. Best of luck and try everything they offer you.

Title: Re: new. question about neurontin
Post by bejeeber on Nov 26^th, 2009 at 11:41pm

It's been pretty good for me. With the episode I think I've just finished, It probably prevented about half of my hits, which for me has been about as good as a preventative gets. I ramped up to 2400 mg a day, started at 900 mg.

The initial side effect I experienced was some wooziness, not too severe, and it completely went away after a while.

You're using an abortive such as O2 and/or imigran to quash hits I hope?