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Cluster Headache Help and Support >> Getting to Know Ya >> Doctor Info http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1265748743 Message started by cctex on Feb 9th, 2010 at 3:52pm |
Title: Doctor Info Post by cctex on Feb 9th, 2010 at 3:52pm
Thank goodness for this site! As a CH sufferer for over 30 years, I'm excited to have a support group. My question is: everytime I tell various GP doctors about my CH cycles, I always get the same reaction - deer in the headlights. Do I need to go to a specialist? If so, please specify. Getting a script for oxygen sounds like a dream! Thx.
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Title: Re: Doctor Info Post by Guiseppi on Feb 9th, 2010 at 4:25pm
A headache specialist gives you a much better chance at something besides deer in the headlights response!!!! My GP at Kaiser, of all places, was the one who diagnosed me...I got lucky because his brother in law suffered from them and he knew a little about them.
So look for a Neuro....who specializes in headaches......any of you Texans nearby who can point the way??? Joe |
Title: Re: Doctor Info Post by Dallas Denny 62 on Feb 9th, 2010 at 5:37pm
Howdy neighbor!
I have a great doctor who just moved from Mesquite to Sunnyvale. Although he is just a GP he was very knowledgeable about CH on my first visit to him several years ago. He asked me what worked, I gave him the list and he wrote the scripts no questions asked. He was surprised that O2 worked so well for me as he also treats other patients with CH and it hadn't worked for them. In fact I just had my annual physical a few weeks ago and while there I told him about the success people were having with high flow (25 lpm) therapy and he had no problem writin me a new script for O2 w/rebreather at 25lpm! His name his William Boone and his new office is just south of I-80 on Collins St. in Sunnyvale. Dallas Denny |
Title: Re: Doctor Info Post by Skyhawk5 on Feb 9th, 2010 at 9:31pm
"writin me a new script for O2 w/rebreather at 25lpm!" (Dallas Denny)
A REBREATHER mask is the one without a bag. We need a NON-REBREATHER with a bag. If the Dr put rebreather on the Rx that is the wrong mask. Just making sure. Don |
Title: Re: Doctor Info Post by cctex on Feb 10th, 2010 at 12:28pm
Thanks everyone for all the good info - it helps a lot. I'll be in touch about the success of the O2 since I'm in my 2nd week of a CH cycle. Sleep walking right now!
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Title: Re: Doctor Info Post by Dallas Denny 62 on Feb 10th, 2010 at 4:59pm
Hey Don,
Thanks for catchin the typo...I did mean to say non rebreather...lol DD |
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