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http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl Daily Chat >> General Posts >> Article in the L.A Times on C.H. http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1262105156 Message started by Lenny on Dec 29^th, 2009 at 11:45am

Title: Article in the L.A Times on C.H.
Post by Lenny on Dec 29^th, 2009 at 11:45am

I for one am usually very happy when there is a mention of our condition,but...You can be the judge after reading the article.....I have the link in my regular e-mail and i have no idea of how to post it on here.....If one of you that knows how to post the link please give me your e-mail and i will forward it to you.....The reason i am a little upset over this,it was sent to me from my brother who does not understand our condition (all it is is a headache) its probably been 15-20 years since i have discussed c.h. with him or anyone else (people just don't understand) and i have been hearing from him all this time that if you quit smoking they will go away.....And this is what this fucked up paper printed up.....Lenny

Title: Re: Article in the L.A Times on C.H.
Post by Guiseppi on Dec 29^th, 2009 at 11:47am

Everytime I hear that it makes me wanna start smoking so I can quit and never get CH again! ;D

Joe

Title: Re: Article in the L.A Times on C.H.
Post by Lenny on Dec 29^th, 2009 at 11:55am

Guiseppi wrote on Dec 29^th, 2009 at 11:47am:

Everytime I hear that it makes me wanna start smoking so I can quit and never get CH again! ;D

Joe

;D ;D ;D ;D ;D.....You made my day.....BTW,sorry about the cussing.....Just a little upset

Title: Re: Article in the L.A Times on C.H.
Post by deltadarlin on Dec 29^th, 2009 at 12:28pm

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Here ya go Lenny.

And I'll copy and paste the first comment, one that I find utterly ridiculous and biased.
The typical cluster patient is a male smoker with heavy caffeine intake. Smoking speeds up caffeine metabolism, which may be the mechanism whereby smoking increases susceptibility to cluster headaches. Heavy caffeine intake induces extreme nervous adaptation to caffeine, which primes the patient for severe withdrawal symptoms, which often include severe headache, when the patient goes too long without caffeine. By speeding up the rate at which the liver dismantles caffeine molecules, smoking may induce the rapid onset of severe caffeine withdrawal headache. Such headaches may constitute what are called cluster headaches. Smoking increases the rate of caffeine catabolism (destructive metabolism) by inducing an hepatic (liver) enzyme called phenacetin-O-dealkylase, which "3-demethylates" caffeine; that is, the enzyme pulls the methyl group in the number 3 position off the caffeine molecule.

barryspencer (12/28/2009, 7:46 PM )

Title: Re: Article in the L.A Times on C.H.
Post by Callico on Dec 29^th, 2009 at 4:10pm

I call BS! I've never smoked once in my life, but I've had them for 32 years (diagnosed).

Jerry

Title: Re: Article in the L.A Times on C.H.
Post by Jeannie on Dec 29^th, 2009 at 4:25pm

I had CH as a child. I did not smoke at age ten. I did start smoking as a teen but quit in my very early twenties. Guess what???? I still have CH. OH, guess what else???? I'm a GIRL!!!!!!!! A Non-smoker Girl with CH!!!!!!! Sucks, really.

Jeannie

Title: Re: Article in the L.A Times on C.H.
Post by Racer1_NC on Dec 29^th, 2009 at 4:31pm

My Beast didn't get that memo about leaving when I stopped smoking. He's still here...lurking in the shadows.

Everyone has an agenda....too bad it isn't the truth.

Title: Re: Article in the L.A Times on C.H.
Post by deltadarlin on Dec 29^th, 2009 at 7:28pm

I actually joined and wrote out a reply, but I guess they either didn't approve of what I wrote or it got eaten by the internet monster.

Title: Re: Article in the L.A Times on C.H.
Post by Jennifer on Dec 29^th, 2009 at 8:31pm

what a 'tard. >:(

Title: Re: Article in the L.A Times on C.H.
Post by Charlie on Dec 29^th, 2009 at 9:04pm

Read it this afternoon and Steve Allen's book: "Dumbth," came to mind.

Charlie

Title: Re: Article in the L.A Times on C.H.
Post by Karla on Dec 29^th, 2009 at 9:43pm

I dont smoke and I drink cafeine free coke and I am a girl. Go figure! I wonder what my illness is called then? ch. wow. I guess several different neurologists and drs didn't have my diagnosis correct and this dumb jerk knows it all. Irresponsible journalism.

Title: Re: Article in the L.A Times on C.H.
Post by Skyhawk5 on Dec 29^th, 2009 at 9:43pm

Unfortunately the idiots of this world find ways to show their ingnorance. Why is there no name of the person quoted at the start of the article?? Are they afraid??

I say a call to arms (so to speak) to get the publisher to retract these lies. We all know that smoking is not a good thing, but if it were the cause of CH, many of us would be cured that aren't.

The persons resonsible for this article should be guilty of a crime against us.

Don

Title: Re: Article in the L.A Times on C.H.
Post by Callico on Dec 29^th, 2009 at 11:28pm

I was just now able to pull it up. Couldn't do it at work. The person responsible for the extract Carolyn put up was someone responding to the article, and was very obviously misinformed and ignorent. Those who wrote the article were not much better, but not to the same point as Barry whoever.

They do need to be educated though if they are going to pass out medical information. Malpractice?

Jerry

Title: Re: Article in the L.A Times on C.H.
Post by BarbaraD on Dec 30^th, 2009 at 5:02am

Wellll!!!!! Barry Spencer seems to be an authority on everything... Bless his heart!! He's got it all figured out hasn't he?

Ok, my BP is up for the day!! Think I'll call my neuro and tell him he just doesn't know what the hell he's been talking about all these years... He should consult Barry....

BD :-*

Title: Re: Article in the L.A Times on C.H.
Post by Bob P on Dec 30^th, 2009 at 6:22am

Quote:

it was sent to me from my brother

Holy crap! There's two of you! I'm not sure the world is ready for this!

Title: Re: Article in the L.A Times on C.H.
Post by Kevin_M on Dec 30^th, 2009 at 7:28am

Quote:

... the rapid onset of severe caffeine withdrawal headache. Such headaches may constitute what are called cluster headaches.

Also knows how we get cooties from girls.

Title: Re: Article in the L.A Times on C.H.
Post by sandie99 on Dec 30^th, 2009 at 9:00am

I've never smoked in my life, but stil ch managed to find my head. Weird. ::)

Sanna

Title: Re: Article in the L.A Times on C.H.
Post by dougW on Dec 30^th, 2009 at 9:41am

About Barry and his migraine - caffeine stuff

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Doug

Title: Re: Article in the L.A Times on C.H.
Post by George on Dec 30^th, 2009 at 11:02am

dougW wrote on Dec 30^th, 2009 at 9:41am:

About Barry and his migraine - caffeine stuff

START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

END PRINTPAGE

Doug

Lots of agendas out there.

Apparently, we got caught up in Barry Spencer's (whoever he might be) idee fixe. ::)

Title: Re: Article in the L.A Times on C.H.
Post by Lenny on Dec 30^th, 2009 at 3:14pm

deltadarlin wrote on Dec 29^th, 2009 at 7:28pm:

I actually joined and wrote out a reply, but I guess they either didn't approve of what I wrote or it got eaten by the internet monster.

DITTO

Title: Re: Article in the L.A Times on C.H.
Post by Lenny on Dec 30^th, 2009 at 3:18pm

Bob P wrote on Dec 30^th, 2009 at 6:22am:

Quote:

it was sent to me from my brother

Holy crap! There's two of you! I'm not sure the world is ready for this!

Multiply that by 2 and = 4...( it is kinda scary,aint it ;D ;D ;D ;D ;D)

Title: Re: Article in the L.A Times on C.H.
Post by midwestbeth on Dec 30^th, 2009 at 3:28pm

Looks like Gena gave them a good scolding in the comment section. ;D

They say there is no bad publicity. Maybe someone reading that extremely inaccurate article will find their way here and get the real scoop on this condition and the latest treatments available.

Title: Re: Article in the L.A Times on C.H.
Post by Kevin_M on Dec 30^th, 2009 at 4:54pm

The title of the article:

Smoking linked to cluster headaches

By inserting the word "may", they are "linked" to make sentences. ;)

Quote:

... smoking may induce the rapid onset of severe caffeine withdrawal headache. Such headaches may constitute what are called cluster headaches.

Also though, from his site:

Quote:

The long delay between exposure to caffeine and onset of headache obscures the causal relationship.

Headache doesn't necessarily follow caffeine intake, an inconsistency that further obscures the connection. If a dose of caffeine was reliably followed by a headache, the association between the two would stand out more clearly. Exposure to caffeine, however, isn't sufficient to cause headache; a caffeine withdrawal headache also requires a delay in caffeine intake.

Clusters were clearly stated to be a "rapid onset of severe caffeine withdrawal headache" which contradicts his requirement for a caffeine withdrawal headache. Adding the use of "may" a couple times is his "smoking" gun to reverse engineer the missing "link" for clusters, conceiving the creature: "Smoking linked to cluster headaches"

Bullwinkle used say to Rocky, "Watch me pull a rabbit out of my hat. Presto!" but it would be a lion or rhino, then responding, "I think it's time to get a new hat." This guy is trying a new hat and pulled a rabbit out, but it's invisible.