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Message started by Judicotswolds on Dec 21st, 2009 at 10:19am

Title: Importance of internet
Post by Judicotswolds on Dec 21st, 2009 at 10:19am
Hello

Just come back from 3 appointments at hospital.  2 years ago in awful pain with head and in atrial fibrilation admitted to hospital with suspected mini stroke.  Loads of scans, loads of head pain and was not well for months (head pain etc.,) for months.  Kept researching internet and when eyelid drooped really heavy weight pain again some months later again admitted to hospital - suspected mini stroke. This time saw neurologist who noticed droopy eyelid etc., and I asked if this could be cluster headaches - light bulb went on - yes and droopy eye dilated pupil he diagnosed as third nerve palsy ( a little stroke in third nerve).  Pushed and pushed 'cos I also suspected thyroid problems, GP relented and did full tests - guess what overactive thyroid - hence heart going beserk.  Finally cardiologist decided not a stroke but my thyroid, Today saw eye specialist for first time - guess what - not third nerve palsy - myasthenia gravis caused by thyroid disease.  The sword of Damoclese has been lifted - due to internet research.  My recent success with GP has been due to info on this site and I am sure the lessening of the pain has had to do with many tips on this site (even if most are sceptical about my little foray into acupuncture!).  So keep researching - our health is in our hands.

Happy Christmas all

Judi

Title: Re: Importance of internet
Post by lorac on Dec 21st, 2009 at 10:59am
Great that you got some kind of diagnosis!
   Have a Very Merry Christmas.

Title: Re: Importance of internet
Post by Callico on Dec 21st, 2009 at 5:31pm
Good for you for keeping up with your own health.  If you wait for the Dr to make you well you will remain sick.  There is just to much out there for them to know it all.

Have a wonderful Christmas.  And here's to a PF New Year!

Jerry

Title: Re: Importance of internet
Post by Bob Greenwood on Dec 22nd, 2009 at 6:12am
Sometimes the internet can be VERY helpful and I'm glad it helped you, but more times than not especially with medical problems you'll end up with more questions than answers.
But like I said I am VERY glad it helped you.
Have a Merry Christmas and a healthy new year.

Title: Re: Importance of internet
Post by sandie99 on Dec 22nd, 2009 at 7:16am
Judi,

I'm glad to hear that. :)

For me, internet and this site has been a lifesaver. None of my neuros would have mentioned energy drinks as a treatment for ch, they would have preferred that I keep on eating meds which don't work and give plenty of side effects. Thanks ch.com, I've found lots of useful tips and tried Red Bull, which changed how I deal with ch.

And that changed everything for the better for me.

So yeah, internet can be good, too. :)

Sanna

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