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Cluster Headache Help and Support >> Cluster Headache Specific >> Red Wine
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Message started by Jeannie on Jan 11th, 2010 at 5:29pm

Title: Red Wine
Post by Jeannie on Jan 11th, 2010 at 5:29pm
I've been out of cycle for a few weeks.  Last night, after a weekend of running kids to basketball games, taking my mother-in-law shopping, re-shoveling snow and all the other things that weekends entail, Randy and I decided to have a late super together.  We went to a lovely little, quiet place and shared a bottle of red wine.  Half way into my second glass the beast paid me a visit. 

I had passed the beer test already and thought it was safe.  Does anyone have trouble with red wine even when out of cycle?   

Thanks for the help.

PF wishes,

Jeannie

Title: Re: Red Wine
Post by seasonalboomer on Jan 11th, 2010 at 6:21pm
My experience may not be like many others but when I'm out of cycle I'm able to enjoy EVERYTHING without risk. Others, I've read here, don't partake ever, as it can trigger.

Just lucky I guess. But my feeling is that if I'm going to deal with CH in cycle, when I'm out of cycle I'm going to do everything I can, particularly those things the beast forbids.

Scott

Title: Re: Red Wine
Post by Bob_Johnson on Jan 11th, 2010 at 6:21pm
Several years ago I found a single study from Europe which said: red wine and all distilled spirits were triggers for CH; white wine was not. You know about beer....

Title: Re: Red Wine
Post by jon019 on Jan 11th, 2010 at 8:43pm
Like Scott...when episodic and out of cycle...darn near everything OK. With TWO exceptions...red wine and MSG. Still recall with horror, anger, disbelief, and indignation the kip 9+ I "enjoyed" after a bottle of NO ALCOHOL red wine one Thanksgiving.

And an irony....this Christmas I was presented with TWO bottles of very expensive RED wine by a wealthy and grateful customer..........expect that my brother truly enjoyed them....... :'(

Best,

Jon

Title: Re: Red Wine
Post by Jeannie on Jan 11th, 2010 at 8:49pm
I used to be able to enjoy a glass of red wine out of cycle until last night.  I guess my CH morphed this past cycle and has taken away one life's pleasures from me.  It really stinks. >:(

Jeannie


Title: Re: Red Wine
Post by Brew on Jan 11th, 2010 at 8:57pm
Three words of advice:

Single

Malt

Scotch

Once you get into it, you'll forget all about wine, regardless of its color.

Title: Re: Red Wine
Post by jon019 on Jan 11th, 2010 at 9:12pm
Guess Ima heathen...it was good enough for Dino and John Huston...but, for me....Mr. Daniel knew Jack....

Title: Re: Red Wine
Post by midwestbeth on Jan 11th, 2010 at 9:22pm
I have had a case of assorted red wine aging since the beast showed up in my life.  After drinking red wine, I got my first ch.  Tried to have a glass a few times, always the same result.   :(


Quote:
Three words of advice:

Single

Malt

Scotch

Once you get into it, you'll forget all about wine, regardless of its color.

I bought myself a bottle of Glenfiddich for Christmas......mmmm :)

Title: Re: Red Wine
Post by Brew on Jan 11th, 2010 at 9:40pm

midwestbeth wrote on Jan 11th, 2010 at 9:22pm:
I have had a case of assorted red wine aging since the beast showed up in my life.  After drinking red wine, I got my first ch.  Tried to have a glass a few times, always the same result.   :(


Quote:
Three words of advice:

Single

Malt

Scotch

Once you get into it, you'll forget all about wine, regardless of its color.

I bought myself a bottle of Glenfiddich for Christmas......mmmm :)

...and scotch has never messed with my head the way red wine has.

Title: Re: Red Wine
Post by Redd on Jan 11th, 2010 at 10:01pm
Not sure if it's because without the alternative methods of treatment I'm chronic, or what, but all I usually drink is red wine.

Don't dare give me a pilsner style beer or I'm in a world of hurt.  With alternatives or without.  But red wine is not an issue for me.


Title: Re: Red Wine
Post by BarbaraD on Jan 12th, 2010 at 6:22am
I can't even be on the same planet as RED wine. Other things don't seem to bother me. Love white wine...

Title: Re: Red Wine
Post by Chad on Jan 12th, 2010 at 6:56am

Brew wrote on Jan 11th, 2010 at 8:57pm:
Three words of advice:

Single

Malt

Scotch

Once you get into it, you'll forget all about wine, regardless of its color.

Ditto on that Brew.

I'm cool with the blended ones too...

Title: Re: Red Wine
Post by Chad on Jan 12th, 2010 at 7:00am
When I went into remission last cycle I was PF for a week and then had one CH out of the blue during the day 2 weeks later without a trigger.  Since then (3 months later) I have had no hits.  I drink red wine several times a week with dinner.   I guess my point is everybody is different and i've heard many of getting random hits.   
Whether they were triggered or not, who knows.  All I know is that I avoid ALL triggers while in cycle.  You're only playing with fire at that point.

Title: Re: Red Wine
Post by potlimit on Jan 12th, 2010 at 1:40pm
Umm, all I drink out of cycle is single malt scotch.  But it's one of the biggest triggers DURING a cycle.  Even the smell can sometimes elicit a shadow as a conditioned response.

Title: Re: Red Wine
Post by Linda_Howell on Jan 12th, 2010 at 3:41pm

Quote:
I've been out of cycle for a few weeks.


Maybe you just didn't wait long enough Jeannie.  I'd try it again in a month.  As with so many chronics...I don't have any triggers.  One of the very few upsides to CH.   :-/

Title: Re: Red Wine
Post by Jeannie on Jan 12th, 2010 at 4:19pm
I thought of that too, Linda.  I may try again in the future,  here at home, sitting next to my 02. ;)

Just before my cycle started I discovered a wine from Argentina that I have fallen in love with. Hopefully I can enjoy a glass or two again sometime.  I like whites too but not as much as I do reds.  I do get random hits as well.  Maybe that was just one of them. 

It is so strange to me that episodics have triggers and chronics don't.   I guess it shouldn't be though.  After all, CH is a strange condition.

Jeannie

Title: Re: Red Wine
Post by Joni on Jan 12th, 2010 at 4:33pm

Linda_Howell wrote on Jan 12th, 2010 at 3:41pm:

Quote:
I've been out of cycle for a few weeks.


Maybe you just didn't wait long enough Jeannie.  I'd try it again in a month.  As with so many chronics...I don't have any triggers.  One of the very few upsides to CH.   :-/


I have trouble with red wine as well, so I waited 3 months after my cycle to have any.  I have had a glass or two 3 or 4 times with no HA...but since the first drink, I have had very minor shadows off and on that haven't gotten any worse whether I have a glass now or not.  It is interesting as this has never happened before.  Of course, I don't drink often so I am not a good test subject.  My cardiologist told me to drink red wine and I do so when I remember.  I love my coffee best.

Title: Re: Red Wine
Post by jon019 on Jan 12th, 2010 at 8:30pm

Jeannie wrote on Jan 12th, 2010 at 4:19pm:

It is so strange to me that episodics have triggers and chronics don't. 


Oh gee Jeannie....could ya tell that to my version of the beast..."it" refuses to read the rule book...I hate when that happens :P

Best,

Jon

Title: Re: Red Wine
Post by Jeannie on Jan 13th, 2010 at 9:06am
Jon...

I guess I should have said that it is strange to me that MOST episodics have triggers and MOST chronics don't.  I know  that CH follow no rules.

Are you chronic but have triggers?

Jeannie

Title: Re: Red Wine
Post by Bob_Johnson on Jan 13th, 2010 at 9:28am
Jeannie, I should guess that chronics have learned, over the years, what their triggers are. They then avoid these items 100% of the time so that the topic become moot for them

It's the episodics who need to be on guard since they can use, e.g., red wine, some time and then avoid when in an active period.

Title: Re: Red Wine
Post by jon019 on Jan 13th, 2010 at 7:51pm

Jeannie wrote on Jan 13th, 2010 at 9:06am:
Jon...

I guess I should have said that it is strange to me that MOST episodics have triggers and MOST chronics don't.  I know  that CH follow no rules.

Are you chronic but have triggers?

Jeannie


Episodic for 24 yrs...chronic for the last 3 1/2. High cycles...low cycles...but always cycle. SOMETIMES there are triggers...sometimes not...it's a weird version. Red wine (ANY alcohol in high cycle), msg, tomatoes (glutamic acid?), and I think chocolate....I avoid them all religiously EXCEPT for tomatoes. Mom, Grandma, Aunts, Cousins were Italian...the beast can have some things, but "it" can't take Iti food away from me!!!!!

Best,

Jon

Title: Re: Red Wine
Post by Brew on Jan 13th, 2010 at 9:18pm
Jon - throw a half teaspoon of baking soda in your sketti sauce to cut the acid.

Title: Re: Red Wine
Post by jon019 on Jan 13th, 2010 at 9:39pm

Brew wrote on Jan 13th, 2010 at 9:18pm:
Jon - throw a half teaspoon of baking soda in your sketti sauce to cut the acid.


Dang it Brew....if you look up '''overthink" in the dictionary you will find me! I can stand in the woods and complain...."forest, what forest?....too many trees in the way". You DO have a way of simplifying.... that I aspire to.....

Tomorrow, I will be having spaghett (with turkey meatballs doncha know!)...the box of baking soda is READY...THANKS MAN!!!!!!

Best,

Jon

Title: Re: Red Wine
Post by JHK07 on Jan 14th, 2010 at 9:33pm
After a hectic day you simply tried to wind down. 
Beast loves that..  my 2 cents

Title: Re: Red Wine
Post by monty on Jan 16th, 2010 at 10:35pm
Red wine is more vasoactive, more likely to put the blood vessels through their paces. For most people, that is good, helps prevent cardiovascular disease. For people with migraines and clusters, more likely to trigger.

Title: Re: Red Wine
Post by Brew on Jan 16th, 2010 at 10:41pm

jon019 wrote on Jan 13th, 2010 at 9:39pm:

Brew wrote on Jan 13th, 2010 at 9:18pm:
Jon - throw a half teaspoon of baking soda in your sketti sauce to cut the acid.


Dang it Brew....if you look up '''overthink" in the dictionary you will find me! I can stand in the woods and complain...."forest, what forest?....too many trees in the way". You DO have a way of simplifying.... that I aspire to.....

Tomorrow, I will be having spaghett (with turkey meatballs doncha know!)...the box of baking soda is READY...THANKS MAN!!!!!!

Best,

Jon

How did that sketti sauce thing work out for you, Jon?

(BTW, I think turkey meatballs suck. It's not you, I just hate ground turkey anything.)

Title: Re: Red Wine
Post by jon019 on Jan 17th, 2010 at 1:49pm

Brew wrote on Jan 16th, 2010 at 10:41pm:
[quote author=2C20253B3A2530550 link=1263248993/22#22 date=1263436758]
How did that sketti sauce thing work out for you, Jon?

(BTW, I think turkey meatballs suck. It's not you, I just hate ground turkey anything.)


It was GREAT...was worried flavor would be ruined...tweren't. Getting hit so regularly lately that I don't know about "trigger" or not...

Re the ground turkey...I hear ya ::)....it's a choice vs red meat. If ya suspend disbelief AND mix with olive oil...AND sauteed onions/garlic...AND salt/pepper...AND a shot of worshestershire sauce....AND a few herbs....you can ALMOST convince yourself you're eating real meat. Yup, delusional thinking...but then, I STILL think I will only remember what it WAS like to have ch.......someday.......

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