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Cluster Headache Help and Support >> Cluster Headache Specific >> something I learned - DON'T FLY with CH! http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1280280535 Message started by Peter B on Jul 27th, 2010 at 9:28pm |
Title: something I learned - DON'T FLY with CH! Post by Peter B on Jul 27th, 2010 at 9:28pm
Just had an attack on a plane - took an imitrix shot but too late - by the time I took the shot we started descending. My head exploded, they called the EMT and wouldn't let me leave the plane until I signed papers saying I didn't have to go to the hospital.
That was fun. Loads. Just venting. *sigh* |
Title: Re: something I learned - DON'T FLY with CH! Post by feneq on Jul 27th, 2010 at 9:37pm
there are 5l oyxgen bottles avlbl. - if you tell your airline early enough most airlines accept a small bottle on board,
best regards |
Title: Re: something I learned - DON'T FLY with CH! Post by Brew on Jul 27th, 2010 at 9:50pm feneq wrote on Jul 27th, 2010 at 9:37pm:
Sorry. I'm calling bullshit. I work for an airline. No airline that I know of will allow anything like it on board. At 2000 psi, it is an unexploded bomb. You need to prove to us that you are who you say you are. We're listening. |
Title: Re: something I learned - DON'T FLY with CH! Post by feneq on Jul 27th, 2010 at 10:08pm
excuse me- i might be wrong about us-airlines, i speak for my experience in european flights, i NEVER had problems to take a 5l-bottle onboard declared as medical necessity- it just had to be declared in forward,- please disclaim of saying i'm talking bullshit; i am no encyclopedia, i speak for myself
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Title: Re: something I learned - DON'T FLY with CH! Post by lib on Jul 27th, 2010 at 10:08pm
I fly in small planes; usually never above 4,000ish feet and don't have a problem so far. However, I plan on flying a lot this fall on commercial flights (I'm a new nana) and so far have not had an episode on a commercial flight. What do we do if it happens? Based on my last 10 or so Kip 9/10 attacks, there is no way I would be able to sit in a seat with my seat belt on while I wait for my abort to work. Do I need to tell someone I may have to get up and pace while chanting the "Ten Little Indian" song? Okay, maybe TMI but I am curious about what others have done when that happens. lib
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Title: Re: something I learned - DON'T FLY with CH! Post by Jimi on Jul 27th, 2010 at 10:18pm
Unless they have changed the rules. You cannot bring your own 02 tank on any commercial flight.
However...their are a few aircraft companies that will furnish you with 02 if you have a doctors letter showing necessity. They usually charge $50 to $150 per use and you have to make arrangements ahead of time with the airline. Other aircrafts use concentrators. But yes.. it is my understanding that aircraft do have 02 tanks on board. |
Title: Re: something I learned - DON'T FLY with CH! Post by Brew on Jul 27th, 2010 at 10:26pm
Of course commercial aircraft have their own supply of pressurized O2 - there has to be enough on board for the crew to safely land the plane in the event of an emergency. None of them allow you to bring your own pressurized bottle. None of them. Battery operated concentrators are a different matter.
Still watching like a hawk, doc. |
Title: Re: something I learned - DON'T FLY with CH! Post by Lettucehead on Jul 27th, 2010 at 10:46pm Brew wrote on Jul 27th, 2010 at 10:26pm:
I must say, in reading some of his other posts, I have some strong concerns as well. Unless, of course, medicine in Europe is practiced vastly differently than it is in the US... |
Title: Re: something I learned - DON'T FLY with CH! Post by Skyhawk5 on Jul 27th, 2010 at 11:54pm
Sorry to hear this happened to you, must have been awful. One of my biggest fears is getting hit in public let alone on an airliner. They'd have to pry me out of the restroom.
The longer acting triptans like Frova, Amerge or Zomig help many with preventing hits while flying. Don |
Title: Re: something I learned - DON'T FLY with CH! Post by Arde on Jul 28th, 2010 at 12:36am
I believe I'll take the train, and hope a plane doesn't fall on it.
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Title: Re: something I learned - DON'T FLY with CH! Post by Guiseppi on Jul 28th, 2010 at 9:09am
Ouch Peter....that's gotta rank in the top 10 of most embarrassing public hits :'(...that sucks. Still have yet to get hit while flying....crossing fingers and knocking on wood.
Joe |
Title: Re: something I learned - DON'T FLY with CH! Post by Jimi on Jul 28th, 2010 at 9:18am
Sorry Feneq. It appears that many airlines overseas allow you to bring 02 on board just not here in the states.
I apologize for being wrong about that. |
Title: Re: something I learned - DON'T FLY with CH! Post by Brew on Jul 28th, 2010 at 10:20am
Me too. I apologize for being wrong about European airlines.
I expect that policy to change once one of their airplanes is hijacked by a jihad extremist. |
Title: Re: something I learned - DON'T FLY with CH! Post by feneq on Jul 28th, 2010 at 12:50pm
no problem - we're all here to learn from each other, and i'm really grateful for your inquiries :)
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Title: Re: something I learned - DON'T FLY with CH! Post by Mike NZ on Jul 28th, 2010 at 5:58pm Brew wrote on Jul 28th, 2010 at 10:20am:
I'd have thought there was more risk from a mechanical failure from the oxygen bottle as they will not be subject to anything like the inspections / testing that will happen to the onboard oxygen bottles. |
Title: Re: something I learned - DON'T FLY with CH! Post by QnHeartMM on Jul 28th, 2010 at 6:56pm
I was on a flight in the US in the last 5 years maybe that I was asked to change seats because the seat I was in had some special brackets on the floor. The maintenance people got on board and installed a small O2 tank for a passenger that had reserved this service. The tank was "locked" in place. I think it was American airlines as that's what I flew back then.
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Title: Re: something I learned - DON'T FLY with CH! Post by Peter B on Jul 28th, 2010 at 9:25pm
I took a hit of Sumatriptan which kinda worked - but whatever the CH did to my sinuses added to the pain - my entire forehead felt liked it was being electrocuted and I kept checking my nose for bleeding...how dramatic.... I feel so sorry for the woman next to me.
When they landed they brought me some O2 but for anyone used to 12 or 15 LPM, it was a laughable amount. I tried to explain that the O2 wouldn't be of use and they just sort of stared at me as if I was being difficult. I think the advice from a different thread is the right one - bring along your triptan of choice (I happen to hate sumatripan, messes with my cycle, any other suggestions out there?) and have O2 on the other side. As far as national 02 providers - Apria is my new favorite company. Best customer service ever. They delivered three portable tanks to my hotel with rebreathers and the lot. Great attitude, so helpful. If I ever have another child, I think I already who/what to name him/her after.... |
Title: Re: something I learned - DON'T FLY with CH! Post by Lettucehead on Jul 28th, 2010 at 9:57pm Peter B wrote on Jul 28th, 2010 at 9:25pm:
Hahaha! Excellent! Why didn't I think of that?! I use Apria and I think their customer service is very good too - when I travel, I always make sure I know where the local Apria office is - they have the o2 prescription on file and would be able to get me o2 wherever I am should I need it. I'll name my baby boy 'Apria'! Sure! Hmmm - I wonder what my husband will think about that... ::) |
Title: Re: something I learned - DON'T FLY with CH! Post by Brew on Jul 28th, 2010 at 10:44pm
Apria also provides my O2, as well as maintains my CPAP machine.
If it's twins, you could go with Apria and Apnea. |
Title: Re: something I learned - DON'T FLY with CH! Post by Skyhawk5 on Jul 29th, 2010 at 3:22pm
I use DHE-45 IM injections that for me last over 20hrs.
Don |
Title: Re: something I learned - DON'T FLY with CH! Post by midwestbeth on Jul 30th, 2010 at 9:45am Skyhawk5 wrote on Jul 27th, 2010 at 11:54pm:
I'm going to 2nd taking a long acting triptan while in cycle and flying. Frova prevented me from getting a full blown hit while on the plane, although I did get some strange looks from the people in the airport before I had to board. Thank God the Frova kicked in before the plane took off. |
Title: Re: something I learned - DON'T FLY with CH! Post by FramCire on Aug 1st, 2010 at 9:33pm
This fear has hit all of us the first time we flew. (I assume).
I usually take an abortive as the plane takes off even before the headache takes. Sounds strange but I do. The other option for me is to bring a energy drink (I think 5 hour energy has tourine and caffiene) in my carry on (buy it at airport) and take at first hint. It is my best defense and so far no in air hits. I am sorry to hear you got hit in air. |
Title: Re: something I learned - DON'T FLY with CH! Post by Guiseppi on Aug 1st, 2010 at 9:43pm
The first thing my wifey does after we clear security screening is runs and gets me 2 sugar free Red Bulls. (she totally digs me!) he he he
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Title: Re: something I learned - DON'T FLY with CH! Post by Puck Head on Aug 1st, 2010 at 11:16pm
I got hit on a flight to japan, before I was diagnosed(so I had no abortive). Thankfully most of the people on the plane were asleep at the time. Though the flight attendants were kind of concerned by my pacing up and down the aisle holding my head.
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Title: Re: something I learned - DON'T FLY with CH! Post by neuropath on Aug 2nd, 2010 at 12:38am
As part of my job I need to fly 2-3 times a week and use a zomig pill 30 min before take-off. This works 8 out of 10 times.
Recently read that the introduction of the new Boeing Dreamliner means that, because the body is carbon-fibre and no longer aluminum, the air pressure inside the aircraft will be a near sea-level ranges at cruising altitude. Right now it is 30% lower, which leads to vasodilation and many of us being proned to attacks during flight. Sounds like some relief is on the horizon. |
Title: Re: something I learned - DON'T FLY with CH! Post by zanychef on Aug 8th, 2010 at 9:51am
strange ive been in high cycle many times while flying and never had a hit (wish i could live on a plane lol)
zany |
Title: Re: something I learned - DON'T FLY with CH! Post by AussieBrian on Aug 8th, 2010 at 8:10pm
Many is the time I've had "landing headaches" from the pressure ramping up on descent. They are usually one-sided and anything up to a dinkum Kip-8 but rarely last more than about two minutes.
Oddly, I've never had one while sky-diving. |
Title: Re: something I learned - DON'T FLY with CH! Post by George on Aug 8th, 2010 at 9:15pm AussieBrian wrote on Aug 8th, 2010 at 8:10pm:
Apparently, the necessity to avoid distraction tends to focus the mind wonderfully. Best, George |
Title: Re: something I learned - DON'T FLY with CH! Post by Guiseppi on Aug 8th, 2010 at 11:19pm George wrote on Aug 8th, 2010 at 9:15pm:
;DAn interesting prevent George.....not one I'll try.....but interesting! Joe |
Title: Re: something I learned - DON'T FLY with CH! Post by Mike NZ on Aug 8th, 2010 at 11:40pm Guiseppi wrote on Aug 8th, 2010 at 11:19pm:
It could be an interesting way to abort a CH, although most people doing their first jump will have a similar look of pain on their face as they push themselves out the door. |
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