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Cluster Headache Help and Support >> Medications,  Treatments,  Therapies >> ?? on RC Seeds
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Message started by dm1girl on Nov 30th, 2009 at 12:10am

Title: ?? on RC Seeds
Post by dm1girl on Nov 30th, 2009 at 12:10am
My husband has suffered from CH for over 10yrs and lost many jobs, friends and parts of his life because of them as you all know.  He has been in an active cluster since first week of September and it shows no signs of stopping. He has tried about every drug out there over the years and I recently found out about Kudzu which seemed to work for a week and then ran out of Natures Way and bought different brand which must not be as potent.  ANYWAY, he is seeing his dr tomorrow about getting back on oxygen...tried it several years ago with no luck but with info posted here "we" wanted to try it again.   I ordered the RC seeds and they should be here by weekend. HERE Is where I have questions.   Conflicting info on the clusterbuster and forum on starting amount.  I know each individual is different so I don't want to overdo but I also want something from it if he has to go off all meds for 5 days!!  I was thinking of 20 to start?  THen different info on what to soak it in...water or wine or mix with chocolate syurp..(soak first then add choc syurp for hiding taste??)   THen if doesn't work in 5 days do again...do you bump up the amount ..if so by 10? 20?  Would we try again in another 5 days (3 dose) with more if not gone??  How many tries would determine if it just isn't going to work vs not the right amount?? 

THEN because he recently just lost his job again, if he has to do a pre-employment drug screen, how long after a dose will it show up??  Anyone know?

THank you very much for any help.  I am praying this helps a little...even just enough to be able to function somewhat for the 6months of the year that he's in active cycle!!

Desiree

Title: Re: ?? on RC Seeds
Post by Sophie on Nov 30th, 2009 at 1:58am
Hi Desiree,
I think 20 RC seeds would be fine to start with, and bump up 10 on follow up doses. ClusterBusters  might seem to have conflicting info., but that is because different people have found what works for them. As far as soaking I prefer water with a tsp. of lemon juice. I prefer to soak about 4 hours. However anywhere from2 hours to 24 hours will work.
I would say there is a chance the RC seeds will make a differance with the first dose. But it might take 2 or 3 or 4 doses to really knock out the cycle. I would not go over 60 RC seeds, but that is just me. Some people strain the sludge off and drink the fluid----aprox. 1/2 cup and others drink the whole thing. The seeds are not terrible tasting and that small amount is not hard to get down. If they do the trick, taste won't matter anyhow. Hope this helps. I'm sure you will get more feedback. Best of luck.       Sophie

Title: Re: ?? on RC Seeds
Post by Sophie on Nov 30th, 2009 at 2:03am
I would not be concerned at all about pre-screen test. I don't think anyone tests for this.

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