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Cluster Headache Help and Support >> Medications,  Treatments,  Therapies >> Could the O2 experts have a look
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Message started by GaryW on Jan 22nd, 2011 at 4:30am

Title: Could the O2 experts have a look
Post by GaryW on Jan 22nd, 2011 at 4:30am
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for the benefits (if any?) for us 'over the water' sufferers please?
From what I have read here, it may be of no practical use....
Thanks in advance

Regards
Gary

Title: Re: Could the O2 experts have a look
Post by Brew on Jan 22nd, 2011 at 8:21am
Marketing gimmick. Awfully damned expensive.

I could possibly see keeping the large one (110 litres) for an emergency, but at a flow rate of 25 lpm, this would only last 4 minutes. And if the mask isn't a non-rebreather, well, you would have pissed away well over $100.

A medical grade E tank holds 6 times this much compressed O2, and is much cheaper.

Title: Re: Could the O2 experts have a look
Post by Guiseppi on Jan 22nd, 2011 at 9:58am
Yeah I'm with Brew. Sounds like a gimmick to mark up the cost of 02 about 1000%. I don't know about your  02 prescribing rules over there but it appears a little tougher for you guys to get 02. I'd look at the welding oxygen route, many on the board have gone that route, it's cheap and is the same 02 they put in medical tanks. It would cost you s small fraction of twhat these guys are charging.

Joe

Title: Re: Could the O2 experts have a look
Post by GaryW on Jan 22nd, 2011 at 9:58am
Thanks for the info Brew, Just wanted to know if they were any good and reading up more on the flow rate, I now understand what you are saying...
Will be seeing my Doc next week sometime and will ask for the prescription and see what his reaction is....
Cheers
Gary

Title: Re: Could the O2 experts have a look
Post by GaryW on Jan 22nd, 2011 at 10:02am

Guiseppi wrote on Jan 22nd, 2011 at 9:58am:
Yeah I'm with Brew. Sounds like a gimmick to mark up the cost of 02 about 1000%. I don't know about your  02 prescribing rules over there but it appears a little tougher for you guys to get 02. I'd look at the welding oxygen route, many on the board have gone that route, it's cheap and is the same 02 they put in medical tanks. It would cost you s small fraction of twhat these guys are charging.

Joe


Hi Joe,
Will start making enquires re welding route then, and let you know the results....
I need some help as soon as I can get it. Its not the pain, it is the disruption to my sleep which is killing me when I am on shift work!

Best wishes and thanks to you both for your replies!

Gary

Title: Sizes we can get in the UK
Post by GaryW on Jan 22nd, 2011 at 10:10am
Sizes...
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What is the common size you Guys use?
And how long does it last?

Cheers
Gary

Title: Costs etc
Post by GaryW on Jan 22nd, 2011 at 10:44am
More info

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Is this the sort of mask?

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And what am I looking for here?

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Welding regulator

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Sorry to be a nuisance!

Thanks

Gary

Title: Re: Could the O2 experts have a look
Post by Batch on Jan 23rd, 2011 at 7:38am
Even with flow rates that support hyperventilation, the average abort of a cluster headache with oxygen therapy is going to consume between 125 to 175 liters depending on the pain level and how soon you start.

I wouldn't wast my time or money on "pure oxygen in a can." 

I've invested in 0 to 60 liter/minute regulators, an O2PTIMASK™ kit and a demand valve.  They work very fast, are very effective, and here in the U.S., if you own your own regulators and mask, the monthly oxygen content costs are reduced significantly.

Take care,

V/R, Batch

Title: Re: Could the O2 experts have a look
Post by GaryW on Jan 23rd, 2011 at 4:30pm
Thanks for the info Batch!
Will look further into what's available over here!

A couple of my Favourite planes!

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Regards
Gary

(Off to bed!)

Title: Re: Could the O2 experts have a look
Post by Linda_Howell on Jan 23rd, 2011 at 5:12pm

Quote:
it is the disruption to my sleep which is killing me when I am on shift work!


While I understand that in the UK Melatonin needs a prescrition from a doctor, over here it does not and is sold at grocery stores in the vitamin aisle.  Melatonin really does help with the night-time hits, so maybe it is worth your while to ask your physician for a script for it.

   Linda

edited to add:   I just now read the last line of the poem underneath your posts.  You DO know that alcohol is a trigger, right?

Title: Re: Could the O2 experts have a look
Post by Batch on Jan 24th, 2011 at 6:56am
Gary,

You've got some classic fighters still flying at IWM Duxford.

Check Six,

V/R, Batch

Title: Re: Could the O2 experts have a look
Post by GaryW on Jan 24th, 2011 at 7:26am

Linda_Howell wrote on Jan 23rd, 2011 at 5:12pm:

Quote:
it is the disruption to my sleep which is killing me when I am on shift work!


While I understand that in the UK Melatonin needs a prescrition from a doctor, over here it does not and is sold at grocery stores in the vitamin aisle.  Melatonin really does help with the night-time hits, so maybe it is worth your while to ask your physician for a script for it.

   Linda

edited to add:   I just now read the last line of the poem underneath your posts.  You DO know that alcohol is a trigger, right?


Hi Linda, nice to meet you and Thanks for the advice!
Have got a lot to discuss with my Doc, next week and should
have enough info to go the welding route if he decideds not to prescribe!

Yes Linda, I know only too well! It is my attempt at 'twisted irony' in that with my upcoming Divorce going to last till
nearly to 2012, I really need the Vod to stop me thinking sometimes and take the 'sharp corners' off my day (not every day!)

Sorry for confusing you!
Regards
Gary

Title: Re: Could the O2 experts have a look
Post by GaryW on Jan 24th, 2011 at 3:32pm

Batch wrote on Jan 24th, 2011 at 6:56am:
Gary,

You've got some classic fighters still flying at IWM Duxford.

Check Six,

V/R, Batch


Hi Batch,
I consider myself lucky enough to have had the Privilege and Honour to have flown
The de Havilland DH 82 Tiger Moth (Thanks Lindy!) for half an hour at Duxford...
I had only flown commercial before this flight and to be honest Batch, I was scared shitless for the first five minutes! It was after all, made in the '30's!
At the end I managed a banking turn to the right and, as we say here, "I was chuffed to mintballs"!
That was my one and only flight in a 'Real' Airplane!
Here I am
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Here is their website
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And the American Air Museum
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is AWESOME!

Happy Memories from
Gary

Title: Re: Could the O2 experts have a look
Post by vietvet2tours on Jan 24th, 2011 at 4:28pm
Cool you look like my favorite Beagle.

tmth2.jpg (33 KB | 0 )

Title: Re: Could the O2 experts have a look
Post by AussieBrian on Jan 24th, 2011 at 6:34pm

Batty wrote on Jan 22nd, 2011 at 10:02am:
...it is the disruption to my sleep when I am on shift work!


Many of us shifties have found it's the swing shift that's the killer. Perhaps you can discuss it with the roster monster to work all nights, or all afternoons or whatever.

Anyway, what illiterate put the 'f' in shift-work to begin with?

Title: Re: Could the O2 experts have a look
Post by crosspescara on Jan 25th, 2011 at 3:37pm
Hi GaryW, GarryL here again.
My Wife couldn't bear seeing me rolling round the floor curled up crying like a baby anymore so she got onto CH.com (thanks guys) discovered the value of oxygen and bugged the hell out of the local surgery until they made a call to a neurologist. He immediately TOLD them to prescribe oxygen.
I currently got the proper re-breather masks and 4 - 2,500Lt tanks (i think that right, not quite sure how to read it) max flow 15l per min, usually get a couple of hours out of a tank. At its worst I was going thru a tank a day, gas company were brilliant delivery replacements within 24hrs.
Secondly, on 16th jan got a Neuro appointment booked on NHS for 7th feb, said yeah right, got my cheque book out and saw him next day

Title: Re: Could the O2 experts have a look
Post by GaryW on Jan 25th, 2011 at 3:49pm
Hi Garry!
Thanks for the info, I am in work having mechanical probs at the mo (makes a change from Hypothalamic ones!)
so I cant give you a decent reply, but will in the morning!

Any chance of your Lovely Wife ringing my Surgery? !!  ;D

Cheers
and glad you got some O2!

Gary

Title: Re: Could the O2 experts have a look
Post by crosspescara on Jan 26th, 2011 at 9:06am
Gary

I use the HX tank
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Of course I meant non-rebreather mask!

Title: Re: Could the O2 experts have a look
Post by GaryW on Jan 26th, 2011 at 11:41am
Garry, Thanks very much for that info!
Now getting an idea of what to look for!
Get back to you in a couple of hours!

Cheers
Gary

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