New CH.com Forum
http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl
Cluster Headache Help and Support >> Getting to Know Ya >> Newbie looking for information
http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1262359414

Message started by Terri on Jan 1st, 2010 at 10:23am

Title: Newbie looking for information
Post by Terri on Jan 1st, 2010 at 10:23am
I just found this site and also just found out this is what I am suffering from. I guess I am a little scared to think I may have to live this way from now on not knowing when these things will hit, but I was looking for a place to get information and possibly some relief so hello everyone and Happy New Year.

Title: Re: Newbie looking for information
Post by Dallas Denny 62 on Jan 1st, 2010 at 11:05am
Welcome to the board but sorry you had the need to find us.  Sounds like you have not been officially diagnosed with CH?  Very important to rule out other things more sinister than clusters!!   Read, read, read to arm yourself for information for that first doc visit and by all means ask questions.  You have hundreds of years of CH experience at your disposal now!!

Happy New Year and wishin you some PFDAN's ahead.

Dallas Denny

Title: Re: Newbie looking for information
Post by Bob_Johnson on Jan 1st, 2010 at 11:44am
We will be glad to share our experience with you--the first, most important point being--get with a good headache doctor!

Both our collective experience and medical research shows that most neurologists have littled effective knowledge/skill in treating headache and the picture is worse with other specialities. There are so many dozen of medical condtions which can present as headaches, that the first, critical, step is setting a good diagnosis.

I would strongly encourage you to avoid the trap of trying to treat the pain without knowing the cause. It can draw you away from threating the causal issue--with all sorts of implications of neglecting the real issue.

LOCATING HEADACHE SPECIALIST

1. Search the OUCH site (button on left) for a list of recommended M.D.s.

2. Yellow Pages phone book: look for "Headache Clinics" in the M.D. section and look under "neurologist" where some docs will list speciality areas of practice.

3.  Call your hospital/medical center. They often have an office to assist in finding a physician. You may have to ask for the social worker/patient advocate.

4. START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or RegisterEND PRINTPAGE; On-line screen to find a physician.

5. START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or RegisterEND PRINTPAGE Look for "Physician Finder" search box.  Call 1-800-643-5552; they will send a list of M.D.s for your state.I suggest using this source for several reasons: first, we have read several messages from people who, even seeing neurologists, are unhappy with the quality of care and ATTITUDES they have encountered; second, the clinical director of the Jefferson (Philadelphia) Headache Clinic said, in late 1999, that upwards of 40%+ of U.S. doctors have poor training in treating headache and/or hold attitudes about headache ("hysterical female disorder") which block them from sympathetic and effective work with the patient; third, it's necessary to find a doctor who has experience, skill, and a set of attitudes which give hope of success. This is the best method I know of to find such a physician.





Title: Re: Newbie looking for information
Post by Guiseppi on Jan 1st, 2010 at 9:08pm
Welcome to the nut house! AS you've already read a couple of times, we can't stress enough the importance of an accurate diagnosis. There are hundreds of headache types, some that overlap each other, meds for one can be worthless or even harmful for another.

Do tell us a bit about yourself, your diagnosis, what you have tried that has and hasn't worked. We'd love to help you hurt less. Good luck on the journey.

Joe

Title: Re: Newbie looking for information
Post by bejeeber on Jan 2nd, 2010 at 2:21am

Terri wrote on Jan 1st, 2010 at 10:23am:
a little scared to think I may have to live this way from now on not knowing when these things will hit.


Yeah well who wouldn't be! But don't be too much more than a little scared because ya play your cards right, do your research, and with just a lil' luck you'll get control over this CH beast (assuming thats what you have).

You came to the right place.  :)

Title: Re: Newbie looking for information
Post by saxman on Jan 5th, 2010 at 2:31am
welcome, from another semi newbie to the site.

I have had CH for many many years, finding the site has literally changed my life!!

There are treatments, differnt ones work for different folks, find yours dear!!

Title: Re: Newbie looking for information
Post by Iddy on Jan 5th, 2010 at 8:19am
The anticipation and "dread" of when the next CH will hit compounds an already trying situation.

Educating yourself and finding what is nessessary for your individual relief will help dispell the added anxiety.

Dread and anticipation are much like guilt, as someone once told me was "unpaid work"  :D

All the best on your new and important quest.

Iddy  :)

New CH.com Forum » Powered by YaBB 2.4!
YaBB © 2000-2009. All Rights Reserved.