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Daily Chat >> General Posts >> Can Use Your Vibes http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1261175634 Message started by purpleydog on Dec 18th, 2009 at 5:33pm |
Title: Can Use Your Vibes Post by purpleydog on Dec 18th, 2009 at 5:33pm
Kirk is getting slammed every 2 hours, with no end in sight. >:( He ran through 4 E tanks, and one M tank in two weeks. The O2 generators are barely enough (using 2 in tandem, gets about 14 LPM). O2 people from the VA aren't returning our phone calls.
The VA doctor will not get him a pred taper, saying only O2 and triptans are to be used for CH. I tried to straighten them out, requesting the pred. The nurse asked me how I know about it. ::) So, I asked her if the doc was going to have O2 delivered on Monday, since he's out of tanks (no), and I asked if the doctor was going to prescribe a triptan to be used with his heart condition. This doc is a TOTAL MORON. I explained to the nurse about CH, and asked her what the doc wants us to do. She offered a neuro consult.... after the first of the year. I'm scrounging to see if I have enough pred laying around for a taper. Please keep him in your thoughts. This really sucks. |
Title: Re: Can Use Your Vibes Post by Callico on Dec 18th, 2009 at 5:39pm
Praying for him now! Wish I could get my O2 down to you. Don't you just love government health care?
Jerry |
Title: Re: Can Use Your Vibes Post by Redd on Dec 18th, 2009 at 7:04pm
Awww crap sis.....No wonder I haven't heard from you guys in a while.
Hmmmm I wonder if you left some of your pred here by mistake last time you came to visit? Let me check, and I'll get back to you. |
Title: Re: Can Use Your Vibes Post by Redd on Dec 18th, 2009 at 7:42pm
:)
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Title: Re: Can Use Your Vibes Post by Opus on Dec 18th, 2009 at 9:32pm
Prayers going out to you and Kirk. It sucks when we have to self treat but at least we know what to do.
Paul |
Title: Re: Can Use Your Vibes Post by Brew on Dec 18th, 2009 at 9:45pm
Chris - Check your PM's.
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Title: Re: Can Use Your Vibes Post by -johnny- on Dec 19th, 2009 at 12:35am purpleydog wrote on Dec 18th, 2009 at 5:33pm:
damn.....thats horrible. :'( [smiley=furious.gif] check your PMs chris. |
Title: Re: Can Use Your Vibes Post by Kevin_M on Dec 19th, 2009 at 6:21am
Hoping better for you very soon somehow, Kirk.
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Title: Re: Can Use Your Vibes Post by Anchor Yanker on Dec 19th, 2009 at 7:42am
I'm sorry, I'm kind of new at this support thing. I've never had it that bad. I couldn't imagine. I swear, I just couldn't imagine. Is there any way you could see another doctor that would at least listen to you? I don't know how the VA system works.
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Title: Re: Can Use Your Vibes Post by Jackie on Dec 19th, 2009 at 7:55am
Vibes and positive thoughts on the way....hope you all get this under control soon.
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Title: Re: Can Use Your Vibes Post by Tim_w on Dec 19th, 2009 at 9:05am
Praying for you Bro!!
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Title: Re: Can Use Your Vibes Post by George on Dec 19th, 2009 at 9:11am
Wish that I had more to offer than words of support. They seem so useless at times like this. :'(
Nevertheless, I hope that things improve soon. Sending all the best wishes that I can. George |
Title: Re: Can Use Your Vibes Post by Iddy on Dec 19th, 2009 at 9:28am
All I got coming to you.....Damn this sucks!!!!!!!!
Iddy |
Title: Re: Can Use Your Vibes Post by Grandma_Sweet_Boy on Dec 19th, 2009 at 9:55am
PF wishes on the way from Canada. Wish there was something more I could do.
Carol |
Title: Re: Can Use Your Vibes Post by M.R. on Dec 19th, 2009 at 10:31am
Been there, done that. Checked to see if you left some here, but no such luck. Sounds like you left it somewhere else, though. Sending prayers your way. I know, when it's bad, it's bad.
Mike |
Title: Re: Can Use Your Vibes Post by jon019 on Dec 19th, 2009 at 4:29pm
Chris and Kirk...thinking of you BOTH...the battle with the beast is bad enough....when it has to be with the system too...more than cruel....
Best, Jon |
Title: Re: Can Use Your Vibes Post by Mosaicwench on Dec 19th, 2009 at 5:42pm
Hold on Kirk. Hold on tight.
And you too, purpleydog - we're all here with you sending vibes and prayers. |
Title: Re: Can Use Your Vibes Post by Redd on Dec 19th, 2009 at 6:41pm
Something tells me that between wings and wheels, Kirk is going to be on the way to feeling better again real soon.
Love ya Both! |
Title: Re: Can Use Your Vibes Post by Marc on Dec 19th, 2009 at 7:20pm Redd wrote on Dec 19th, 2009 at 6:41pm:
Now that was clever-quick ;D Took me a sec....... |
Title: Re: Can Use Your Vibes Post by Callico on Dec 19th, 2009 at 7:28pm
Trying to find help for you through USMC. Unfortunately from out of state, but am trying to get advice on ways around an arrogant self-serving so and so who works for the VA because he couldn't make it in private practice. Kirk and our other vets deserve far better than this!
To say I'm PO'ed is an understatement! Praying. That's all else that I can do, but I have seen it do wonderful things. Jerry |
Title: Re: Can Use Your Vibes Post by Kirk on Dec 19th, 2009 at 7:37pm
Thank you all very much! Help is on the way. Remember that pain is just weakness leaving the body. Thats why we are all so much stronger than the idiots that we have to deal with.
[smiley=smokin.gif] |
Title: Re: Can Use Your Vibes Post by Jeannie on Dec 19th, 2009 at 7:43pm
I hope things are better today. Wish I could offer more than my prayers, but please know that you have them.
Jeannie |
Title: Re: Can Use Your Vibes Post by MJ on Dec 19th, 2009 at 7:55pm
"Remember that pain is just weakness leaving the body"
I like that. Walking the same path Kirk hang in there. |
Title: Re: Can Use Your Vibes Post by purpleydog on Dec 19th, 2009 at 8:04pm
I want to thank everyone who called, sent PM's, IM's and posted with support and words of wisdom, and drove to meet us. Someone found some pred we left at their house, and returned it today (thank goodness!!). It worked so far. Only 2 hits today, the last one was very small and short lived. What a difference that makes!! You all know what I mean. You all know exactly what the word RELIEF means to us.
I am continually blown away by the family here and the way we help each other. There is always someone there to help someone else who needs it. We are one big family, and you guys and gals are the best! Jerry, I lined up an appt at a different facility for Wed. I've heard good things about it. I'll let you know. Thanks so much. :) Hey Anchor Yankee, you are doing great at supporting. CH is indescribable. I tried explaining it to the nurse, and I just couldn't get her to understand. Unfortunately with the Veteran's Administration, it's not that easy to just switch docs, we had to go to another facility, and it had to be approved. Everything moves slow. I know there is another care package coming, and I want to say thanks again to everyone. It means so much. [smiley=hug.gif] |
Title: Re: Can Use Your Vibes Post by E-Double on Dec 22nd, 2009 at 6:46pm |
Title: Re: Can Use Your Vibes Post by Brew on Dec 27th, 2009 at 12:30pm
Kirk - How you doin', man?
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Title: Re: Can Use Your Vibes Post by Kirk on Jan 1st, 2010 at 11:50am Brew wrote on Dec 27th, 2009 at 12:30pm:
Getting there man. Thank you so much for all your kindness. Pred taper from the other clinic got him under some semblance of control. I get nailed in the small hours. O2 takes care of that. I have another Pred taper from my new Doc, just in case the bastard decides to escalate the attacks again. I have an appointment on the 7th to get new labs done, and I'll up my prevents officially then I think. Really want to see the new lab results. I'm chronic and this sucker hasn't changed his evil ways much since my last major heart surgeries in 05. This is the least active Winter that I have been through, and I'm stressed a bit over a new EV prototype design. Other than that...everything is pretty rock steady. Just can't see that as being enough to tip me over though. Sorry I haven't checked in sooner, but I really don't want to bitch about it too much. There are others worse off than me. I would also like to add something more informative to the body of info than, "take yer Pred taper, grab the O2 and get a grip, this too shall pass.". The lab work has got to tell something. Perhaps a change in Testosterone levels? We shall see. [smiley=smokin.gif] |
Title: Re: Can Use Your Vibes Post by Callico on Jan 1st, 2010 at 4:12pm
Kirk,
your response reminded me what I love about clusterheads so much. "but I don't want to bitch about it too much. There are others worse off than me." How many times do we hear that? None of us think we have it worse than others. Pretty good buch of people here. Jerry |
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