Post by Chris H on Jan 30th, 2011 at 12:44pm
Hi Folks,
I'm a firm believer that we need to spread the word far and wide about cluster headache and the more web presence we have, the better. I've recently put up a new site for cluster headache patients and sufferers that a fair bit different than ch.com. The focus of the site is on fast access to information about ch and also sharing the experience of CH sufferers in a concise format, called CH Diaries. The idea is to provide a "book of experience" from real CH sufferers where each person has their own "diary" web page.
The site also includes a chat page and a forum, but I'm not clear yet if another forum makes sense. There is tremendous experience here at ch.com that benefits many. There's no intent to detract from that.
What I do need help with is the Diary pages. If some members here would share their experience at the site, it will certainly be of help to other CH sufferers. Please give it a try. The site is START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!! You need to
or 
END PRINTPAGE
START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!! You need to or END PRINTPAGE
Also, I think this article about disability may be helpful to the members here. START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!! You need to or END PRINTPAGE
START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!! You need to or END PRINTPAGE
-Chris
modified to include URL tags for links.
I'm a firm believer that we need to spread the word far and wide about cluster headache and the more web presence we have, the better. I've recently put up a new site for cluster headache patients and sufferers that a fair bit different than ch.com. The focus of the site is on fast access to information about ch and also sharing the experience of CH sufferers in a concise format, called CH Diaries. The idea is to provide a "book of experience" from real CH sufferers where each person has their own "diary" web page.
The site also includes a chat page and a forum, but I'm not clear yet if another forum makes sense. There is tremendous experience here at ch.com that benefits many. There's no intent to detract from that.
What I do need help with is the Diary pages. If some members here would share their experience at the site, it will certainly be of help to other CH sufferers. Please give it a try. The site is START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!! You need to
or END PRINTPAGE START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!! You need to
or END PRINTPAGEAlso, I think this article about disability may be helpful to the members here. START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!! You need to
or END PRINTPAGESTART PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!! You need to
or END PRINTPAGE-Chris
modified to include URL tags for links.