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http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl Cluster Headache Help and Support >> Cluster Headache Specific >> new to this site glad i found u! http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1261954190 Message started by anthony g on Dec 27^th, 2009 at 5:49pm

Title: new to this site glad i found u!
Post by anthony g on Dec 27^th, 2009 at 5:49pm

hello! I just joined this site and am happy i have people who could relate to cluster headaches! i am in my second week of my cluster period! I am on pretnisone and verapamil! we will see.... i take sumatritan and 500 mg of naproxen at the beginning stages of an episode and if caught in time usually helps the severity and the length of the episode! really sucks to have this condition!

Title: Re: new to this site glad i found u!
Post by sch on Dec 27^th, 2009 at 6:48pm

It makes me sad you had to find this site. I too am a newbie and have just got over my first (and last I hope) four weeks of 2-3 times/night of attacks. This site is a good site to learn and share. From what I have seen on this site and from my own experience I would have one other abortive item- that being 02 at 10-12 lpm thru a non rebreather mask. The triptan drugs worked for me also but were rather expensive and a bit dangerous. I got the 02 only during the last week of my cycle but it aborted or lessened the duration of an attack if done at a high enough flow rate and thru a non rebreather. Good Luck

Title: Re: new to this site glad i found u!
Post by FramCire on Dec 27^th, 2009 at 8:57pm

Welcome aboard both of you!

Grab some oars and start paddling!!!

Ask as many questions as you have. Everyone has their own methods to fight this beast. Remember to share what works for you and learn learn learn!!!!

I am glad you are here but sorry you had a reason to find us!

Title: Re: new to this site glad i found u!
Post by coach_bill on Dec 27^th, 2009 at 11:29pm

Hey Ant,

Think of it like this. We have finally found YOU!!! You need to study up on the oxygen. It will change the ways you deal with Clusters.

Welcome, Coach Bill

Title: Re: new to this site glad i found u!
Post by Guiseppi on Dec 28^th, 2009 at 1:29am

Welcome to the board! Do read the oxygen info on the left. 31 year sufferer here and i can abort in less then 10 minutes using oxygen. A real life saver.

Joe

Title: Re: new to this site glad i found u!
Post by bejeeber on Dec 28^th, 2009 at 10:33pm

anthony g wrote on Dec 27^th, 2009 at 5:49pm:

i take sumatritan and 500 mg of naproxen at the beginning stages of an episode and if caught in time usually helps the severity and the length of the episode!

Hey Anthony,

Is that the pill form of imitrex (sumatriptan) you're taking? Asking because doctors routinely and mistakenly prescribe pill form, which is more for migraine, and is much less effective for CH than injectible or even inhaler.

Title: Re: new to this site glad i found u!
Post by seaworthy on Dec 29^th, 2009 at 6:26am

Quote:

Asking because doctors routinely and mistakenly prescribe pill form,

That is not always a mistake and is effective and desirable for many CH sufferers. The pill form can be just as effective. The differance is in the delivery and time it takes to abort.