Hello Everyone, I am new here and have lurked around but have never posted. I have a question that I was hoping someone could answer. Before I ask, let me give a little brief on myself.
My clusters started in 2003 and was chronic for almost 4 years. We finally broke the cycle and now I am episodic. I am a 59 year old male, and have had every side effect listed. About 2 weeks into my first episode I started sweating profusely at the hairline and eyebrow on the headache side, and this brings me to my question.
Has anyone heard of this kind of sweating? I am only asking because mine has never stopped. It doesn't matter what temperature it is or the humidity factor. This problem goes on for 24 hours a day 365 days a year, and matters not whether I am in a cycle or if I feel great. My neurologist has never seen this before.
Thank You

Never heard of it myself but that doesn't count for much. Be interesting to hear from others because individually we have some of the strangest signs and symptoms.

Since it is currently thought that CH stems from the Trigeminal and it in turn is a stimulator for the hypothalamus it stands to reason that your bodies thermometer is thrown off and causing you to sweat even though you may not be hot enough to sweat.

Quote:

The hypothalamus (from Greek ὑπό = under and θάλαμος = room, chamber) is a portion of the brain that contains a number of small nuclei with a variety of functions. One of the most important functions of the hypothalamus is to link the nervous system to the endocrine system via the pituitary gland (hypophysis). The hypothalamus is located below the thalamus, just above the brain stem. In the terminology of neuroanatomy, it forms the ventral part of the diencephalon. All vertebrate brains contain a hypothalamus. In humans, it is roughly the size of an almond. The hypothalamus is responsible for certain metabolic processes and other activities of the autonomic nervous system. It synthesizes and secretes certain neurohormones, often called hypothalamic-releasing hormones, and these in turn stimulate or inhibit the secretion of pituitary hormones. The hypothalamus controls body temperature, hunger, thirst,[1] fatigue, and circadian cycles.

And...

You may want to ask your doc about "Secondary chronic cluster headache due to trigeminal nerve root compression"

Quote:

Mjåset C, Bjørn Russell M. Secondary chronic cluster headache due to trigeminal nerve root compression. Acta Neurol Scand: DOI: 10.1111/j.1600-0404.2010.01322.x. © 2010 The Authors Journal compilation © 2010 Blackwell Munksgaard. A 50-year-old woman had a gradual onset of chronic headache located in the right temporal region and a burning sensation in the root of the tongue which over a year evolved into chronic cluster headache with a milder chronic headache in-between the severe cluster headache attacks. A cerebral magnetic resonance imaging (MRI) showed vascular compression of the trigeminal nerve root on the pain side. Neurosurgery microvascular decompression relieved the patient?s chronic cluster headache, the chronic intermittent headache and the burning tongue sensation. The effect was persistent at a 1 year follow-up. Patients with atypical symptoms of cluster headache should be examined with cerebral MRI angiography of arteries and veins to exclude symptomatic causes.

I would agree with Ginger's post that this definitely needs further eval and even possibly referral to a tertiary care center such as your state university. 

Ongoing sympathetic nervous system symptoms in such a localized and defined pattern may imply secondary nerve damage from an as of yet unknown problem.

Please, get follow up...

Good luck and keep us informed on how you're doing! 

Thanks for the info Ginger. I didn't know about the nerve compression. I know I was worried that I might blow a vein because my BP would skyrocket in a high KIP attack. Had a vascular MRI just in case and everything was good. Just one more thing to think about. Yay! lance

Good find Ginger!  We may have to elevate you to Bob Johnson's status! ;D  It's good to have some of you who know something or how to find them for those of us how have trouble finding our front door.

Jerry

Callico wrote on Sep 17^th, 2010 at 11:53am:

Good find Ginger!  We may have to elevate you to Bob Johnson's status! ;D  It's good to have some of you who know something or how to find them for those of us how have trouble finding our front door. Jerry

Thanks! 

And...

;D ;D ;D   
Bob's Shoes I could NEVER FILL!!  Have you see the size of his shoes???  I've seen boats smaller than that!  ;D ;D