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Message started by LadyLuv on Jan 6th, 2010 at 10:41am

Title: CNN REPORT ON CH ??
Post by LadyLuv on Jan 6th, 2010 at 10:41am
I did not see it, but I just received a call from a friend telling me that CNN did a report on Cluster Headaches this morning.... 

The item below is all I could find.. but it appears to be from last year... I will keep looking..

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Peace & Blessings
LadyLuv

Title: Re: CNN REPORT ON CH ??
Post by LadyLuv on Jan 6th, 2010 at 12:26pm
I emailed a friend @ CNN and she sent me the transcript below... Lisa may be able to help us get correct info and etc.. out regarding CH...

-----Original Message-----
From: Ruthie AW Harper [mailto:rharper@sbgnet.com]
Sent: Wednesday, January 06, 2010 11:32 AM
To: Lisa Jansen <"<Lesa.Jansen"@turner.com>>
Subject: Need CNN Medical News...

Good Morning Lil' Friend...

I received a call that CNN ran a story this morning on "Cluster Headaches" (which as you know, I suffer with). I have been unable to find any thing recent; how can I locate this story if it did run?
I would also like a transcrip.. Love to Joe & the Girls..

Luv & Hugs
Your Friend... Ruthie



>>> WELL, THESE ARE HEADACHES YOU CAN SET BY YOUR WATCH. SO PAINFUL, SOME WOMEN COMPARE THEM TO CHILDBIRTH. WE TELL YOU ABOUT SOME RELIEF YOU CAN FIND. 

10:23:34  >>> CLUSTER HEADACHES. THEY'RE NOT YOUR RUN-OF-THE-MILL HEADACHES, BUT ONES MARKED BY EXCRUCIATING PAIN NEAR THE EYE OR TEMPLE. ELIZABETH COHEN IS JOINING US TO TALK MORE ABOUT WHAT TRIGGERS THEM AND OBVIOUSLY THE LATEST TREATMENTS, BECAUSE THIS IS THE GOOD NEWS. SO WHAT
BRINGS A CLUSTER HEADACHE ON IN THE FIRST PLACE? >> YOU KNOW, THEY DON'T ACTUALLY KNOW WHAT THE CAUSE IS BUT WHEN THEY LOOK AT WHAT TRIGGERS ARE, THEY LOOK AT PEOPLE WITH CLUSTER HEADACHES AND WHAT THEY MIGHT HAVE BEEN DOING JUST BEFORE THEY GOT THEM. THEY HAVE COME UP WITH A LIST OF THINGS THAT TRIGGER THESE HEADACHES. FOR EXAMPLE, SMOKING. THAT'S AN EASY ONE TO STOP DOING. ALCOHOL CONSUMPTION, HIGH ALTITUDES AND AN IRREGULAR SLEEP SCHEDULE. ALL OF THOSE THINGS SEEM TO TRIGGER CLUSTER HEADACHES. I
DO ALSO WANT TO ADD THAT YOU CAN GET THEM WITHOUT HAVING DONE ANY OF THESE THINGS. I'VE NEVER HAD ONE BUT I'VE HEARD THEY'RE EXCRUCIATING. ONE DOCTOR IN THE '30s CALLED THEM SUICIDE HEADACHES BECAUSE HE WAS WORRIED HIS PATIENTS WOULD COMMIT SUICIDE BECAUSE THE PAIN WAS SO BAD.
>> >> IT SOUNDS A LITTLE BIT LIKE MIGRAINES, JUST IN THE -- YOU ALWAYS TALK ABOUT THE TRIGGERS AND TRYING TO FIGURE OUT WHAT CAUSES THEM FROM ONE PERSON TO THE NEXT. BUT WHAT'S THE LATEST NOW ON TREATING CLUSTER HEADACHES? >> THIS IS SO INTERESTING. THERE'S A STUDY IN THE JOURNAL OF THE AMERICAN MEDICAL ASSOCIATION THAT CAME OUT RECENTLY THAT SAID, YOU KNOW WHAT, INHALING PURE OXYGEN SEEMS TO HELP. RIGHT WHEN YOU FEEL THAT HEADACHE COMING ON, A LOT OF PEOPLE KNOW WHEN IT'S GOING TO HAPPEN BECAUSE THEY TEND TO HAPPEN AT THE SAME TIME EVERY DAY, INHALE PURE
OXYGEN AND IT WORKED FOR MOST OF THE PEOPLE WHO TRIED IT. >> SO JUST TAKE A -- DO YOU HAVE TO GET YOUR OWN OXYGEN TANK IN ORDER TO DO THAT? 
  10:25:05  >> YOU HAVE TO GO TO YOUR DOCTOR AND HE OR SHE WILL GET YOU SET UP. THERE ARE PLACES THAT YOU CAN BUY WHAT SAYS -- >> OXYGEN BARS OR WHATEVER. >> YOU DON'T WANT TO DO THAT. YOU WANT TO GO TO YOUR DOCTOR. THERE ARE SOME PEOPLE WHO SHOULD NOT BE DOING THIS TREATMENT AND YOU WANT YOUR DOCTOR TO SORT OF SET YOU UP WITH THE WAY TO DO THIS. >> ALL RIGHT, VERY GOOD. ELIZABETH COHEN, I
KNOW YOU'LL CONTINUE TO WATCH THAT ONE, THANKS SO MUCH. APPRECIATE IT.
>>> >>> 

Title: Re: CNN REPORT ON CH ??
Post by catlind on Jan 6th, 2010 at 1:15pm
Now that is waaaaay kewl!

Title: Re: CNN REPORT ON CH ??
Post by Bob P on Jan 7th, 2010 at 6:38am
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Title: Re: CNN REPORT ON CH ??
Post by Kevin_M on Jan 7th, 2010 at 9:33am
It's always great to have television mention clusters and have them realized for the great pain they cause, which helps others understand the difficultly coping that can be experienced.  She mentions they are excruciating, helping those who do not have support in their lives.

But it also shows from the transcript we have homework to do for our own cause.


Quote:
COLLINS: Cluster headaches. CNN's senior medical correspondent Elizabeth Cohen is here now joining us to talk more about what triggers them and obviously the latest treatments, because this is the good news. So what brings a cluster headache on in the first place?

ELIZABETH COHEN, CNN SENIOR MEDICAL CORRESPONDENT: You know, they don't actually know what the cause is but when they look at what some triggers are, they look at people with cluster headaches and what they might have been doing just before they got them. They have come up with a list of things that seem to trigger these headaches.

For example, smoking. That's an easy one to stop doing. You shouldn't be smoking anyhow.

COLLINS: Yes.

COHEN: Alcohol consumption, high altitudes and an irregular sleep schedule. All of those things seem to trigger cluster headaches. But I do also want to add that you can get them without having done any of these things.

COLLINS: All right, very good. Elizabeth Cohen, I know you'll continue to watch that one, thanks so much. Appreciate it.


The interest seemed to be on triggers first, which took a good portion of the talk.  She mentioned some saying they all trigger, but it was also good to hear her also add clusters do happen without these triggers.  Then oxygen being the latest for treating clusters.  Anytime oxygen is mentioned it is a good thing for sufferers.

While this all being somewhat behind the learning curve for many of us here when oxygen is mentioned as the "latest" treatment, it is helpful to those suffering unaware with maybe future supporters hearing of this.

I know the interviewer ends commenting that she will continue to watch this affliction, and that is hopeful. 


This is from a previous CNN show:



Quote:
HOUSE CALL WITH DR. SANJAY GUPTA

Aired December 6, 2008 - 08:30   ET


GUPTA: And it is time for my favorite segment of the show, "Ask the Doctor." We have lots of questions today.

Our first one comes all the way from Egypt. Juadad wants to know this. "What exactly is a cluster headache? Well Juadad, cluster headaches come on fast. They usually don't let up for about 30 minutes to 2 hours. The pain is typically on one side of the head or in the eye area. A throbbing sensation that could cause your eye to tear or even droop.

Now, doctors aren't entirely sure why they occur, but here's one theory. Why don't you take a look at this picture? You have a nerve highlighted in yellow here. That is the trigeminal nerve, the fifth nerve. And the theory is that sometimes that nerve gets inflamed. You can see where its location is. It can cause pain on that one side of the head. It's also right behind the eye. It can cause pain there as well.

Now, alcohol use, changes in sleep cycle, even altitude or mountain climbing can cause these sorts of problems. Plane trips as well can trigger a cluster headache.


Ms. Cohen basically reiterates an unknown cause and mentions the same triggers as mentioned on this previous show, which gives an idea of copied homework.  She adds though that clusters may happen without these also, and oxygen the latest treatment, an improvement. 

In itself, just bringing this back to TV is helpful, but it can seem slow progress and conservative effort while still being yet an improvement and exposure.  I was just left with less than high expectations of her continuing to watch this, as the interviewer concluded.  There was over a year inbetween these two shows and she gathered that the particular triggers mentioned are not necessarily applicable and oxygen the latest treatment. 

If one were to read Deej's board, that would seem a light dabble on the subject.  Getting it on TV is the big highlight, though I'd believe much more of our homework surpasses the basic presentation prepared of their senior medical correspondent. 

It's just that, since the unknown cause and triggers had been previously mentioned, and that seemed to take about half her talk, looking at the steps she took beyond that, there just seemed to be something more we'd wish to say.  But also wondering, what else could be encompassed in a couple sentences' time if we were to suggest?  What more could be simply and quickly expressed?
   





Title: Re: CNN REPORT ON CH ??
Post by Melissa on Jan 7th, 2010 at 9:46am
When I went to my GP yesterday for something, he mentioned Dr. Sanjay Gupta to me.  I had to chuckle and told him that I was pleased SOME sort of info. is finally getting out to the general public about CH's. :)

Title: Re: CNN REPORT ON CH ??
Post by Kevin_M on Jan 7th, 2010 at 12:36pm
A word about cluster awareness is always good.





Being that treatment can vary, with an opportunity of such abbreviated time, all I might think to say could be general in nature.  Episodic sufferers may last months and it has an ever-prolonged chronic condition for many. Its continuous devastating pain without effective treatment and supportive co-going can crucially generate and expand a detrimental potential encompassing family and job lifestyle.      

I can only see a plug for Clusterville following.   ;)

But that awareness might take Our Understanding of Cluster Headaches.

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