Hello All,

Excuse my lack of intro but Id rather cut to the chase , as I have other issues that are making this difficult as it is.

What i wanted to ask simply ( because im in the uk where nothing is cheap ) is what experince folk here have had with any of the sellers who are selling concentrators like the one below on ebay ?

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I dont just want to use this for CH , but other issues too you see ( connective tissue etc ) as its seems to help , and is far more cost effective than anything i could get here - even if my doctor was willing to accommodate it.

I dont really know anything about this brans or indeed most brands so any advice would be welcomed , as I dont have big budget to really play with.

I do have account with START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or END PRINTPAGE , so if there are other brands in the US i could try that would be better , then theres possibility I could get it shipped over too.

thanks

melon

1-5 liters of O2 is likely to do nothing for CH.A minnimum of 15L is more likely to help.Many of us use 25LPM or higher. For more replies from ppl that know 'how it all works' in the UK you may want to post with the subject "Help,O2 users in the UK"

wrote on Jan 26^th, 2011 at 7:46pm:

1-5 liters of O2 is likely to do nothing for CH.A minnimum of 15L is more likely to help.Many of us use 25LPM or higher. For more replies from ppl that know 'how it all works' in the UK you may want to post with the subject "Help,O2 users in the UK"

Ditto to what just-squiggles posted!

The concentrator is not effective for CH.  Two reasons: 1) the flow is to low for relief except for a very few of us.  2)  it will only generate approximately 80% oxygen and you need 100% O2 for it to work. 

I can't speak to the quality for other uses.  Check the feedback on the dealer and see what others have said about it and him.

Jerry

You can make an oxygen concentrator work very effectively to abort your cluster headaches, but you're going to need a 40 gallon reservoir bag and have it filled ahead of time.

The following link will take you to a thread and a post I put up on how to make a 40 gallon reservoir bag:  START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or END PRINTPAGE

Hope this helps.

Take care,

V/R, Batch

Callico wrote on Jan 26^th, 2011 at 11:49pm:

The concentrator is not effective for CH.  Two reasons: 1) the flow is to low for relief except for a very few of us.  2)  it will only generate approximately 80% oxygen and you need 100% O2 for it to work.  I can't speak to the quality for other uses.  Check the feedback on the dealer and see what others have said about it and him. Jerry

Well according to the feedback the seller seems legit .

I mean if it helped with my joints etc it would be something but as you say 80 % is not enough for Ch .

The interesting thing is that by helping my connective tissue problems I do seem to be able to " infleuence " my Ch ( In fact Id say even more than that if I was the cocky sort )
, Im not sure if this is the norm here ( I assume not )
but perhaps this might allow me more leyway ?

The only cocentrators you can hire here Ive seen ( the same ones that are affilated with ouch forum ) are 300 for 2 wks , and still not at required amounts you mention above.

melon

Batch wrote on Jan 27^th, 2011 at 3:36am:

You can make an oxygen concentrator work very effectively to abort your cluster headaches, but you're going to need a 40 gallon reservoir bag and have it filled ahead of time. The following link will take you to a thread and a post I put up on how to make a 40 gallon reservoir bag:  http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1284463715 Hope this helps. Take care, V/R, Batch

Thanks Batch , thats really great write up youve done there.

I was just having a look on ebay ( uk that is ) to see if there was any cheap suppliers of tanks and saw this .

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Considering I paid over half of that for 6.9 lit of thatfor this ( START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or END PRINTPAGE )that looks a pretty good price.

m

melon wrote on Jan 27^th, 2011 at 9:24am:

Batch wrote on Jan 27th, 2011 at 3:36am: You can make an oxygen concentrator work very effectively to abort your cluster headaches, but you're going to need a 40 gallon reservoir bag and have it filled ahead of time. The following link will take you to a thread and a post I put up on how to make a 40 gallon reservoir bag:  http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1284463715 Hope this helps. Take care, V/R, Batch Thanks Batch , thats really great write up youve done there. I was just having a look on ebay ( uk that is ) to see if there was any cheap suppliers of tanks and saw this . START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or END PRINTPAGE Considering I paid over half of that for 6.9 lit of thatfor this ( START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or END PRINTPAGE )that looks a pretty good price. m

NO!!  That ain't good. 

       Potter

Potter's right.  That's DEFINITELY not the way to go.

:o

Best,

George

George wrote on Jan 27^th, 2011 at 11:04am:

Potter's right.  That's DEFINITELY not the way to go. :o Best, George

Which part , the 40 gallon ( im trying to remember how big that is ) bag or soemthing else ?

m

The disposable gas welding bottle for CO2 and Argon.

George wrote on Jan 27^th, 2011 at 11:24am:

The disposable gas welding bottle for CO2 and Argon.

That would cure the problem.  It would killya.

         Potter

Posted this yesterday

I use the HX tank
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Have a scan thru the BOCMedical site, no idea what the costs are, Ive been lucky cause my local gp surgery prescribed it for me

Potter wrote on Jan 27^th, 2011 at 11:38am:

George wrote on Jan 27th, 2011 at 11:24am: The disposable gas welding bottle for CO2 and Argon. That would cure the problem.  It would killya.          Potter

Woops, I did put in 02 .

melon

u got to be british
u got irony, understatement and humour in a reply by just using one word

woops

George wrote on Jan 27^th, 2011 at 11:04am:

Potter's right.  That's DEFINITELY not the way to go. :o Best, George

well, its one way to go

I dont see any welding cannisters thats pure 02 over here , even that one on the link crosspescara gave me was 5% co I think .



m

Call the folks at OUCH-UK.  They know the ropes on how to obtain oxygen therapy for your cluster headaches.  Here's their link:  START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or END PRINTPAGE

As far as the link you provided, the UK has standards for filling oxygen cylinders so trying to take a cylinder for another gas like Argon, CO2, a mix of the two. or any other gas that's not medical grade oxygen to be filled with oxygen will be a non-starter...  They won't fill it and you'll be out the cost of a useless cylinder.

Take care,

V/R, Batch