New CH.com Forum - Print Page

New CH.com Forum
http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl Cluster Headache Help and Support >> Getting to Know Ya >> new here http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1261936438 Message started by Shane-O- on Dec 27^th, 2009 at 12:53pm

Title: new here
Post by Shane-O- on Dec 27^th, 2009 at 12:53pm

Hi there.....glad to have found this forum....and hopefully may find something here to help me with my CH as I am now in a current cycle and the doctors i have seen cannot seem to figure it out........

Title: Re: new here
Post by Kevin_M on Dec 27^th, 2009 at 3:44pm

Has clusters been determined and what have they prescribed or done? Any referral to a neuro or scans?

Title: Re: new here
Post by bejeeber on Dec 27^th, 2009 at 9:52pm

Hey Shane-O,

I bet there's a good chance that you'll find valuable info here to help - significantly even - with your CH.

That has certainly been my experience, and same for a lot of others.

Glad ya came to the right place. :)

What treatments have you tried so far?

Title: Re: new here
Post by coach_bill on Dec 27^th, 2009 at 11:34pm

Hello and Welcome,

Let me be the 1st to tell you. Get your doctor tuned into clusters, and start by telling him to give you OXYGEN 15 Lpm.

Coach Bill

Title: Re: new here
Post by Guiseppi on Dec 28^th, 2009 at 3:21am

Welcome to the board, when you get a chance, give us a little info. What meds have you tried, what has and hasn't worked, when were you diagnosed? The strength of this board is the combined experience of 10,000 CH sufferers and their supporters. We don't do diagnosis or prescribe meds, but we can probably point you in a good direction to alleviate some pain.

So pull up a seat, tell us a little about yourself! ;)

Joe

Title: Re: new here
Post by saxman on Dec 29^th, 2009 at 7:12am

welcome from another new to the site CHer,
First thing I do when a new cycle starts, is get on a prednisone taper!!
I started my latest about 2 weeks ago, and instead of 6-8 bad hits a day/ nite, there has been only a few slip through.
BUT!!! I ended up taking too much of it and not tapering as I shouldhave... Much scolding from everyone on the site and of course they are right, I'm in line with it now... so if you decice to do the pred, taper as prescribed... the more experienced folks will tell you about many other tratments... You'll see shortly that there;s light at the end of this tunnel
Good luck