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Cluster Headache Help and Support >> Cluster Headache Specific >> Raising awaress/treatment (video link)
http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1292527808

Message started by B on Dec 16th, 2010 at 2:30pm

Title: Raising awaress/treatment (video link)
Post by B on Dec 16th, 2010 at 2:30pm
Hi All!

I'm currently a supporter and serial lurker with a few posts...
Anyway START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or RegisterEND PRINTPAGE  this was just on our national news here in the UK..  It's about Deep brain stimulation treatment.

I have heard about this being done before but not much about it, but either way it's always interesting when something is on main stream TV to raise awareness of the condition and thought I'd share it with you guys who may not have seen as you are across the pond!
(I hope you can view it there)

Bex

Title: Re: Raising awaress/treatment (video link)
Post by Callico on Dec 16th, 2010 at 7:47pm
A gram of shrooms doesn't mess with the brain for as long, leaves no scars, and has a much higher rate of success.  Just sayin'

Jerry

Title: Re: Raising awaress/treatment (video link)
Post by Brew on Dec 16th, 2010 at 8:10pm
Not near as expensive, either.

Title: Re: Raising awaress/treatment (video link)
Post by bonkers on Dec 16th, 2010 at 11:36pm

At least DBS is legal.

Title: Re: Raising awaress/treatment (video link)
Post by B on Dec 17th, 2010 at 3:12am
Only passing on what I saw! Thought it may interest someone.

Title: Re: Raising awaress/treatment (video link)
Post by bonkers on Dec 17th, 2010 at 3:54am
Hi Bex,

I apologize for making light of your post. It's gratifying to see evidence that our shared malady is getting better known. I don't really even share; I support my son who does. Thanks for the good news.

Ron

Title: Re: Raising awaress/treatment (video link)
Post by Jimi on Dec 17th, 2010 at 11:16am
Yes...to me the bottom line is that clusterheadaches received a lot of press to a very large venue.

Thanks Bex.

Title: Re: Raising awaress/treatment (video link)
Post by Callico on Dec 17th, 2010 at 1:43pm
Bex,

I didn't mean to make light of your post either.  I was just short on time and just put in a little response.

I am very grateful for those in the medical community who are doing something for CH, and I'm very grateful when the new media actually reports something about it, albeit abbreviated and usually not totally accurate.

A few years ago I was very interested in the DBS surgery and then later the Occipital Nerve Stimulation surgery, but the more I looked into it the less interested I have become.  ONS may be the route I have to go in the future, but I've also been finding the research into BOL, psylocybin and other related matters of much more interest given their non-invasiveness and their success ratio.  A 60% percent rate of improvement, not stopping CH doesn't excite me all that much given the tremendous risks and suffering required for the help.  It seems to me an 85% chance of total relief for months without someone having to mess with my brain tissue is a much better option.  Cheaper too!

Jerry

Edit to add:  I am appreciative that you brought this to our attention.  Thanks.

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