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Cluster Headache Help and Support >> Getting to Know Ya >> Newbie To The Site
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Message started by jsbelljr83 on Nov 28th, 2009 at 7:21pm

Title: Newbie To The Site
Post by jsbelljr83 on Nov 28th, 2009 at 7:21pm
My name is Sam, I am 45 years old and have been plauged with sinus problems for years.  I have endured two very painful sinus surguries which have helped matters some.  Over the past 5-6 years I will get a massive headache, usually located at the base of my skull at the front of my skull between my eyes.
     Most of the time they are more severe then ANY hangover I have ever had, worse then So-Ju or Everclear hangovers.  I have had some come on so suddenly that I have actually dropped to my knees because the pain is so severe.
      My last really severe attack came in late Aug and I gutted it out all day at work.  Whenever the pain would come on I would spray several good blasts of Sinusbuster up my nostrils and that would help with the pain for a short period of time.
     This Wed I have a follow up app with my ENT doc and will bring up this problem with him.  I had a VERY nasty sinus infection that lasted over 2 months. 
       I was reading some of the posts here and was interested with the referrence to drinking water.  On an average day I will drink 2-3 Naglene bottles of water, rarely do I drink soda's although I do drink quite a bit of coffee. 
       After reading many of the posts here I can not pin down any specific "triggers", usually if I get one they occur early in the AM and can last most of the day.  I look forward to getting more info from this site. 

Title: Re: Newbie To The Site
Post by Golan S. on Nov 29th, 2009 at 2:20am
Hi and welcome :)
I am not pretending to be an expert, but some of the things you say here makes it unlikely that you suffer from cluster headaches.
I too was diagnosed with a sinus problem for more than two years. It made sense to me because the pain was always accompanied with a a dripping or a blocked nose. Only when I was referred to a sinus surgery, the ENT expert found that my sinuses were "clean" and I was referred to a neurologist who finally diagnosed the problem well. Unless you are very unlucky, I find it unlikely that after two surgeries, no doctor would see that the problem is not your sinus (in CH, the blocked/dripping nose is not the cause for the pain). Also, treatment for pains caused by the sinus cannot help for CH.
Again, I am not an expert, but I read a lot about CH and I don't think that you can "gut" a cluster headache without treatment. Until the pain is gone, you just cannot do anything but "dancing" and think of ways to make it go.

Title: Re: Newbie To The Site
Post by jsbelljr83 on Nov 29th, 2009 at 2:21pm
Let me clarify the two surguries I had, the first was a de-calcification process to open up the passages behind my eyes, the second was a "rotor-rooter" like process to open up my sinus cavities.  I would get a sinus infection and it would last for several months.  After the second surgury when I get one it usually gets cleared up within a few weeks.
     The reason I was thinking CH's is when I get these horrific headaches I do not have any sensitivity to light and usually do not get any neusea either.  I have a follow up Wed with my ENT doc and will discuss these horrible headaches with him. 

Title: Re: Newbie To The Site
Post by Joni on Nov 29th, 2009 at 4:18pm
I have to agree with Golan, you do not describe traits of a cluster.  Read the medical info and traits to your left on this site....that should lead you in the right direction.  I do understand your interest because, at first, it can be misleading but you would still have some characteristics of cluster headaches sneaking in there.  If your doctor KNOWS you have a sinus infection, then that is probably what you have.  I have an excellent ENT doc and he never diagnosed my clusters...my neurologist did.  Sounds like you have been through a lot.  I wouldn't want to give you tips in your currant situation other than to see your doctor as planned. 

Good luck!
Joni

This is not a reason to assume you have clusters:

"The reason I was thinking CH's is when I get these horrific headaches I do not have any sensitivity to light and usually do not get any neusea either.  I have a follow up Wed with my ENT doc and will discuss these horrible headaches with him."


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