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http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl Cluster Headache Help and Support >> Getting to Know Ya >> New in Colorado:) http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1265060757 Message started by ordiefam on Feb 1^st, 2010 at 4:45pm

Title: New in Colorado:)
Post by ordiefam on Feb 1^st, 2010 at 4:45pm

I live in Colorado Springs, Colorado. I have been through everything under the sun, the most painful was nerve ablation, where they burn the nerves at the base of your skull. That only made things worse! I waited for months to see a specialist at our university hospital up in Denver. She said that I have Occiptical Nerve migraines with cluster headaches as well. Joy.LOL
I have tried every triptian out there and none of them work for me. I have even tried midrin and cafergot.
I am awaiting the transcribed notes from this doctor to be sent to my doctor so I can get on topamax and lyrica.
I was blessed to already have a prescription for oxygen on file, I just had to get a mask from the ER when I went last. (That is not why I went. LOL) I am planning on getting a prescription for the masks from my doctor as well.
I have already learned alot for this site and appreciate everyone for being so nice and honest and helpful!
Thanks!

Title: Re: New in Colorado:)
Post by Brew on Feb 1^st, 2010 at 5:05pm

Have you thought about alternative treatments?

clusterbusters.com

Title: Re: New in Colorado:)
Post by bejeeber on Feb 1^st, 2010 at 7:08pm

What Brew said, plus just checking to be sure - you've tried Imitrex injections, right?

(Soooo many CH folk come on here reporting they've only been prescribed the relatively ineffective pill form of imitrex)

Title: Re: New in Colorado:)
Post by deltadarlin on Feb 1^st, 2010 at 7:35pm

What lpm does your regulator go to? Didn't think you needed a 'script for a mask. Best mask around is Clustermax (?).

Long day

Title: Re: New in Colorado:)
Post by Brew on Feb 1^st, 2010 at 7:42pm

deltadarlin wrote on Feb 1^st, 2010 at 7:35pm:

What lpm does your regulator go to? Didn't think you needed a 'script for a mask. Best mask around is Clustermax (?).

Long day

O₂ptimask. Available right here at ch.com.

Title: Re: New in Colorado:)
Post by Skyhawk5 on Feb 1^st, 2010 at 9:52pm

I hope the mask you have is a NON-REBREATHER the kind with a bag attached. Any other type is nearly useless for CH.

Don

Title: Re: New in Colorado:)
Post by ordiefam on Feb 2^nd, 2010 at 3:48pm

Yes mine does have the little bag on it. My regulator goes up to 15. Should i get another mask?

Title: Re: New in Colorado:)
Post by Redrum on Feb 2^nd, 2010 at 5:28pm

Welcome Ordiefam, I'm right up 24 in Woodland Park. I have had a lot of success with clusterbusters (I use RC seeds) and would give up my kids before giving up my oxygen (next time you get to the top of the peak, pick up a "got oxygen?" t-shirt ;) ).

PFDAN...Andy

Title: Re: New in Colorado:)
Post by ordiefam on Feb 3^rd, 2010 at 10:21am

Hi Neighbor:) That is a cute idea! I should get a shirt like that. I think they have them in manitou also. ;)