Was diagnosed with CPH about 7 years ago but have had them for 14 years. I'm on indomethacin 75mgx3 daily and stomach tablets.
The pain is getting worse and am suffering from backache and stomach ache with the indo. I don't want to stop cause i'm scared of how many attacks i'll actually get if i stop taking the indo. Does the medication stop working or have i somehow switched to CH or HC. Waiting to see the neurologist. I'm exhausted and fed up of the pains  :-[

If this is the only med you are/have been using you have a very out of date doc. Indo is not one of the first line meds for Ch.
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Print ou the PDF file, below and use it discuss options with the doc.

This new listing is more comphrehensive and would be more helpful to the doc.
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This is the single best listing of current therapies, with evaluations of effectiveness, which I've seen.

If you want a single document to drop on your doc in support of a particular therapy and/or to educate him---this may be it. (If you use it for this purpose, include all the reference pages at the end. They provide the evidence which a good doc would appreciate.)

When you hit this link it will require you to register for the site to gain access. The article is 15-pages long.

START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or END PRINTPAGE

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Quote:

I don't want to stop cause i'm scared of how many attacks i'll actually get if i stop taking the indo.

We understand. You shouldn't stop any med treatment without checking with your doc first. And you can take Bob's article link as money in the bank. There is hope...and there are effective abortives and preventatives. Research and be your own best advocate. Make a list of everything that has worked for somebody that you haven't yet tried, and discuss it with your doc. If your doc isn't a headache specialist, try and get a referral to one who is. Looking forward to hearing more from you and the successes that most surely await. Blessings. lance

Selina,

'Sounds like your body is trying to tell you something...  You might want to make an appointment with your neurologist and take along a copy of the print out from the following link:

START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or END PRINTPAGE

It's the EFNS guidelines on the treatment of cluster headache and other trigeminal-autonomic cephalalgias.

The operative chart from this link follows:

START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or END PRINTPAGESTART PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or END PRINTPAGE

Take care,

V/R, Batch

Hi Selina,

Well I think the good news is that you'll likley have some good options when you switch to another med or treatment.

Notice how in Batch's post above the National Guideline shows high liter flow 100% O2 as the top abortive for CH. Having an effective, non toxic abortive at the ready like that can really ease a transition when you know you can abort hits that come along.

You may have already noticed how popular O2 is among the members here, and not just for transitioning from one med/treatment to another.

And that's just for starters.  :)

Is the neurologist you're waiting for the appointment with a bonafide headache specialist BTW? If not, you'd be well advised to wait for one of those instead because they tend to be the only ones you can rely upon to be informed, while many rank and file neurologists are appallingly uninformed.