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http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl Daily Chat >> General Posts >> The guest book http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1299281719 Message started by Linda_Howell on Mar 4^th, 2011 at 6:35pm

Title: The guest book
Post by Linda_Howell on Mar 4^th, 2011 at 6:35pm

Has anyone been there lately? I think some of them will break your heart. Most people who post there NEVER come here to post.

Jackie and I regularly check the guest book and at least 3 times per week, e-mail those who seem to need support OR have misconceptions that I try to help with.

If any of you who have found help here, have some extra time, why not go there and pick someone, e-mail them and offer to help or just listen to them.

THIS, is just one short example:

Quote:

I am a rookie with this, was diagnosed on Mon 25th & trying different meds to find what works, have met the Beast nightly for 5 weeks. and would appreciate knowing more about the triggers as I work thru the meds.Anything to get some relief until the meds start working. Thanks Stan in Katy.
Stan Tooke <stantooke@sbcglobal.net>
Katy, TX USA
Wednesday, January 26, 2011 at 20:51:25 (EST)

Linda

Title: Re: The guest book
Post by Barry_T_Coles on Mar 4^th, 2011 at 8:45pm

Hi Linda
I go there a couple of times a week looking for those south of the equator ( a little closer to home) & help were I can.
And yes they may not come to the board but we may have helped in some way.

Cheers
Barry

Title: Re: The guest book
Post by Linda_Howell on Mar 4^th, 2011 at 9:47pm

Thanks guys...even if we duplicate our efforts it doesn't matter at all. Like I said, in the years I've been doing this I don't tremember even ONE person also posting here. Sometimes some folks do not like to post in a public forum. They prefer a one -on-one conversation.

BTW...someone reminded me of this. The" Guest book" is a seperate link to the left of here. Fifth under the 02 link in yellow.

Title: Re: The guest book
Post by George on Mar 4^th, 2011 at 10:30pm

Good reminder, Linda--and I needed it. I haven't been following the postings there as much as I should. Thank you.

The folks posting to the guest book are part of this family too. They just haven't met us yet. :)

Best,

George

Title: Re: The guest book
Post by QnHeartMM on Mar 4^th, 2011 at 11:57pm

Hanging my head in shame. I don't even know where a guest book is.

Title: Re: The guest book
Post by Charlie on Mar 5^th, 2011 at 1:11am

Thanks Linda.

It has been awhile. I hadn't been hit in 9 years when I found the place just surfing around. I was a mess by the time I read a lot of the GB back then.

Charlie

Title: Re: The guest book
Post by Linda_Howell on Mar 5^th, 2011 at 1:02pm

Christy, there's no need to feel guilty. Really. The guest book is to the left of here (links) 5th. link under Oxygen info.

Quote:

(When you were still trying to reach that propeller)

LMAO...Marc, it has taken me two days to figure out what you were talking about. The light-bulb just now came on. ;D

Title: Re: The guest book
Post by Sandy_C on Mar 6^th, 2011 at 10:47am

Linda, I am ashamed of myself. I used to go to the guest book at least 3 to 4 times a month. Then, thank God, I became pain free over four years ago.

I still come here and am very much involved with OUCH, but I had forgotten the guest book.

No longer!

Thank you for the kick in my butt! I deserved it.

Sandy