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Cluster Headache Help and Support >> Getting to Know Ya >> new here http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1268315900 Message started by al13 on Mar 11th, 2010 at 8:58am |
Title: new here Post by al13 on Mar 11th, 2010 at 8:58am
Hi all, I'm a 41 year old englishman (although I still a boy at heart) living in the south of France.
I've been suffering from episodic cluster headaches since I was 16 and I know the pain you all go through. My episodes come every 18 months and last for 8 weeks. At the worst moments I have counted 10 attacks in a day lasting 40 minutes each. Sometimes the attacks would only ebb and flow giving the impression of a continuous attack lasting for up to 3 hours. I treat them with vermapamil and imiject. Before I found imiject I was absolutely distraught with fear as I could see no way to carrying on the misery. I will take this opportunity to thank you at CH.com for the tip I got here a few years ago about splitting the imiject doses so as to make them go further. This has definitely helped me immensely. Anyway, I'm here now because my demonic old friend is coming back to play. He gave me fore warning at 5:30 yesterday morning. So in preparation (apart from lining up the needles) I had a quick look on the inernet to see if any new treatments had been found and I stumbled across Now I've never tried anything like that before so I feel a certain anxiety about it because if I thought it would work I woudn't hesitate, but I don't quite know what to expect. For now I'm going to trawl throught the site and see what others have experienced. Thanks again. Alastair |
Title: Re: new here Post by vietvet2tours on Mar 11th, 2010 at 1:13pm
Another vote for oxygen.
Potter |
Title: Re: new here Post by al13 on Mar 11th, 2010 at 1:41pm
Thanks for the replies. I did try oxgen a few years back, as the pain got worse I increased the flow until I was above what had been proscribed. Unfortunatly it had no effect. At least I mean I was no longer able to remain seated after about fifteen minutes and had resorted to the usual small paces from one end of the room to the other while simultaneously praying to God for help and swearing to the devil that that he would not break me. To top it all I'm agnostic the rest of the time!
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Title: Re: new here Post by bejeeber on Mar 11th, 2010 at 4:23pm
Hey Alastair,
That is an important point that Shaggy makes about only a low sub hallucinogenic dose being the order of the day with the |
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