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Cluster Headache Help and Support >> Cluster Headache Specific >> A few painfree nights
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Message started by starlight on Dec 6th, 2010 at 4:04pm

Title: A few painfree nights
Post by starlight on Dec 6th, 2010 at 4:04pm
I am going back to my headache doctor tomorrow for a 1 month follow-up.  I think he will be happy that since after about a week of adding 240 mg of verapamil to 12 mg melatonin (which he said to take) and 3-4 benadryl (which is a tip I learned here), the 4 nightime hits first shifted to morning with 2 on waking up and now I have had 4 painfree nights and mornings.  I am still getting twinges in my head during the day but no major shadowing.  My cycle started out worse than ever and was kicking my butt from day one with 1-2:30 am wake up call and then 4 HAs.  Anyway, I'm not even sure which of the things I am taking is doing the trick, maybe it is the combination but I only take the verapamil at night (I tried taking it in the day and could not handle it but taking it at night I find I don't have any side effects.)
Anyway, thank you guys for all the tips.  My doctor told me to wait 2 full weeks past the point of have ANY head pain (twinges, shadows, etc.) to stop taking the verapamil--my cycles are 3 1/2 mos long so I guess I have a ways to go.  Hope this lasts.

Title: Re: A few painfree nights
Post by starlight on Dec 6th, 2010 at 4:07pm
Oh...my headache doc told me I could go up higher on the verap but I haven't had to.  I think the combo of the 3 things is helping.

Title: Re: A few painfree nights
Post by jared on Dec 6th, 2010 at 4:42pm
I've had similar results with the melatonin and verapamil combo.  3 pf weeks with only a couple of nights interrupted.  Considering this is my most gruesome cycle I've ever withstood, a great light it is at the end of the tunnel.  I think there might be something to the verap/melatonin mix.

Title: Re: A few painfree nights
Post by starlight on Dec 6th, 2010 at 8:35pm
Jared,

That is so great that you are having such good results with that combination.  I was so depressed when my cycle started out b/c I couldn't believe the frequency of HAs which was definitely going to increase--I know what you mean by light at the end of the tunnel.  It is such a relief for now to have this painfree time--keep waiting for the HAs to break through but as of now this really seems to be doing the trick.  Hope you continue with the good results!

Title: Re: A few painfree nights
Post by Kate in Oz on Dec 7th, 2010 at 6:01am
That is fantastic news for both of you  [smiley=shore.gif]  Nothing like some good news to lift the mood!!   Keeping my fingers crossed for you both that your cycles are finally coming to an end.  Woohoo!

Title: Re: A few painfree nights
Post by starlight on Dec 7th, 2010 at 10:48am
Thanks Kate!  Can't complain--had a HA break through when I woke up today but went away fast with O2.  So guess they're not gone completely but I'll take the sleep.  Hope your cycle goes away soon--what a relief it will be for all of us to finally be out of cycle with the beast hopefully gone away for a LONG time!

Title: Re: A few painfree nights
Post by mikstudie on Dec 7th, 2010 at 10:59am
AWSOME NEWS!!!!

Title: Re: A few painfree nights
Post by Guiseppi on Dec 7th, 2010 at 3:09pm
That's the same rule of thumb I use, pain free for 2 weeks, then I start backing off my prevent....keeping 02 close at hand! Great news, sounds like you're winding down! :)

Joe

Title: Re: A few painfree nights
Post by starlight on Dec 7th, 2010 at 7:17pm
Thanks Joe--yeah my doc kept reiterating that today to wait a full 2 weeks of no head pain/twinges, hope I'm winding down, usually go 3 1/2 months but sure feels like things are getting a lot better.

Title: Re: A few painfree nights
Post by starlight on Dec 7th, 2010 at 7:20pm
Thanks Mikstudie!  Feeling good right now, thankful for sleep!

Title: Re: A few painfree nights
Post by jared on Dec 9th, 2010 at 8:07am
Amen!!!  I will 2nd that, except for my dog:P  But what can you do, right?

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