hi guys
well where do I begin I had my first attack in 1995
after receiving vaccines in the air force. the clusters where episodic for years then in 2003 they turned chronic and have remained I have at least 2 per day and at certain times of the year I have as many as 7. as far as drugs It seems I've taken them all at one time or another verapamil , steroids, imetrex
after three years on o2 it stopped working. I've done
, thc
pills I can't even remember all the drugs I've taken over the years I even saw a quack who said I had CPH and gave me large doses of indomethacin till it gave me a GI bleed.
I spent $1000. on a chiropractor. I tried the easy way out
once (suicide) but I didn't succeed. my wife has walk twice and came back. so here I sit 8 years
later just surviving not living. right now I'm taking Ritalin and I know I'm addicted to oxycodone.
I'm not sure why I'm writing I guess I just wanted to share I'm not looking for sympathy or help
most of the time I just want to be left the hell  alone. oh yeah I'm 51 years old and felt my first
attack when I was 35 if you would have told me this was my future I would have said get F. k out

Welcome to the board, you're in a rough spot. 2 suggestions:

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Read this link. HOW we use 02 has changed quite a bit. People for whom 02 wasn't working are back to 6-10 minute aborts.

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Then go to this site. They use less traditional methods to treat CH, including mushrooms, RC seeds, quite a bit of stuff for you to investigate there. They have been cranking out some amazing success stories for members for whom traditional meds were failing.

Then stick around and start reading like crazy. HOW we use many of the traditional meds has changed. There are  alot of new regimens that are showing promise. We'll help you any way we can. Hang in there, you're not alone anymore.

Joe

What Joe said, and then some! I get it. And I get the turmoil this thing causes in your life. You've been alone with these things for far too long. And like you, as a 24 year vet of CHs, I thought I had tried everything, until I found this site. It isn't so much that there is something new, but new methods and new info on proper dose levels. For example, when I first started verpamil, 240mg/day was the limit. Now, we find for CHs, that's actually quite low. The dose can go as high a 960mg/day for effective treatment. Same with O2. 15lpm was tops, now we find 25-60lpm works best. Check your pm's. I'm sending you my cell phone number. Call if you just need to talk, OK? Blessings. lance

Hadit - who could possibly blame you for the way you're fed up with this incredible nightmare?

The thing is though, those 2 guys who responded above are right. Even people with severe chronic cases like yours have been surprised to find relief with the clusterbusters prevents, and actually get their lives back. Newsweek even ran an article on it - you oughta check it out: START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or END PRINTPAGE

I gave up on O2 too. It stopped working. But when when I found out about the high flow / non rebreather approach here - started working again!

There actually still is hope for you to get some relief.