Hello everyone,

I could use a bit of a favor here.  I am in need of several people writing about what goes on with their clusters and how they feel when they hit.  The reason why I need this is to convince a group that they do exist and that they're as bad as they are.  Some people, even though we are out there, still think clusters are just migraines.  Would that they were.  It's more like a jackhammer inside the skull, not stopping.

Anyway, if you wanted, could you send the testimonials to my e-mail at ben_thurber@hotmail.com

Thanks and keep smiling!

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In addition to the link Brew sent, I'd also refer them to the actual OUCH organization - START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or END PRINTPAGE for further information. Quite alot of information posted there.

I can't do better than Brew and the Queen.  If that isn't enough to convince them it is because they don't wish to be enlightened, and they are not worth your time and effort.

JMHO
Jerry

BenjaminThurber wrote on Mar 29^th, 2010 at 2:58pm:

The reason why I need this is to convince a group that they do exist and that they're as bad as they are

. 

This should give them an idea of what there like....!

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Lefty

Nothing I could say packs the impact of the home page of ch.com. Brings me to tears every time I read it....just show 'em that....

Best,

Jon

Here's about all I can say on the topic. 

From the tranquility of rest,
An eminent nightmare begins,   
Recognition encounters fear,
Fear encounters pain,
Pain all pervading,
Not of this world, no… not of this God.

Boring, crushing, searing, more,
Unimaginable and unmerciful,
No hiding, no escape,
Indescribable to most,
A headache they say, but “they” not its host,
Hell concentrates within.

Overwhelming, unrelenting torment,
Rest peacefully, act freely no more,
Curse yet pray God, pace... then remember to breathe,   
Unseen time, fading then gone,
Exhaustion spawns sleep,
Dare sleep.

From the tranquility of sleep,
The nightmare renews,
More powerful, more in control,
Exhausted and weak, fear rest, fear sleep,
Pray mercy prevail and end all this time,
This nightmare is real.


burnt-toast
(Tom)

one thing you could do is show them a few youtube videos.

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this is about what i would go through during an attack with out o2. a cold wet towel always was a favorite of mine.
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there are several videos to choose from. many of them were posted by members of this site. i personally find them hard to watch but they paint a pretty picture of an attack

Thanks so much.  I used the letter to explain it.