went to my wonderful headache specialist yesterday. He’s satisfied that my cycle appears to be over enough to take me off my meds. I’m coming off the topamax first, then the verapamil. Provided the CH don’t start up again during that time, then I can just enjoy the break. He said he will ALWAYS make time to see his CH patients within a day or two, so as soon as they come back I need to get back on the verapamil and call him (and the topamax if they come back before I finish getting off them).

He didn’t mention steroids, and I didn’t ask. I guess I should have, huh.

I just hope I can get through the next couple of weeks. It’s been almost 3 weeks PF. Last time I barely made it to 4.

On another note, he said he has a new CH patient, whose identical twin brother has had CH for a few years. They are one of only 3 known sets of identical twins in the world with CH. Amazing.

Congratulations! May you enjoy pf days and nights forever! Blessings. lance

Sounds like a good doc.
Good luck!

Melby29 wrote on Mar 22^nd, 2011 at 10:59pm:

He said he will ALWAYS make time to see his CH patients within a day or two...

Wow, another in a string of recent reports of actual considerate doctors.  :o

His decency contrasts so much with the standard practice of headache specialists requiring CH patients in crisis to wait months for an appointment.

That's why I'm in love with him  ;)

If my boyfriend didn't feel secure in how much I love HIM, he would be really, really jealous of my headache specialist and my union rep at work (who is fighting off my horrible, horrible bosses who are acting like they want to string me up for taking time off work)