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Cluster Headache Help and Support >> Getting to Know Ya >> Hi CH! 'Nother Newbee http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1300179021 Message started by Mr_Kryton on Mar 15th, 2011 at 4:50am |
Title: Hi CH! 'Nother Newbee Post by Mr_Kryton on Mar 15th, 2011 at 4:50am
'Ello everyone. I'm Mike, and I've been fighting the Demon again lately. I'm mid 40's, and live about 35 miles N/W of Austin, TX. I've had Clusters most of my life, at least that as I can remember, but it's been a while sense they have haunted me like they have lately. I can almost set a clock by them the last couple of weeks. 2-3 hours of sleep, regardless of the time of day or night, and I wake knowing it's on it's way.
Anyways- I'll write more when I can actually see the monitor, I just wanna curl up into a ball and bawl for the moment, and the monitor isn't helping at ALL! I did want to drop you a line, let you know I was here, and introduce myself. I'm glad I stumbled onto this place and am looking forward to surfing through the forums when the little man with the jack hammer has vacated my head. M... |
Title: Re: Hi CH! 'Nother Newbee Post by 37-41withrestrictions on Mar 15th, 2011 at 5:43am
Hi Mike
Welcome to the site This place is full of fab advice and support, no question too silly! I have only been around since Jan and have gained sooo much knowledge, for me though its the support and knowing I'm not alone. Unless you actually experience the pain its very difficult to understand and appreciate but on here people DO understand. Some much more knowledgeable people will be along soon, Take care and here's to being PF :) |
Title: Re: Hi CH! 'Nother Newbee Post by wimsey1 on Mar 15th, 2011 at 7:37am
Welcome! When you get a break from the hits let us know about what is happening to you, and what you've already tried in the past. Looking forward to seeing more from you. Blessings. lance
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Title: Re: Hi CH! 'Nother Newbee Post by Glassman on Mar 15th, 2011 at 8:08am
Like 37-41, I've been on since January though I've visited the board on and off for over 4 years now (last cycle). This is the best place to find help and encouragement.
When you're pain free let (and I hope that's soon!) us know more about you! -Gary |
Title: Re: Hi CH! 'Nother Newbee Post by Dallas Denny 62 on Mar 15th, 2011 at 8:17am
Hi Mike,
Welcome to the club no one wants to be a member of.....sorry you had a need to find us though!! Just wanted to say "Howdy Neighbor" and let you know about the 2011 Dallas meet n greet a week from this coming Friday. Please check the "Meetings and Gatherings" section of the board for all the info....hope you'll make plans to join us!! Welcome Home!! Dallas Denny |
Title: Re: Hi CH! 'Nother Newbee Post by Mr_Kryton on Mar 15th, 2011 at 8:49am
Thanks for all the kind welcomes everyone. Mostly PF at the moment. Here's a little more about me.
Have had clusters most of my life, sense about 7, though only really figured out what they were ohhh..... in the last 5-7 years? Definitely periodic, however during those periods, it's pretty chronic. I'll admit that my current round, about 3 weeks now, I believe is stress related. Having all kinds of crapage going on lately. Wife has been pretty sick, and was undiagnosed for some time, though we finally found a doctor worth her weight in salt, and found that she has Graves compounded with type 2 diabetes. That was sure a kicker. Then to top that off, just after the diagnoses, the economy catches up with me and I got laid off from my DREAM JOB. But so is life. (That'll be 6 months ago tomorrow) PLEASE, no sympathy for that one, I'm no different than any of the other millions in the same boat right now..... I was lucky and went PF for quite a few years recently, I'd guess at 6 or so, with only the occasional sinus or stress headache, but nothing major, then about 3 weeks ago the demons returned. So- what works? Vicodin! Doesn't really stop the pain, but sure makes me not care :D Haven't ever really found a Med combination that does any good, however lately I have had good luck with alternating between hot and cold compresses at about 3-5 minute intervals. And soaking in a tub hot enough to make me look like a lobster helps me relax through it as well. Oh ya, COFFEE helps a LOT, must be the caffeine. Not sure what else to add at the moment, if you have anything you wanna know, feel free to ask, I'm a pretty open person. Like I said in my 1st post. Glad I found this place, it's just nice to be able to type to people that understand how it feels, my wife tries bless her heart, but never having gone through it, she just doesn't understand. M... |
Title: Re: Hi CH! 'Nother Newbee Post by Batty on Mar 15th, 2011 at 5:54pm
Hi H&K Gewehr 36..
Much better painkillers available on here than 5.56mm.... Just pull up a chair and read up, your'e very welcome! A lot has changed since you were first diagnosed M, THE holy grail of CH is now O2. Read the link on the left, this WILL change your life for the better...accept NO substitute from the medical 'Profession'.... The Vets are here to be Respected and listened to. Their info and experience, Priceless... Gary |
Title: Re: Hi CH! 'Nother Newbee Post by Batty on Mar 15th, 2011 at 6:08pm
PS Mr_Kryton...
Quote:
Your'e half way there mate, with that attitude! Blessings to your Wife Gary |
Title: Re: Hi CH! 'Nother Newbee Post by Mr_Kryton on Mar 15th, 2011 at 6:56pm Quote:
Thanks so much Gary, we truly are blessed with the help we've had from friends and family through her ordeal. And quite honestly, I feel a little like a Dumb A$$ at the moment. When she was 1st diagnosed with Graves, a couple of years before the diabetes, 1st thing I did was jump up on a Graves support site and the moral support I received, not to even mention the Graves support, was just unbelievable. But when it came to getting some external support for my Demons, the thought never even crossed my mind. (Something about hind site being 2020 seems appropriate here) Between my endless hours sifting through the want ads today, I read through some of the links Guiseppi shared, and I am very interested in getting started in some of the alternative treatments I've read about. This is also insight gained by my wifes bout with Graves. Oddly enough, one additional treatment I forgot to mention, and thanks to you again for reminding me with your 5.56 reference, when I can afford trips to the firing range, throwing a few rounds from my 7.62x54 seems to help my cluster headaches as well. I'm thinking this must be associated with the adrenalin kick that comes with it, just a guess, but it really does help. Thanks again to everyone for all the encouraging words, and the personal emails that I have yet to respond to. They are SOOO much appreciated. Mike. |
Title: Re: Hi CH! 'Nother Newbee Post by vietvet2tours on Mar 15th, 2011 at 7:56pm |
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