Post by Mattrf AKA BigMatt on Oct 27th, 2010 at 6:17pm
I have a Google search setup to find anything with SUNCT in it since I am always looking for anything new to try and break my cycle or make this monster go away. I fallowed a link on ONS implants on SUNCT since I did not know what it was and came across this and was wondering since they said it had good results with CH if any of you have heard of it or tried it for CH? Here is what the article I found said:
1. Correspondence to: Massimo Leone, MD, Istituto Nazionale Neurologico Carlo Besta, via Celoria 11, 20133 Milano Italy E-mail: leone@istituto-besta.it
• Received February 17, 2004.
• Revision received May 10, 2004.
• Accepted May 21, 2004.
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Summary
We provide a detailed case history of the first patient to receive bilateral hypothalamic stimulation to control severe bilateral chronic intractable cluster headaches initially occurring mostly on the left. These attacks were accompanied by life-threatening hypertensive crises and a grave deterioration in the patient's psychological state. Destructive surgery to the left trigeminal was absolutely contraindicated. Electrode implantation and continuous stimulation of the left posterior inferior hypothalamus resolved the left attacks. After four destructive operations on the right trigeminal, right side attacks recurred. Electrode implantation (with continuous stimulation) to the right resulted in immediate resolution of the right side pain and the hypertensive crises. On several occasions, both known and unknown to the patient, the stimulators were turned off: in all cases, crises reappeared and in all instances disappeared relatively quickly after turning stimulation back on. Pain crises have never reappeared when ipsilateral stimulation is ongoing. The only side effects were observed during long-term bilateral stimulation, consisting of transient vertigo and bradycardia. After 42 months (left) and 31 months (right) of follow-up, the patient remains crisis free without the need for pharmacological prophylaxis.
Here is the link to the page since the case history was very long.
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1. Correspondence to: Massimo Leone, MD, Istituto Nazionale Neurologico Carlo Besta, via Celoria 11, 20133 Milano Italy E-mail: leone@istituto-besta.it
• Received February 17, 2004.
• Revision received May 10, 2004.
• Accepted May 21, 2004.
Next Section
Summary
We provide a detailed case history of the first patient to receive bilateral hypothalamic stimulation to control severe bilateral chronic intractable cluster headaches initially occurring mostly on the left. These attacks were accompanied by life-threatening hypertensive crises and a grave deterioration in the patient's psychological state. Destructive surgery to the left trigeminal was absolutely contraindicated. Electrode implantation and continuous stimulation of the left posterior inferior hypothalamus resolved the left attacks. After four destructive operations on the right trigeminal, right side attacks recurred. Electrode implantation (with continuous stimulation) to the right resulted in immediate resolution of the right side pain and the hypertensive crises. On several occasions, both known and unknown to the patient, the stimulators were turned off: in all cases, crises reappeared and in all instances disappeared relatively quickly after turning stimulation back on. Pain crises have never reappeared when ipsilateral stimulation is ongoing. The only side effects were observed during long-term bilateral stimulation, consisting of transient vertigo and bradycardia. After 42 months (left) and 31 months (right) of follow-up, the patient remains crisis free without the need for pharmacological prophylaxis.
Here is the link to the page since the case history was very long.
START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!! You need to
or END PRINTPAGE