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http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl Cluster Headache Help and Support >> Getting to Know Ya >> all day every day pain http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1262202601 Message started by mightymeated on Dec 30^th, 2009 at 2:50pm

Title: all day every day pain
Post by mightymeated on Dec 30^th, 2009 at 2:50pm

hi I'm new to this board but not to the pain. i just wanted to know a few things. first thing is. have i got ch or could it be paroxysmal hemicrania. im told there very similar.. but if it is ch can the pain of the build up to a peak last all day..as when I'm not having a peak attack the dull pain and irritation is there all day and all night....can anyone advise thanks ;D

Title: Re: all day every day pain
Post by Jeannie on Dec 30^th, 2009 at 4:37pm

When I am in cycle, I have constant shadows. A shadow is a low level pain that is much like a Cluster Headache that doesn't ramp up to the excruciating pain. It is a pressure and tender feeling usually in my nose, eye and cheek.

You may want to take the Cluster Quiz at the left of your screen to help you determine if your symptoms fit CH or not.

Jeannie

Title: Re: all day every day pain
Post by mightymeated on Dec 30^th, 2009 at 4:59pm

thanks for the info Jeannie. i did do the quiz before and its all pointing to ch.dam it..i haven't had it confirmed by a doc yet. but is there any way that it can be 100%confirmed by any scans. i have suffered with this for 14 years but only found out what they were a few days ago so I'm not sure were my next stop is. who do i go to and what do they do...

Title: Re: all day every day pain
Post by Jeannie on Dec 30^th, 2009 at 5:09pm

MRI and scans usually do not show anything for CH suffers. A headache specialist is your best bet at getting a diagnosis and proper treatment. You will likely have to research and help educate your Dr. This is a GREAT place to start. There is a LOT of info here. Read, read, read.

The first thing you want to do is buy some energy drinks. Red Bull or anything with caffeine and taurine will do. If you drink it as fast as you can, at the very first sign of an attack, you may be able to shorten the duration and severity of the attack. It helps me a lot.

Keeping track of your headaches will also help your Dr. Be specific and very detailed. How often do you get them? How fast do they get severe? How long do they last?

I hope this helps.

Jeannie

Title: Re: all day every day pain
Post by mightymeated on Dec 30^th, 2009 at 5:21pm

thanks for the tip. i will try the red bull. i have been keeping track of them for the last 3 nights most recorded was 8 attacks in one night but with shadow continuously..i will show all this to the doc thanks alot very helpful

Title: Re: all day every day pain
Post by Guiseppi on Dec 31^st, 2009 at 9:08am

I use Jeannie's tip for my shadows too. Red Bull on the rocks!!! I don't chug it for the shadows, just slow and easy drink a glass and it eases the shadows. For an actual attack it's CHUG the Red Bull and suck the 02!

Joe