hi everyone, right now I'm writing this in between headaches. I woke up at 9AM with a really bad one today, Finally, I was able to pass out at 10:30AM. At 9 I took some Excedrin migraine, because sometimes I chew it and the caffeine helps. Anyway I slept from 10:30 to 12. Woke up shadow is still there. A lot of pain from the shadow but only like a 5 on the kip scale. By 12:40PM I'm in full blown Stage 10 Rip my eye ball out of my head pain. I passed out around 1:30 and now I'm up at 3:00PM. The shadows here, I don't know what to do. The amount of trexime I get is only 9 pills a month, I used one yesterday and I can't run out. What if it gets worse? I found this site, and I'm so happy that there will be people that can relate to me. I can't explain a pain like this, my friends don't understand what I go through I just look like an idiot smashing my head. I haven't been diagnosed I'm waiting to go to the neurologist on April 16th, I'm on the cancellation list in case anyone cancels Ill get right in. I do have all the symptoms of cluster headaches, but I'm also sensitive to light, it doesn't help but I feel like I bang my head less. As soon as I read the symptoms of a cluster headache I knew that this was me and these people understood me. And I'm so happy to have found people who understand what I go through. I'm hoping that this cycle ends soon its been nearly a month

You need to get diagnosed first. In the meantime, ice packs, Red Bull, 4-Way Nasal Spray are some ideas that come to mind. You might even explore getting a big ol' tank of welder's oxygen, a regulator that goes up to 25 liters per minute, and a non re-breather mask, like the O₂ptimask that's sold here at the ch.com store.

Here's how you explain it to your friends. Print many copies and give one to each person you feel needs to know what you're going through:

START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or END PRINTPAGE

Thank you so much for that booklet =) Headache coming in strong. I'll check this thread later

Just had another, forgot to mention how getting really bad sleep is killing me with my lymes disease

Just a minute.....Lymes disease can manifest with headaches that mimic cluster.  I knew a gentleman who was miss-diagnosed with CH but once his Lymes was treated his headaches ended.

I really hope the same holds true for you. But if not...still get thee to a good neuro headache specialist for a firm diagnosis.

Energy drinks with taurine and caffeine. 

At 16 years old, without your parents full support, getting O2 without a script will be difficult, but talk to them and get them on the site to talk and folks here will walk them through the steps.

Keep us posted.
 

That would be the greatest news Ive ever heard  but I'm not going to get my hopes up. Only time will tell.

Sounds strange, but I hope that it's the Lyme disease....  Keep us updated.

Jeannie