Kirk is getting slammed every 2 hours, with no end in sight.  >:(  He ran through 4 E tanks, and one M tank in two weeks. The O2 generators are barely enough (using 2 in tandem, gets about 14 LPM). O2 people from the VA aren't returning our phone calls.

The VA doctor will not get him a pred taper, saying only O2 and triptans are to be used for CH. I tried to straighten them out, requesting the pred. The nurse asked me how I know about it.  ::)  So, I asked her if the doc was going to have O2 delivered on Monday, since he's out of tanks (no), and I asked if the doctor was going to prescribe a triptan to be used with his heart condition. This doc is a TOTAL MORON. I explained to the nurse about CH, and asked her what the doc wants us to do. She offered a neuro consult.... after the first of the year.

I'm scrounging to see if I have enough pred laying around for a taper. Please keep him in your thoughts. This really sucks.

Praying for him now!  Wish I could get my O2 down to you.  Don't you just love government health care?

Jerry

Awww crap sis.....No wonder I haven't heard from you guys in a while.

Hmmmm I wonder if you left some of your pred here by mistake last time you came to visit?  Let me check, and I'll get back to you.

:)

Prayers going out to you and Kirk. It sucks when we have to self treat but at least we know what to do.

Paul

Chris - Check your PM's.

purpleydog wrote on Dec 18^th, 2009 at 5:33pm:

Kirk is getting slammed every 2 hours, with no end in sight.

damn.....thats horrible.  :'( [smiley=furious.gif]
check your PMs chris.

Hoping better for you very soon somehow, Kirk.

I'm sorry, I'm kind of new at this support thing.  I've never had it that bad.  I couldn't imagine.  I swear, I just couldn't imagine.  Is there any way you could see another doctor that would at least listen to you?  I don't know how the VA system works.

Vibes and positive thoughts on the way....hope you all get this under control soon.

Praying for you Bro!!

Wish that I had more to offer than words of support.   They seem so useless at times like this.  :'( 

Nevertheless, I hope that things improve soon.  Sending all the best wishes that I can.

George 

All I got coming to you.....Damn this sucks!!!!!!!!

Iddy

PF wishes on the way from Canada.  Wish there was something more I could do.

Carol

    Been there, done that. Checked to see if you left some here, but no such luck. Sounds like you left it somewhere else, though. Sending prayers your way. I know, when it's bad, it's bad.

Mike

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Vibes and more for you!

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Charlie

Chris and Kirk...thinking of you BOTH...the battle with the beast is bad enough....when it has to be with the system too...more than cruel....

Best,

Jon

Hold on Kirk.  Hold on tight.

And you too, purpleydog - we're all here with you sending vibes and prayers.

Something tells me that between wings and wheels, Kirk is going to be on the way to feeling better again real soon.

Love ya Both!

Redd wrote on Dec 19^th, 2009 at 6:41pm:

Something tells me that between wings and wheels, Kirk is going to be on the way to feeling better again real soon. Love ya Both!

Now that was clever-quick  ;D Took me a sec.......

Trying to find help for you through USMC.  Unfortunately from out of state, but am trying to get advice on ways around an arrogant self-serving so and so who works for the VA because he couldn't make it in private practice.  Kirk and our other vets deserve far better than this!

To say I'm PO'ed is an understatement!

Praying.  That's all else that I can do, but I have seen it do wonderful things.

Jerry

   Thank you all very much! Help is on the way. Remember that pain is just weakness leaving the body. Thats why we are all so much stronger than the idiots that we have to deal with.
[smiley=smokin.gif]

I hope things are better today.  Wish I could offer more than my prayers, but please know that you have them.

Jeannie

"Remember that pain is just weakness leaving the body"

I like that.

Walking the same path Kirk hang in there.

I want to thank everyone who called, sent PM's, IM's and posted with support and words of wisdom, and drove to meet us. Someone found some pred we left at their house, and returned it today (thank goodness!!). It worked so far. Only 2 hits today, the last one was very small and short lived. What a difference that makes!! You all know what I mean. You all know exactly what the word RELIEF means to us.

I am continually blown away by the family here and the way we help each other. There is always someone there to help someone else who needs it. We are one big family, and you guys and gals are the best!

Jerry, I lined up an appt at a different facility for Wed. I've heard good things about it. I'll let you know. Thanks so much. :)

Hey Anchor Yankee, you are doing great at supporting. CH is indescribable. I tried explaining it to the nurse, and I just couldn't get her to understand. Unfortunately with the Veteran's Administration, it's not that easy to just switch docs, we had to go to another facility, and it had to be approved. Everything moves slow.

I know there is another care package coming, and I want to say thanks again to everyone. It means so much.   [smiley=hug.gif]

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Kirk - How you doin', man?

Brew wrote on Dec 27^th, 2009 at 12:30pm:

Kirk - How you doin', man?

   Getting there man. Thank you so much for all your kindness. Pred taper from the other clinic got him under some semblance of control. I get nailed in the small hours. O2 takes care of that. I have another Pred taper from my new Doc, just in case the bastard decides to escalate the attacks again. I have an appointment on the 7th to get new labs done, and I'll up my prevents officially then I think. Really want to see the new lab results. I'm chronic and this sucker hasn't changed his evil ways much since my last major heart surgeries in 05. This is the least active Winter that I have been through, and I'm stressed a bit over a new EV prototype design. Other than that...everything is pretty rock steady. Just can't see that as being enough to tip me over though.
   Sorry I haven't checked in sooner, but I really don't want to bitch about it too much. There are others worse off than me. I would also like to add something more informative to the body of info than, "take yer Pred taper, grab the O2 and get a grip, this too shall pass.". The lab work has got to tell something. Perhaps a change in Testosterone levels? We shall see.
[smiley=smokin.gif]

Kirk,

your response reminded me what I love about clusterheads so much.  "but I don't want to bitch about it too much.  There are others worse off than me."  How many times do we hear that?  None of us think we have it worse than others.  Pretty good buch of people here.

Jerry