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Cluster Headache Help and Support >> Cluster Headache Specific >> what treatment are you currently on?
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Message started by black on Sep 26th, 2010 at 3:20am

Title: what treatment are you currently on?
Post by black on Sep 26th, 2010 at 3:20am
preventative/abortive

you know for these mild migraines you have and you still are in denial to just take a pill and lay down.

and if you like plus a word maybe on how it is going
for example
good or bad or indifferent or i think it is time to rename ch to orgasm headaches cause in this way the more i get eventually the day could leave a stupid smile on my face that probably i did something useful
and it wasn't totally missed :D

so anyway just curious how others are doing :)

Title: Re: what treatment are you currently on?
Post by DennisM1045 on Sep 26th, 2010 at 8:12am
I'm going to take your question at face value ;)

Prevent: Testosterone replacement therapy
Abortive: Oxygen with Imitrex injections as a backup

May your hits be light on the Kip scale and your cycle end without further fanfare...

-Dennis-

Title: Re: what treatment are you currently on?
Post by Ginger S. on Sep 26th, 2010 at 9:25am
Prevent: Verapamil 360 - 480 mg per day
Abortive: Imitrex 6mg shots as needed.
*O2 Works but current Neuro will not prescribe it.



Title: Re: what treatment are you currently on?
Post by Kate in Oz on Sep 26th, 2010 at 9:39am
02, hot water bottle and imigran nasal spray  (have got the verap on hand if I decide I can't cope but don't like the fatigue).  Honestly the 02 works wonders and finding that that's pretty much all I need these days (fingers crossed)

Title: Re: what treatment are you currently on?
Post by barry_sword on Sep 26th, 2010 at 10:17am
Prevent: 480mg Verapamil daily.

Abortive: 100% o2 at 25 LPM with an o2ptimask.  8-)

Title: Re: what treatment are you currently on?
Post by Guiseppi on Sep 26th, 2010 at 10:30am
Prevent 1200 mg Lithium a day, blocks 60-70% of hits.

Abortive, 02 w/Sugar Free Red Bull and rarely trex shots.

Daily supplements: Magnesium, Zinc, Calcium Citrate with Vit D.

Joe

Title: Re: what treatment are you currently on?
Post by Brew on Sep 26th, 2010 at 10:45am
Preventative - fungus.

Abortive - Energy drinks and the occasional snort of O2.

Never above a K3, and then only for a few minutes. Life has once again become grand.

Title: Re: what treatment are you currently on?
Post by bonkers on Sep 26th, 2010 at 12:21pm
Good on you Brew! May we know your fungus frequency and for how long your current state of affairs has been the case for you?

Guiseppi: No question that you can quit taking all that stuff as I'm sure you'll never have another HA. It's over with. Kaput.

My son Michael:

Preventive: Fungus every 10 days or so. HA severity diminished by 80-90%.

Abortive: Methadone - not actually an abortive but rather the only substance found to somewhat mask the HAs. The probable reason for the fungus' lack of success in completely eliminating his HAs. Losing the major portion of his last Rx forcing complete withdrawal over the next week-10 days. Yeah! So sad that he lost his Rx - not.

Title: Re: what treatment are you currently on?
Post by Brew on Sep 26th, 2010 at 1:03pm
Last fungus treatment - May 28, 2010, 1g.

Since then I can count on one hand the number of times I've been hit (each one a K3 or less). Keep in mind, too, that I was chronic.

Title: Re: what treatment are you currently on?
Post by bonkers on Sep 26th, 2010 at 1:49pm

Hooray! Hooray!

Title: Re: what treatment are you currently on?
Post by Callico on Sep 26th, 2010 at 4:50pm
Prevent:  Testosterone Replacement therapy
                       about a 50%/50% reduction in hits and severity
                Kudzu  since I upped the dosage 7 weeks ago I
                        haven't use the O2, and only 4 energy drinks

Abortive:  Oxygen at 25lpm with an O2ptimask
                5hr Energy  (preference.  can use others also)


Title: Re: what treatment are you currently on?
Post by Tom_Thumb on Sep 26th, 2010 at 5:33pm
verapamil 480 mg daily
neurontin 900 mg daily
prednisone 80 mg tapering down to 10 mg in two day increments.
vicks varorub on nose all day.
oxygen
TRY THE VICKS IT IS AMAZING !!!

Title: Re: what treatment are you currently on?
Post by plateglass on Sep 26th, 2010 at 7:46pm
prevent: Testosterone replacement therapy, Calcium, Vit D3, Magnesium 3x's a day.  Also Melentonin 10 mg 30 min pre bedtime. 

abort: 02, Zomig nasal spray (last resort) 

PS  I started the calcium about 3 wks ago and cut my hits down about 70%  :)

Title: Re: what treatment are you currently on?
Post by -johnny- on Sep 26th, 2010 at 9:29pm

Brew wrote on Sep 26th, 2010 at 1:03pm:
Last fungus treatment - May 28, 2010, 1g.

Since then I can count on one hand the number of times I've been hit (each one a K3 or less). Keep in mind, too, that I was chronic.

[smiley=headbanger.gif]

Title: Re: what treatment are you currently on?
Post by bejeeber on Sep 26th, 2010 at 10:47pm
Preventative: fungal (I've tried it this summer for the first time - strong shadows were escalating, concerning me that a full blown episode could be imminent. It has pretty much killed the shadows, and it's not possible to know for sure whether it prevented an impending episode, but I intend to take maintenance doses in hopes of warding off future episodes).

For my last 2.5 month long episode 1 year ago:

Preventative: Neurontin 2400 mg a day (reduced number of hits by maybe 40%)

Abortive: Hi flow 100% O2, 1/2 dose (3 mg) imitrex injections or full dose inhaler when needed as a backup, deep breathing of freezing air (the freezing air can abort hits for me during the first week of an episode before the beast comes on really heavy, buying me time to get my O2 set up).

Number of full blown, full length hits I had to suffer through during that episode: zero.



Title: Re: what treatment are you currently on?
Post by Kate on Sep 27th, 2010 at 1:03am
Preventative: None, thinking of trying fungus

Abortive: 100% high-flow o2, occasionally DHE injections 1mg, or Migranal nasal spray.


I didn't realize so many people here were on testosterone replacement therapy!

Title: Re: what treatment are you currently on?
Post by MJ on Sep 27th, 2010 at 1:38am
Preventive;
   LSA, Rivea Corymbosa or Hawaiin baby woodrose seeds every now and then.
   Side affects; none.
Abortive;
   LSA containing seeds

Title: Re: what treatment are you currently on?
Post by Ray on Sep 27th, 2010 at 7:02am
Prevent: none - all have been ineffective
abort: O2, then imitrex SUB-Q

Ray

Title: Re: what treatment are you currently on?
Post by Lettucehead on Sep 27th, 2010 at 10:31am
This past cycle -

prevent - 240-360mg Verapamil, 25mg lamictal.
abortive - O2 mainly
supplements - magnesium, calcium with D, folic acid.

Usually, don't take lamictal during cycle, but doc wanted to limit the Verapamil secondary to the pregnancy.

Currently, still on the supplements (and will stay on them), but no prevents for almost a week and no hits and/or shadows for over a month!!!   ;D



Title: Re: what treatment are you currently on?
Post by Chad on Sep 27th, 2010 at 11:14am
Prevent: Rivea Corymbosa seeds (25-80) during cycle  every 5 days.  25 seeds every other month out of cycle.
Fungus is always in the freezer as my level  II back up.
The seeds do the trick though (knock on wood).

Abortive: 15 LPM Oxygen

Title: Re: what treatment are you currently on?
Post by mikstudie on Sep 27th, 2010 at 11:19am
Nothing right now,im pain free..

Prevent: When in cycle Melatonin at night.In 10 years I have had only two daytime hits.


Abortive: 12 oz Red Bull and two quick cigarettes oh and of course my walk around the neighborhood. My doctor said the smoking will restrick blood vessels and thats what we need during an attack. I do have Imitrex nasal spray if I get a bad hit only needed two the last cycle.



Title: Re: what treatment are you currently on?
Post by bejeeber on Sep 27th, 2010 at 12:11pm

Lettucehead wrote on Sep 27th, 2010 at 10:31am:
Currently, still on the supplements (and will stay on them), but no prevents for almost a week and no hits and/or shadows for over a month!!!   ;D


Yay Lettucehead!!  [smiley=2vrolijk_08.gif]

Title: Re: what treatment are you currently on?
Post by black on Sep 27th, 2010 at 1:33pm

Quote:
TRY THE VICKS IT IS AMAZING


yes i have them all over the place.it really helps with the nose stuff for those moments during crisis and it's innocent i think no effects at all, no matter how many times i have use it.

we are talking about the same thing right?
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pf wishes everyone :)


Title: Re: what treatment are you currently on?
Post by Agostino Leyre on Sep 27th, 2010 at 1:40pm
Preventive measures - melatonin at night, sometimes 4htp and magnesium during the day.

Abortive measures - O2, excedrin migraine (usually the wallgreens brand) amerge or zomig, depending on what my ins co is paying for at the time, uber-hot steamy showers, ice packs, energy drinks, coffee and 4-way nasal spray.

Title: Re: what treatment are you currently on?
Post by Callico on Sep 27th, 2010 at 3:48pm

Lettucehead wrote on Sep 27th, 2010 at 10:31am:
This past cycle -

prevent - 240-360mg Verapamil, 25mg lamictal.
abortive - O2 mainly
supplements - magnesium, calcium with D, folic acid.

Usually, don't take lamictal during cycle, but doc wanted to limit the Verapamil secondary to the pregnancy.

Currently, still on the supplements (and will stay on them), but no prevents for almost a week and no hits and/or shadows for over a month!!!   ;D



Wonderful news!!!

Now you just concentrate on taking care of that little one.  We'll be happy to wait for the pictures till the time is right! :)

Jerry

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