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Cluster Headache Help and Support >> Cluster Headache Specific >> How to know when it's ending?
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Message started by R33_Ian on Sep 14th, 2010 at 10:03am

Title: How to know when it's ending?
Post by R33_Ian on Sep 14th, 2010 at 10:03am
Are there are any common signs that a cycle is coming to an end? I know everybody is different and no two clusters are the same I was wondering what happens to folks as the beast decides to leave?

Title: Re: How to know when it's ending?
Post by vietvet2tours on Sep 14th, 2010 at 10:12am
Your head quits hurtin.

            Potter

Title: Re: How to know when it's ending?
Post by R33_Ian on Sep 14th, 2010 at 10:16am
Haha thanks for that! Would never have known!

Title: Re: How to know when it's ending?
Post by Guiseppi on Sep 14th, 2010 at 11:28am
Seems a large percentage go the slow fade exit. Some get 2-3 days of butt kicking KIP 10's then they stop, some just stop. I still use the 2 week rule. 2 weeks of no hits at all, I start to wean off the lithium, dropping 150 mg a week until I'm down to zero.

Joe

Title: Re: How to know when it's ending?
Post by George on Sep 14th, 2010 at 11:34am
There seems to be no consistent answer to this.  Some episodic's cycles end abruptly, with a high-kip attack--then nothing.  Others (like me) have fewer and fewer attacks at lowered intensity until they fade completely away.

I can't say whether yours will end suddenly or will fizzle out, but from what I've seen around here, if your cycle ends one way or the other, it's a pretty good indicator that any future cycles you have will probably end the same way.

'Course, I'll say that, and someone else's experience will be entirely different.   ;)

Best,

George 


Title: Re: How to know when it's ending?
Post by Agostino Leyre on Sep 14th, 2010 at 11:36am
Usually when I feel like I want to just have a beer and relax, that means it's over for me.

Title: Re: How to know when it's ending?
Post by Jack on Sep 14th, 2010 at 7:54pm
New guy's experience: Individual attacks end differently. Some end evenly and rapidly, as if someone was turning down a volume knob on a radio. Then again, some seem to be ending, but then jump back up as loud as they were at their peak, kind of like a CD skipping. Others just... End.

When a cycle ends, it just means no more for me. There is no show stopping pain or anything. The "final" attack in any given cycle could be a real headbanger, or it could be very mild. (This is always frightening, having been a chronic sufferer most of my my life, up until a few years ago, when I started having attacks episodically, with 2-2.5 year remission periods not being uncommon. I guess I'm still not used to being episodic at this point.)

Title: Re: How to know when it's ending?
Post by Lettucehead on Sep 14th, 2010 at 11:52pm
I'm a 'fizzler' myself.

Slowly wean down in severity then may skip a scheduled hit then will just get a shadow or so in the evening for a bit then lighter and lighter shadows until nothing.

I'll wait at least a couple of weeks after the last shadow before (slowly!) going down/off any medication. 

Then it's, ah, bliss...

Title: Re: How to know when it's ending?
Post by wimsey1 on Sep 15th, 2010 at 7:59am
Some of it depends, I suppose, on whether one is chronic or episodic. We've acknowledged that chronics do have cycles of high and lower hits, and frequency, over a year's time. I know I do. So I kinda look at the low-no hits in one day's time as a cycle change. When I was episodic, I agree with Potter, I knew it was done when my eye stopped trying to vacate my body. Two weeks, as Joe said, is probably a good indicator. Blessings, lance

Title: Re: How to know when it's ending?
Post by black on Sep 17th, 2010 at 6:49pm
someone turns your calendar page in september 2100 :P

Title: Re: How to know when it's ending?
Post by Linda_Howell on Sep 17th, 2010 at 10:15pm
Being chronic my experiences do not apply, but over the last 12 years here I have found that MOST episodics go out with a bang.  In others words most hits ramp up in extreme intensity for a while and then just fade away.   I hope that is what is happening to you.

Title: Re: How to know when it's ending?
Post by Gina2 on Sep 18th, 2010 at 10:53am
Hi,

I have just come to the end of my first cycle. I was getting an attack 2 times a day lasting for 4hrs if I didn't take anything for them. Within a week my attacks went from 2 a day to 1 a day then to every other day. I had one attack five days after what I thought was my last attack and now nothing for the last 15 days. ;D ;D

Like other people have said everybody is different but I hope this helps.

Title: Re: How to know when it's ending?
Post by Headache Boy uk on Sep 19th, 2010 at 5:36am
One week I was having attacks then the next gone . been having shadows several times a day of varying intensity since then and I'm now around the time my cycle started last year, here's hoping Ill stay with the shadows  ;)

God bless

Nigel

Title: Re: How to know when it's ending?
Post by kdeen0201 on Sep 20th, 2010 at 11:53pm
I was just about to ask the same question. I've been headache free for 5 days now. If there truly is a God, I thank you. I didn't know how much more I could take.

Kathleen

Title: Re: How to know when it's ending?
Post by Kate on Sep 21st, 2010 at 12:06am
Mine have ended differently with each cycle. I have had some cycles, usually long lasting cycles, that fizzle out, but I have had some that end with a KIP 10 and that's it. Usually they seem to end suddenly for me, more times than not.

Title: Re: How to know when it's ending?
Post by burnt-toast on Sep 22nd, 2010 at 8:27am
They end?  How come no one's told me about this?  I'm never in the loop on the good information.  :-?

The only meaningful information I can offer is that I experinece one to three months, usually - but not always in July - Sept. where CH activity decreases significantly (sometimes to just a few attacks per week).  These periods are always preceeded by clear tapering down of frequency/severity.

On the other end - the reverse is true with a clear ramping up of frequency/severity during Oct. and November.

They never suddenly slow down or speed up. 

burnt-toast
(Tom)         

Title: Re: How to know when it's ending?
Post by Joni on Sep 23rd, 2010 at 1:12am
I don't say they are over until it has been 2 weeks.

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