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Cluster Headache Help and Support >> Getting to Know Ya >> Steroids and Phylactiocs
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Message started by crosspescara on Jan 21st, 2011 at 9:21am

Title: Steroids and Phylactiocs
Post by crosspescara on Jan 21st, 2011 at 9:21am
Hi Old timers,

I saw the Nuero yesterday. He reckons that Im getting pretty near the end of my current cycle (ticker tapes, champagne, balloons etc). What he has done is write to my local gp and say that if there is another cycle he would want me to try Steroids and Phylatics rather than imitrex / sumatritan.

Anyone come across this before?

Title: Re: Steroids and Phylactiocs
Post by George on Jan 21st, 2011 at 9:55am
Steroids, like prednisone, I understand.  A prednisone taper is often used in the short term as a transitional medication to halt attacks until a longer-term preventive, such as verapamil, has time to begin working.

I don't know what phylatics are.   :-?

Best,

George

Title: Re: Steroids and Phylactiocs
Post by Guiseppi on Jan 21st, 2011 at 10:48am
Could he have said prophylactics, (sp?) as in preventative treatments? I use lithium as my prevent, but it takes 10-14 days to reach a therapeudic level. So I do a 14 day prednisone taper, to get me thru the first few weeks. For a lucky small percentage of CH'ers, a prednisone taper will halt an entire cycle.

I'm all for dumping the trex as I'm convinced, as are several other members of this board, that trex extends cycles. No scientific studies to back that, just personel experience. I would push for the steroid taper, with a preventative such as verapamil, and then get him to prescribe the oxygen for your abortives. It's sure reduced the beasts power over my life!

Joe....who is not a doctor....but often tries to talk his wife into letting him play one! ;D

Title: Re: Steroids and Phylactiocs
Post by crosspescara on Jan 21st, 2011 at 4:15pm
defo said prophylactics excuse my spelling.

The Neuro also said its time to bin the Sumatriptan so gone cold turkey today. Result, level 3 all day. Certain its the effects working their way out my system

Title: Re: Steroids and Phylactiocs
Post by Brew on Jan 21st, 2011 at 4:54pm
Bin?

Title: Re: Steroids and Phylactiocs
Post by Guiseppi on Jan 21st, 2011 at 4:59pm
I'll occasionally pop an excederin migrain for those nasty  shadows. I stress the occasionally as repeated use just causes rebounds.

4way nasal spray, that's the brand name, also helps me with shadows. A good snort up the nostril of the affected side. Have you tried strong coffee, or better yet an energy drink with caffiene and tauring, like monster or red bull? They help me with attacks and with shadows.

Joe

(Bin...sounds European for dump????) ::)

Title: Re: Steroids and Phylactiocs
Post by Brew on Jan 21st, 2011 at 5:06pm
I don't assume anything anymore.

Title: Re: Steroids and Phylactiocs
Post by Brew on Jan 21st, 2011 at 5:06pm
Tauring?

Title: Re: Steroids and Phylactiocs
Post by Guiseppi on Jan 21st, 2011 at 5:10pm
DAMNIT!!!!

taurine......I try so hard to proof read my posts!!!!

Title: Re: Steroids and Phylactiocs
Post by Jeannie on Jan 21st, 2011 at 5:10pm

Brew wrote on Jan 21st, 2011 at 5:06pm:
Tauring?

LOL!!!!    [smiley=crackup.gif]

Title: Re: Steroids and Phylactiocs
Post by Brew on Jan 21st, 2011 at 5:13pm

Guiseppi wrote on Jan 21st, 2011 at 5:10pm:
DAMNIT!!!!

taurine......I try so hard to proof read my posts!!!!

I guess you get an "A" for effort, then. ;)

Title: Re: Steroids and Phylactiocs
Post by Guiseppi on Jan 21st, 2011 at 5:35pm
:P  For you Jeannie!!!
Thank you Brew!

Joe....hukt awn fonix werkt fer mee. ;D

Title: Re: Steroids and Phylactiocs
Post by his wife on Jan 21st, 2011 at 7:55pm

Guiseppi wrote on Jan 21st, 2011 at 5:35pm:
Joe....hukt awn fonix werkt fer mee. ;D


;D  ;D

Title: Re: Steroids and Phylactiocs
Post by crosspescara on Jan 24th, 2011 at 5:56am
Hi Brew,

Bin - short for Dustbin, according to google translate English to American = Trashcan or Trash.

Two countries separated by a common language! ;)

Title: Re: Steroids and Phylactiocs
Post by Guiseppi on Jan 24th, 2011 at 9:34am
Two countries separated by a common language!  


Now that thar is funny stuff!!! ;D ;D

Joe 

Title: Re: Steroids and Phylactiocs
Post by Ant on Jan 25th, 2011 at 9:00am
I agree Caffeine is definitely good for Shadows. But how about a full blown CH, does pounding an energy drink or something full of caffeine have any effect on it?

Title: Re: Steroids and Phylactiocs
Post by Guiseppi on Jan 25th, 2011 at 10:14am
Those who have success aborting/reducing attacks with energy drinks seem to get the best result from slamming them down at the first sign of an attack. Once an attack gets established, I have trouble beating them back, even with oxygen. If an attack gets above a 6 or 7, imitrex injectable is about the only thing that'l l provide relief. The trick seems to be catching it before it starts to ramp up the kip scale.

Joe

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