Is anyone here ever afraid that these CH's might actually kill them one day? And I don't just mean because you want to kill yourselves over them. I mean from meds. I mean, I have tried so many things to get rid of these aweful (I know, it just doesn't seem like a strong enough adjective) headaches from you know where. From natural remedies, to over the counter and prescribed pain meds, abortive treatment as well as preventive medication. So far nothing really has ever seemed to work for me. I also heard things about water treatment and caffiene helping, as well as vigorous exercise. So ther I am at 3 am taking my abortive meds, eating caffiene like its candy, and whatever else it is I can get my hands on, jogging through the house, drinking copious amounts of water and STILL not being able to chase away the demon.It's aweful Typically, I'm not the kind of person to take any pills, but when I get these headaches, I just can't help myself. And even though the pills don't generally work for me, I still take whatever is handy to me at the time in large doses with the hope that it just might work this time, or if I take a little more maybe it will go away. When I'm in remission I worry about what all that stuff is doing to my body, but during the attacks, I really just don't care. I can't help myself :-X

No, and maybe because i don't take all the meds that are available... I see no mention of o2... Have you tried o2 to abort?

I am a x drug addict... I am not in any 12 step recovery and or a addict in recovery, to me that is non-sence.

I stopped because i wanted to be in controll of myself and i am. No groups no help and like most things I pulled on my boots by the straps and never looked back.

Take care with mixing things in your body.

I have nev3er had the privelege of trying O2. Have you? If so, has it worked out for you. I don't like taking meds either. In fact, I am very anti med. I just lose all reason when I get a headache. I'd love to have control, and I constantly tell myself I will be strong during the next episode, but then the headaches come and have me on my knees again.

I found this thread first.... I found your other thread after..

Get 02, just get it! Don't wait, get it get it now, your whole life will change for a much better better...

If you want to talk I can hang around

It's really hard to image that there is anything out there that can actually help. I plan on making an app. w/my doctor a.s.a.p. and practicalyy demanding a script. In addition to that, I'll see about getting a hold of one myself in the event he gives me a hassle. I have nothing but hope that this is going to help end, at least some of my attacks. I'd be thankful for any aborted headaches.

I waited to see if you would return... I will edit in more now.

Read the menu on the left about 02, read it all. ASAP get some.

Demand it, and if that fails go to a welding supply house and get it there..

I am probably an old geezer by your stds, at 58, but I have had some time to mess around with a CH. Of all the things you can do by far o2 is the safest of all. It will have no after effects..

It is an abort, but it is safe.

I don't have lots of money and so doctors are not an option. I am a metal worker and work for myself and so weld and solder with torches. There is no real difference in medical o2 and what a welder uses.. When i exhange tanks I see medical tanks getting filled off the same tooling my welding tank gets filled from.

In the side bar menu the biggest tank is what I have in the barn. A bit too big to drag around.. I have a much smaller tank too for the silver work I do..

I have no mask, and find I don't need one.

This is not to say don't go the way of the medical equipment, and or with doctors, but that if you can't afford it that way there is another way.

At first when I read about this method I took it as a joke, a prank others would play so they could see another human suffer.

Well it is no joke. It will take some getting used to, but once you are, and see it works, you will begin to become an old hand at aborting this affliction.



want more?

I sent you a message in your mailbox.

From CH? Heavens, no.

In the epistemological sense, does anybody really know what the future holds?

Brew wrote on Dec 4^th, 2009 at 8:13pm:

From CH? Heavens, no. In the epistemological sense, does anybody really know what the future holds?

From a vocabularlistical sense, does anyone know what epistemological means?  ;)

I may not have found a cure yet, but that last statement had me laughing. lmao ;D

echogirl wrote on Dec 4^th, 2009 at 8:26pm:

I may not have found a cure yet, but that last statement had me laughing. lmao ;D

I aint very smeert, but I do try and make people laugh!

I don't worry about dying when getting hit, I worry more about not dying sometimes.  (not joking).   However, I have found abortives and coping mechs that make it more bearable and being here gives me the mental support to not be scared.

I used to wonder whether one would kill me outright, but not anymore.  Hasn't yet, and it's been awhile.   ;)

Listen to the advice you've been given about oxygen, and take a look at the "oxygen info" link to the left.  It's the only abortive I use.  Works like a charm. 

Knowing there's an effective weapon to fend off an attack can change everything about living through a CH cycle--for the better.

Work with your doctor to see if he can get you on an effective preventive regimen, if you choose to do so.

Ditch the OTC pills.  They're useless.  You may as well eat smarties. 

Best wishes,

George

FramCire wrote on Dec 4^th, 2009 at 8:25pm:

From a vocabularlistical sense, does anyone know what epistemological means?  ;)

I used to know, but I don't know how I knew anymore.

Best,

George

FramCire wrote on Dec 4^th, 2009 at 8:25pm:

Brew wrote on Dec 4th, 2009 at 8:13pm: From CH? Heavens, no. In the epistemological sense, does anybody really know what the future holds? From a vocabularlistical sense, does anyone know what epistemological means?  ;)

From a worldwidewebological sense, does anybody who has access to a CH message board also have access to dictionary.com?

This is how we step out of the dark ages, into the modern era, and expand our mind and our knowledge base. Which, the study of epistemology will reveal, is quite limited.

So there. ;)

I never thought the CH's would kill me but as they increased in intensity each cycle I was losing the battle.

I was referred to a neuro and a CT Scan was done, all clear. After listening to me describe the pain and the cycles he told me I had CH's. Then my wife Angie found this site and my life turned around for the better, and so did Angie's. :)

I took a printed copy of the o2 info to your left in yellow and had my neuro read it and I had my script for o2 at 15 LPM, but have since got him script for the 25 LPM regulator with the help of a dear friend on here. ;)

o2 was my godsend, hope it is yours. :)

Brew wrote on Dec 4^th, 2009 at 8:39pm:

FramCire wrote on Dec 4th, 2009 at 8:25pm: Brew wrote on Dec 4th, 2009 at 8:13pm: From CH? Heavens, no. In the epistemological sense, does anybody really know what the future holds? From a vocabularlistical sense, does anyone know what epistemological means?  ;) From a worldwidewebological sense, does anybody who has access to a CH message board also have access to dictionary.com? This is how we step out of the dark ages, into the modern era, and expand our mind and our knowledge base. Which, the study of epistemology will reveal, is quite limited. So there. ;)

I dont think i have this world wide web thingie.... but I certainly dont want to meet the spider who spins a web that spans the whole wide world.

With that said, we have again hijacked a thread with our inane (ok, yours isnt inane, but mine is, so you are being lumped in) banter.

I hope we made you laugh though!

echogirl wrote on Dec 4^th, 2009 at 7:06pm:

Is anyone here ever afraid that these CH's might actually kill them one day? ....

Not since I learned about actually started using very high flow oxygen therapy.

Marc

Hey echo,

Sounds like those were bonified kip 10's you were going through. I used to be the same way, Rolling on the ground crying and such.

It got so bad for awhile i thought i was going to just drop from a aneurysm or a blood vessel pop. It was hard to figure out how something that bad could could just be gone with no side effects or anything!!

Then my Doctor got all the things i needed for a oxygen set up, and it change my life. I know I'm only a episodic suffer but since i got my 02 i have not had 1 triptan or any other prevents. So don't just think about getting 02, Get it..   

                            Best of luck,

                                               Bill

FramCire wrote on Dec 4^th, 2009 at 8:32pm:

echogirl wrote on Dec 4th, 2009 at 8:26pm: I may not have found a cure yet, but that last statement had me laughing. lmao ;D I aint very smeert, but I do try and make people laugh! I don't worry about dying when getting hit, I worry more about not dying sometimes.  (not joking).   However, I have found abortives and coping mechs that make it more bearable and being here gives me the mental support to not be scared.

Ah, we do share common ground after all. And I have no clue about that word..



Ya know.. I can't figure how it is a TOPIC must stay true to the thread, and on this site how it is even possible. Ch's cause me to get stupid.. No joke. I fight to get chores and tasks done. Some I have done many times before, in just hours, becomes days, because it is so hard to remain on track and concentrate.

Getting way off topic... i do this.. Recently my car (cage) became the item of my interest, since i ride a motorcycle as long as i can into winter. Well a mouse built a nest under the timing belt cover. I didn't know this, and couldn't see it, so when I tried to start the car I ended up breaking the timing belt.

Normally this is a few hours of labor and pretty easy. Under the effect of CH it turned out to be a 3 day project. In part the markings on the new belt were painted in the wrong places, but still this should have been under 8 hours. flat....

Marc is just  more proof O2 works echogirl.

Not quite as old as that geezer Mac... ;)..not quite 50 here, but have about 31 years of CH under my belt. In my early days I was convinced anything that hurt this bad was probably going to kill me! :o

Oxygen, just wow. I feel the tension in my neck, the warm feeling in my jaw and eye, and the pain starts building. I fire off the 02 and in less then 10 minutes I'm pain free again. By the time my little girls were 12 they could rig the regulator to an e-tank and help me get started. I know it seems we ramble and preach a lot about 02 but damn...it works so well for so many it's frustrating that more don't try it.

Hoping you find relief soon sounds like you're in a bad place right now. :'(

Joe

In the end, you are not dealing with a medical problem. This quality of fear is too strong and entrenched, I suspect, for you to handle without some support. Perhaps, you can ask some people you trust for info. on a good counselor who could help you developing the coping skills which would help with all kinds of life stressors.

The approach I'd suggest is encapsulated in this brief piece. It's highly effective when you have a good guide.

START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or END PRINTPAGE

The only time I ever worried about dying from an abortive med was when I 'almost' lit a cigarette while huffing 02.

Might that be called an oxycolinologistcal concern, Brew?

(Mr. Webster please do not turn over in your grave)

Bob...as usual....caught the point the rest of us missed. Depression, anger, fear......all can be a significant issue to deal with along with CH. He has a good point, you should consider seeing someone who can teach you some coping mechanisms to help you process all this stuff!!  We'll be here to help see you through it! [smiley=hug.gif]

Joe

If you are afraid of dying, you are afraid of living.

OK, maybe I miss obvious signs, but.......

In echogirl's" original post she seemed to be asking: "Can the meds we eat like candy in trying to escape the pain actually kill us? In the grips of the worst pain, I don't seem to care - I just want it to stop"

Yes, I'm slow and don't pick up on some things, but that seems like a good point.....

Respectfully,

Marc

O.k. Marc...can she,  or anyone over-dose on pain meds?   Of course.

Can she overdose on prescribed prevents or abortives?  of course.   Hopefully EVERYONE knows this fact by now. 

Like Bob said, in the end she is not dealing with a medical problem anymore..this is a problem with FEAR.

everyone on this site has had to deal with it on their own...with a little help from each other, but basically on our own.

And we did!  I think fear is one of the biggest things to over-come about this condition.

the rest of us are here almost 24/7 to help the newcomers.

Thank you, Marc. I think you are one of the few who actually got it. I know that CH's themselves won't kill me, nor do I want to do. I just sometimes feel like I do so much harm to my body w/all the neds I use to try to abort a headache. I've already got scripts that were recommeded for only so many a day, or week, but with the frequency and intesity of the headaches I'd end up abusing it. The docs want to give me the strongest, most effective meds, but they definitely don't work in small doses(sometimes I question if they do at all) and are only recommended for like 2-4 pills a day. (usually you need to take 2 at a shot) When you got several headaches a week, meds just don't seem safe. But it's hard to not take SOMETHING to tryto get rid of that pain.

I meant to say several headaches a day for several weeks.

Oh, yeah. I guess in a way I do fear the headache, but it's the pain I need to deal with. I've come to terms with the fact that I hav to live with this shit, but it still doesn't make it any easier to deal with the helll when I get a headache. I might be new to this sight, and I'm thankful for it, but I've been dealing with these headaches for 16years now. The only difference now is I finally have someone else to share my nightmares with who really understands, which is a great help.

All righty then Echo girl...want to talk?

   Give me a call.  I've been giving my home number out here for years.. I'd love for you to call me anytime...I mean that. I've had people call me and we've been BFF's for a long time now.

I....and no one else here...has all the answers.  But we can certainly help anyone through the maze of confusing info and help everyone in one direction or another. 


    (270) 824-8328

We may be able to help you more if we knew what you are taking for your attacks? Pain meds are not aborts for CH. In fact they can make it worse.

If you are taking Imitrex pills, they are too slow to abort CH. We need injections or inhalers to abort quickly. And yes I use O2 as my #1 abortive, so I rarely need anything else to stop a hit.

Few Dr's know much about CH and the best treatments, so educating yourself about them is in your best intrest. We can help with that.

Please forgive me if I've misunderstood your posts.

Don

Linda_Howell wrote on Dec 5^th, 2009 at 5:49pm:

Might that be called an oxycolinologistcal concern, Brew?

Perhaps. Depends on whether you were using a Bic or a Zippo.

I understood right off the fear was based on OD or mixing meds..

There may be times for meds, but when there is a known abort with the use of o2 that to me is best.

I didn't post once yesterday, I was resting, from too many hours moving th beast around.

I didn't like the patter that was evolvong, so I stayed awake late into night. Friday night I stayed up to 3, passing the beasts time and it hit at 5 AM instead.. I just got up and went to the barn, sat in my chair in the cold and did o2.

I lost a lot of sleep, but wasn't in very much pain.

Last night i slept all night with no beast.. I know it will be back, and i will move it from what ever times it comes again...

....................................................................
echogirl, got O^2??

I kind of figured you understood the question, but some of the other answers seemed a little off subject. Anyways, I hope you get some sleep tonight. I am in remission right now, and am very thankful for that. I'm sorry to hear you are not. Do you have episodic or chronic ch's?

Quote:

...some of the other answers seemed a little off subject.

Is that not allowed?

depression seems to come with this illness.  If that is your issue than dont be afraid to talk to your dr about it and ask for help getting on an antidepressant or some counceling.  It did wonders for me.  Oxygen works great.  It is the e tanks that you will want.  They are the most portable size and easy to store and take to and from work.  Yes I have wondered what all these meds can do to you.  I tried over 60 different meds in all.  I had allergic reactions to the anticonvolsant meds like dilantin, depakote and tegretol.  I had a dr in the ER overdose me on dilaudid.  Sent me home after giving me 6mg.  I just wanted the pain to stop and didn't think much of it.  My husband drove me home and undressed me.  He latter found me unresponsive and blue and not breathing in the bed.  He called 911.  They said 15 min. more and I would have been a goner. Bottom line use common scense and trust your instincts in what meds you take.  Drs are quick to shove a pill at you and we are quick to take to make the pain stop.  But we have to think what it might do to our body over time or at one time.  Life is worth living.  You can get a quality of life back with proper treatment.  Let us help you.  Have you tried verapamil or lithium or topamax?  Maybe even elavil or zyprexa to prevent the has?  Imitrex or zomig, axert, frova etc to abort them.  Good luck in your search for a new life. 

No, I guess it's allowed. It just didn't answer the ueston at hand, that's all. I asked people if they were ever afraid that they might overdose trying to control their headaches, ei..taking too many aborts for example, and some people responded with, " CH's can't kill you" Which I already knew, and it totally didn't answer the question. That's all. ;)

I accidently took far far too many cocodomol when I was waiting for a diagnosis.  Went to hospital after the pain stopped and had to have my stomach pumped.  That was unpleasant.  I only keep an amount of medicine that it's ok to take in one go because I just don't remember what I've taken and how much when I'm in pain.  Maybe that'll ease the worry for you? 
Besides, when nothing works, having stuff to hand isn't exactly helpful. :(

echogirl, I am episodic, and in mid war I guess. I don't keep a calandar. I know i should, but just have problems with papers and words recorded on them.

About now what happens with me is I get these, get up , go kill it and try to get back to sleep. If I can then vivid in color dreams happens and the next hit wakes me around 2 hours later.

The dreams confuse me to the point that sometimes i can't tell which is real.

So far I have only been interested in methods to abort, as I don't want to be on pills for a overly long time. I don't like pills either.

IMO no pills will be fast enough for any abort.

Last night I had 3 attacks, but the 2nd one was the worst. Kip 8 I guess, and the part that bugged me was it seems for a while o2 wasn't going to kill it. It did, but it took a bit more time.

As usual I went walking out in the garden and around in the field awhile. The moon was out and it was icey cold. While walking the beast made a wee replay, and I went back in the barn and got rid of it.

Knowing a few things from others here and having o2 on hand makes a lot of difference. It isn't likely I will ever see Kip 9 and 10's again, so long as I have o2 on hand.

I can't speak for others, but I find with me if I take inject trex it will extend my weeks. That meds also makes me wishy washy.. Just 1/3rd of the vial is all I need to abort, but then it just adds to mre problems.

The very first time I used that injector I used the whole 6 mg's dose, and that was a big mistake for me. It got rid of the ch no problem, but I was left in bed feeling as if I were drowing..

That almost scared me, but being a x drug addict I felt able to still be in some minor form of controll and so made sure to stay awake.

I think most people here that use trex injections, us 1/3rd the vial at a time, getting 3 doses for the 1 vial. I had the stuff, but haven't used it in years.

If I did 2 things would bother me, one is the extended time, and the other is being a coward, and not taking the problem head on.

The last reason isn't a very good reason, but the first reason sure is.

I haven't abused drugs in 3 decades, and don't plan to start that new any time soon. I am a little rugged guy, and have been hurt before, so I know since this is just pain I can deal with it now.

What I would like to find is a local plant I can get in the woods here, that in the normal couse of eatting, could be added, and in a way that CH would just be a thing from my past history. Something that seemingly does nothing, and for sure has no after effects. That is just a dream.

Probably my attitude is because I can controll the pain to not over Kip 8, as after than there is no more control, the beast has you, and will shake you out like a wet rag doll. The o2 cuts the time of real pain, as well, so this ends with me left in better shape over all.

Before I came here, and before I knew what was wrong with me I had Kip 10's and those turned me into gray mush.

I may have a few weels more of this insanity, but then it will end till Spring. Spring may or not briong Ch back, I can never tell.

Sometimes I skip spring and or fall, but I can never tell before it happens.

Got o2 yet?

Still no o2, but I see my doc. tomorrow. I hope it holds some promise for me. I've decided I'm not taking no for an answer, which shouldn't be a big problem, I think. He's usually understanding and has been willing to work with me on this issue seeing how he's just learning more about it himself. He doesn't seem too prideful, or arrogant either. He doesn't mind taking helpful advice that might help. He's a good listener, which is a great help.