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Cluster Headache Help and Support >> Getting to Know Ya >> Doctor Info
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Message started by cctex on Feb 9th, 2010 at 3:52pm

Title: Doctor Info
Post by cctex on Feb 9th, 2010 at 3:52pm
Thank goodness for this site! As a CH sufferer for over 30 years, I'm excited to have a support group. My question is: everytime I tell various GP doctors about my CH cycles, I always get the same reaction - deer in the headlights. Do I need to go to a specialist? If so, please specify. Getting a script for oxygen sounds like a dream! Thx.

Title: Re: Doctor Info
Post by Guiseppi on Feb 9th, 2010 at 4:25pm
A headache specialist gives you a much better chance at something besides deer in the headlights response!!!! My GP at Kaiser, of all places, was the one who diagnosed me...I got lucky because his brother in law suffered from them and he knew a little about them.

So look for a Neuro....who specializes in headaches......any of you Texans nearby who can point the way???

Joe

Title: Re: Doctor Info
Post by Dallas Denny 62 on Feb 9th, 2010 at 5:37pm
Howdy neighbor!

I have a great doctor who just moved from Mesquite to Sunnyvale.  Although he is just a GP he was very knowledgeable about CH on my first visit to him several years ago.  He asked me what worked, I gave him the list and he wrote the scripts no questions asked.  He was surprised that O2 worked so well for me as he also treats other patients with CH and it hadn't worked for them.

In fact I just had my annual physical a few weeks ago and while there I told him about the success people were having with high flow (25 lpm) therapy and he had no problem writin me a new script for O2 w/rebreather at 25lpm!

His name his William Boone and his new office is just south of  I-80 on Collins St. in Sunnyvale.

Dallas Denny

Title: Re: Doctor Info
Post by Bob_Johnson on Feb 9th, 2010 at 7:10pm
LOCATING HEADACHE SPECIALIST

1. Search the OUCH site (button on left) for a list of recommended M.D.s.

2. Yellow Pages phone book: look for "Headache Clinics" in the M.D. section and look under "neurologist" where some docs will list speciality areas of practice.

3.  Call your hospital/medical center. They often have an office to assist in finding a physician. You may have to ask for the social worker/patient advocate.

4. START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or RegisterEND PRINTPAGE; On-line screen to find a physician.

5. START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or RegisterEND PRINTPAGE Look for "Physician Finder" search box.  Call 1-800-643-5552; they will send a list of M.D.s for your state.I suggest using this source for several reasons: first, we have read several messages from people who, even seeing neurologists, are unhappy with the quality of care and ATTITUDES they have encountered; second, the clinical director of the Jefferson (Philadelphia) Headache Clinic said, in late 1999, that upwards of 40%+ of U.S. doctors have poor training in treating headache and/or hold attitudes about headache ("hysterical female disorder") which block them from sympathetic and effective work with the patient; third, it's necessary to find a doctor who has experience, skill, and a set of attitudes which give hope of success. This is the best method I know of to find such a physician.

6. START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or RegisterEND PRINTPAGE NEW certification program for "Headache Medicine" by the United Council for Neurologic Subspecialties, an independent, non-profit, professional medical organization.
        Since this is a new program, the initial listing is limited and so it should be checked each time you have an interest in locating a headache doctor.
==============

Medical education in headache
Posted 9/26/07, MEDSCAPE   

--------------------------------------------------------------------------------
Abstract statements from a study of headache education in medical programs. Second para. specific to neurological residency training. Gives good idea of why it's difficult to find a sharp doc.
=========================
"Objective. To explore the extent of headache education received by medical students and residents.
Background. Headache is a common, often severe, and sometimes disabling problem. However, 49% of sufferers do not seek professional treatment -- of those who do, only 28% are very satisfied. One possible reason is limited education of physicians about headache.
Methods. Surveys were sent to all allopathic and osteopathic medical schools, 200 family medicine residencies, and all 126 neurology residencies. Information requested included the amount and perceived adequacy of headache education and any plans to increase headache education.
Results. Response rates were 35% to 40%. MEDICAL SCHOOL LECTURE HOURS RANGED FROM 0 (4%) TO >5 (24%) WITH 92% HAVING NO PLANS FOR AN INCREASE IN HEADACHE EDUCATION. FAMILY MEDICINE RESIDENCY LECTURE HOURS RANGED FROM 1-3 (30%) TO >5 (34%) AND CASE PRESENTATIONS FROM 1-5 (23%) TO >5 (41%), WITH 88% OF PROGRAM DIRECTORS HAVING NO PLANS FOR INCREASE. NEUROLOGY RESIDENCY LECTURE HOURS RANGED FROM 1-3 (11%) TO >5 (64%) AND CASE PRESENTATIONS FROM 1-5 (23%) TO >10 (57%), WITH 80% HAVING NO PLANS FOR INCREASE.
Conclusion. Undergraduate medical education in headache is limited. Despite medical schools perceiving their training as adequate, both neurology and family practice residency program directors believe entering residents are inadequately prepared in headache upon entering the program."

"Neurology Residency Programs
Neurology residency program lecture hours varied from 1 to 3 hours (11%) to >5 hours (64%) (Figure 2). The number of case presentations ranged from 1-5 (23%) to >10 (57%) (Figure 6). Forty-two (95%) of program directors believed that their headache education was adequate (Figure 4). Interestingly, 20% of neurology programs indicated plans to increase training in headache management. Similar to the family practice programs, 68% of the program directors believed that new residents had inadequate knowledge about headaches upon entering the program while only 11% of the program directors believed that their residents were well informed about headache."



Title: Re: Doctor Info
Post by Skyhawk5 on Feb 9th, 2010 at 9:31pm
"writin me a new script for O2 w/rebreather at 25lpm!" (Dallas Denny)

A REBREATHER mask is the one without a bag. We need a NON-REBREATHER with a bag.  If the Dr put rebreather on the Rx that is the wrong mask.

Just making sure.
Don

Title: Re: Doctor Info
Post by cctex on Feb 10th, 2010 at 12:28pm
Thanks everyone for all the good info - it helps a lot. I'll be in touch about the success of the O2 since I'm in my 2nd week of a CH cycle. Sleep walking right now! 

Title: Re: Doctor Info
Post by Dallas Denny 62 on Feb 10th, 2010 at 4:59pm
Hey Don,

Thanks for catchin the typo...I did mean to say non rebreather...lol

DD

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