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Cluster Headache Help and Support >> Cluster Headache Specific >> Again and again... night after night
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Message started by Shane83 on Mar 1st, 2011 at 4:53am

Title: Again and again... night after night
Post by Shane83 on Mar 1st, 2011 at 4:53am
This is round two for me... every single night, no relief, nothing is helping and I feel as I have tried nearly everything. At this very moment, I was woken by the devil itself. The pain so intense, all I can do is rock back and forth and wait it out. I feel as if I am a helpless infant waiting for a hand to come forth with something, anything that will offer relief from this pain. My head would feel better if it were to explode... I am going to my doctor tomorrow and I will start a steriod regimen along with topamax which, after a couple of days, will offer some relief I'm hoping. The devil stole my thanksgivng, my Christmas and is hindering my work, its time to STOP!! I want my life back, I want to be normal again, I want to sleep without being scared and knowing that it is coming. I want to go to work and play with my kids. I want to go to movies... I'm exahsudted and tired every single day and yet so afraid to lay my head down. I don't want to contemplate what it would be like to NOT have a head or to take my own head off. I'm sorry, this is probably the same thing over and over but I have to get it out. I'm done, now it is back to rocking and waiting for the pain to subside...

Shane Rhodes Sr.

Title: Re: Again and again... night after night
Post by wimsey1 on Mar 1st, 2011 at 7:42am
Shane, I'm praying the topomax does the trick for you. You don't mention O2, melatonin, energy drinks, prednisone tapers, imitrex, migranal, or any of a dozen other treatments we have found works for some, including busting. Care to tell us what your experience with these and other abortives/preventatives has been? lance

Title: Re: Again and again... night after night
Post by Glassman on Mar 1st, 2011 at 8:22am
Shane,
I hope the steroid helps.  When I was on Prednisone it was like a vacation in Hawaii!  Not a single hit in five days.  At the end of that they started to come back so I got my Doc to give me a script for Verapamil which got me thru to the end of my cycle.
Best of luck.

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