I just wanted to sort of introduce myself to the community here and say something.

I do not have CH, nor do I know anyone personally who has them (unless I am simply unaware, that is). That being said, as of yesterday, I am aware of CH and just how terrible they are, even though not first hand. As soon as I learned about them I did a bit of reading online and learned that CH is relatively unknown except to a relatively small circle within the global population.

Believe it or not, I learned about them by coming across a youtube video that someone posted while they were having an attack and, well, it was just plain scary and hard to watch. That pain, I just... I can't even come close to imagining.

So, I guess, the reason I am posting this is, I want you to know that despite the fact that the pain is quite beyond my comprehension, I care. More people need to know about this, there needs to be more awareness. I will be praying for the research, for a cure, and for you all. Also for awareness. There needs to be more awareness, that will help for research I would think.

So yeah, I was just moved and intruiged by the whole thing when I learned about it last night, and I wanted to post this, to let you know that I believe you, I don't think any of you are 'crazy' or 'faking it' or being 'overly dramatic'. To even assume such things is messed up when you don't know what someone is going through, and you all are in my prayers.

:)

- Jair C.

Hi Jair, the world needs more people like you! Im just starting the whole experience, but already sick and tired of people jumping down my throat, telling me to stop being so dramatic.  That, was refreshing. Thanks  :)

Welcome Jair,
And Thank you for your empathy!

Agree with awareness Jair, it does need to be increased, it is a very difficult
thing to do with such a small 'community' profile...

Thanks for your input and thoughts too!

Regards

Gary

@IronCookaroo, one of my biggest pet peeves is people telling others to 'stop being so dramatic', no matter if what they are going through is something as massive as a CH, or if its something small that might seem trivial to most, because it's impossible to know exactly what they might be going through. Man, that has gotta be SO frustrating...

@Batty, one thing that I don't understand... is the name. Cluster Headaches? What I saw on youtube... was not a 'headache' by any means. The poor guy looked like the nervous system throughout his entire head was under attack and the pain receptors were firing off at maximum signals. That is not a 'headache'. That is something much much worse. A headache is what I get when I have a cold, a dull annoying throb. Nothing more. The name these terrors are given is quite misguiding, imo.

Btw, I am a SW fan. Your avatar is epic! XD

Hi Jair,

What a nice post.  Thank you.   :)

Jeannie

Thanks for your post Jair. Our biggest obstacle is lack of knowledge....by sufferers, and more importantly, by the people who are supposed to treat them. Anyone getting the word out is a benefit to us. :)

Joe

Jair,thanks for the post,you rock. But it's just a headache,take two asprin and go to bed. ;D

lol mikstudie, that was a joke right? XD

And you're right, Guiseppi. I wonder why a case of CH hasn't been aired on Mystery Diagnosis, or something like that. That could really help publicity.

Hi Jair,

Quote:

one thing that I don't understand... is the name. Cluster Headaches

It refers to the 'episodic' nature of one side of the headaches...ie, annually, they come in 'clusters'. They are so varied in their appearance,frequency,longevity that they are unabled to be 'pigeon holed'.

The other side is 'Chronic' ie all year round...some with attacks of 3-5-7 PER DAY!

Now then Jair, these people,and there are many (too many) here lead normal lives,Family, jobs etc..with this extreme level of pain....

These people, are made of Steel.....

So, we would appreciate deeply, another voice spreading the word for them...

Respect

Gary

(Sound of Darth breathing deeply on 100% O2 @ 25lpm..)

Oh I understand the 'Cluster' part of the name. It's the 'Headache' part of the name that I don't understand. Cause I mean, headaches are those little nuisances you get with allergies and head colds, and you take ibuprofen for them. A CH is not a headache by any means, it's like... I don't even know, a full-blown neural attack?

I dunno, I just thought that the term 'headache' was a very badly chosen term to describe a CH.

And I will spread the word. Absolutely.