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Cluster Headache Help and Support >> Cluster Headache Specific >> had an "interesting" neuro visit
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Message started by wimsey1 on Jul 6th, 2010 at 8:05am

Title: had an "interesting" neuro visit
Post by wimsey1 on Jul 6th, 2010 at 8:05am
I have two neuros now, one regular that I've had for 9 years, and one new, a pain clinic specialist in Boston. The first is compassionate and helpful, and what the second lacks in bedside manner he more than makes up for in experience and aggressive action.

When I told my first neuro I was in a kind of remission (no more than one low kip hit/day rather than 6 Kip8-10's/day) she actually looked disappointed. She remarked she guessed I didn't need to come back since I was doing so well. I disagreed, preferring to keep her with me since she is quite local.

The second neuro in Boston merely smiled and said, cool! But...where we would take an 80% reduction with migraines and say, game over! with ch's we're going to push even harder for a full remission!

I was nearly as perplexed by his remark (but I liked it) as I was by the first. It's the first time, however, I have ever heard a doctor say anything about being less than satisfied with a great reduction, and wanting the whole ball game. I do pray this can come about, for me and for all ya'll! Blessings! lance

Title: Re: had an "interesting" neuro visit
Post by Ginger S. on Jul 6th, 2010 at 5:33pm
Wishing you HEAPS of Luck Lance!

Title: Re: had an "interesting" neuro visit
Post by donna mae on Jul 6th, 2010 at 5:51pm
That's so encouraging wimsey! Now I am so looking forward to seeing this guy as well. Let us know your progress and what his treatment  plan is to knock this thing out. I'm excited for you and for me too!

Wishing us all to end this madness soon!   :D

Donna Mae   :)

Title: Re: had an "interesting" neuro visit
Post by Linda_Howell on Jul 6th, 2010 at 6:18pm


I like the 2nd. Neuro.   ;)

Title: Re: had an "interesting" neuro visit
Post by sandie99 on Jul 7th, 2010 at 3:06am
I do like the second neuro's attitude a lot! :) Good luck with the full remission - I hope you'll find a way.

PF days,
Sanna

Title: Re: had an "interesting" neuro visit
Post by wimsey1 on Jul 8th, 2010 at 8:09am
Thanks, all ya'll. Me too, and for all of you as well! Blessings. lance

Title: Re: had an "interesting" neuro visit
Post by black on Jul 10th, 2010 at 10:00pm
this sounds good but if i were you i would also be  cautious with what could be thrown to my side.
a few years ago a pain specialist told me that what the international headache organization thinks as success for ch is a 50% reduction to frequency and intensity and that by that standards we were doing therapies at the time.
i don't know if that was true or anything has changed for the better since then but anyway just be cautious.
hope you ll get something good from him :)

Title: Re: had an "interesting" neuro visit
Post by Kat on Jul 10th, 2010 at 10:22pm
Such good news Lance, I hope God blesses you and heals you all the the way!  Keep us informed my dear friend.
Kat

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