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http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl Cluster Headache Help and Support >> Medications, Treatments, Therapies >> GMA and O2 for Clusters http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1260371296 Message started by Joni on Dec 9^th, 2009 at 10:08am

Title: GMA and O2 for Clusters
Post by Joni on Dec 9^th, 2009 at 10:08am

This was on CNN today

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Title: Re: GMA and O2 for Clusters
Post by remission lover on Dec 9^th, 2009 at 12:51pm

Thanks for posting that. It was refreshing to see the condition (and the website) mentioned on a national show. Shed some light on us and make people more aware. If that sort of thing continued, someday I might mention my affliction to a co-worker for instance and they would say "oh yeah, I saw that on tv. I am so sorry to hear that". Wouldn't that be something! More importantly, awareness promotes research, or at least I hope for that as I'm sure we all do. Thanks again for the sharp eye.

Title: Re: GMA and O2 for Clusters
Post by Joni on Dec 9^th, 2009 at 3:58pm

Yes, it would be great. I would also like to see us portrayed in a better light! I do not fit the profile of cluster sufferers and do not want to for that matter. I am not handicapped, disabled, male, an alcoholic, rugged, or look like a lion.

Title: Re: GMA and O2 for Clusters
Post by dsw on Dec 9^th, 2009 at 6:15pm

Agreed National PR on CH is a good thing. I have Good Morning America on every a.m. and was thrilled to hear report and that others did too. We only just let our families know of the depth of my husbands suffering...my mom also saw the story and emailed me to see if we were aware O2 as a therapy. More talking about CH brings more research and recognition of this dibilitating disease.

Title: Re: GMA and O2 for Clusters
Post by Skyhawk5 on Dec 9^th, 2009 at 7:23pm

My wifes boss saw this and called her to his office this morning to ask if we knew about the O2.

"Only for the last 20+ years" said the wife. But it's better than the beginning.

Thanks Joni, Don

Title: Re: GMA and O2 for Clusters
Post by Joni on Dec 9^th, 2009 at 8:16pm

A friend of mine emailed the link to me and when I saw her later, she said, "Do you think it would work?" When I told her I had used it years ago and lots of people use it, I could tell she was disappointed. She thought she had found something new for me. It was very sweet of her, so I told her I was glad she sent it to remind me that I still have that option.