Don't think I've ever met another clusterhead!

If any of you live in Portland Or, want to have lunch? or a cup of coffee?

There will be a bunch of us there later this year when the ClusterBuster annual meeting rolls into Portland.
I don't have the dates yet confirmed, real soon thought.

You'll see it posted when we have it figured out.

Doug

i recently moved away from there....     thats too bad....   i would have enjoyed meeting another..  well..   hurt haver.    ohh and go to "ole ole" for lunch...   they make a plus sized burrito that wont dis-appoint.
[22nd & E. Burnside]

cheers and go blazers

used to live 2 blocks from ole ole...

Cluster busters meeting in Portland? I'll be there!!

hey, you read my mind.  i too was wondering how many of us are around portland?  i will look forward to the annual meeting and maybe meet up with the saxman sometime soon.  anyone else?  --shaggy

I live just south of pdx in McMinnville. I'm in Portland a few times a month.  I Would enjoy talking to someone else who suffers  from this Beast.

Tux

ok Tuxguy, we'll all hook up!

I am a Portland residant! Well, techniquelly, on an outskirt but just 20 minutes from downtown Portland. I just recentley discoverd that I HAVE Cluster Headaches. As a lifelong sufferer of migraines, I thought they had blown out of control reaching a level of pain I'd never known. Superpowerd demonic like attacks! I began skipping sleep to avoid them a few weeks back, and was feeling TRUELY desperate when I stumbled onto my diagnosis..  I printed all the info on cluster headaches I could find, took it to my doctor, and said "This is it!! Right down to the fact that during an attack, suicide is the only sure way I can come up with to escape my situation." My doctor calmley nodded, aggreed and went on as if nothing had changed. Or, to me, it seemed as if he thought cluster headache/migraine they are one in the same. And while I know a big part of the key is STILL to find a preventative that might help, THESE ARE NOT migraines, and I would like to explore & talk about other things, like oxygen. Support??? In the form of a living breathing human being?? I AM STARVING for it!!! I have a great family, and Thank God, a patient husband, anyone who has experianced what I am knows, this could test the MOST patient of men(or women) and to try & understand the SEVERITY of an episode when all you can do is watch it happen to your loved one. How could someone understand?  I tried to start a migraine support group for local support. My hope was to find others like me that I could vent to & vice versa, free my husband a little from my constant wondering and asking questions outloud. Though I was never able to get it off the ground. To find my diagnosis, and then a website like this one and the support in it knowing I am not THE ONLY ONE? Then someone looking to talk in Portland?? This week feels like a dream! I have been living this, thinking I was some fluke or freak of nature to have "migraines" that NO ONE understood for more than 2 years. Soooo, as you can see I'm practically bursting to talk with a fellow sufferer, over coffee, or whatever.. Youll have to excuse the enthusiasm, this is all just very new to me. (the fact that there are others) That, and the fact that I am in day 5 of no attack makes me eager to talk, meet others, and offer what support I can in exchange for the same. I posted in the guestbook as well, for more info on me, look there.
Be Well~ Andrea S