My Maybe-MS status is no more. I got the results of my spinal tap yesterday, and the neuro diagnosed MS.

So now I have another completely unpredictable neurological rollercoaster to be on board! Fun fun  :D :D :D

I was a little stunned at first, I really didn't expect him to be so positive in his diagnosis even if the spinal tap was positive (MS is an elusive disease) but really, I expect that a lot of the people that I am close to, to take this harder than I have. 9 months ago I found out that this was a possibility, and I did all my "Shock Horror" "Gasp" "Oh No" "Wo Is Me" crap back then.

In some ways it's like CH - there's just really not much to do, till the next "THING" comes along to make life difficult. THe main difference is, I don't know what the next "THING" will be, or whether it will completely go away.

So off I go to get ready for another day (it's 6am), now finally knowing that I have a neurological trifecta - Epilepsy, CH and MS.

Picture that for a minute - really picture it.  Neurons firing electrical impulses like a wire short-circuiting (epilepsy). The insulation around my nerves melting and not letting the signals through (MS). And the blood vessels around my brain expanding and contracting at will.

NOW somebody tell me my brain is not from the reject bin  :D :D :D :D :D :D

Girl... that had to be a kick in the teeth. You certainly have your plate full. Anytime you need to come here and vent feel free to do so. Good luck yo you. :)

Sorry to learn of this. It sounds not fun and as Jimi says: Come here and rant away!

I'm two thirds of the way in: Epilepsy and CH. The latter hasn't been a serious problem for me since 1991 however. That's enough for me.

Hold on.

Charlie

DANG!...tough break dear....prayers and vibes on the way.

Best,

Jon

Not the news you wanted to hear. But at least with the diagnosis you can start to work with your doctors to sort out the best treatment you can get for it. You've done it once with getting your CH under control so you know how to go about this.

Hopefully there is an MS forum that is as good as this one for you to find.

Melby29 wrote on Mar 24^th, 2011 at 2:58pm:

NOW somebody tell me my brain is not from the reject bin

Abby something...(From Young Frankenstein, I think)

But DAMN.   [smiley=hug.gif]

You may need the strength of character that comes from dealing with CHs in this new venture in the fellowship of sufferers.  I am sorry, but that is of little comfort. Do know I am praying for you and that you will have the courage and fortitude to live life in between whatever "next things" may come. God bless. lance

I really feel for you!  My Father-in-law and a good friend both have it and it takes one tough cookie to cope.  I totally agree with Lance in that you have the tools already!  Hang in there and prayers headed your way!

:)mel

Hang tough, Sweetie.... positive thoughts and prayers to you.  It's a rough road but being a clusterhead...well, you certainly know how to cope.
Sending vibes and hugs.....

My wife also has MS, and has had for quite a few years.  She has been using Rebif Betaferon (sp?) for quite a few years with very few exasperations.  PM me if you want any info.

Jerry

My sis has the MS, and I have the CH. I have wondered many times if there were any correlation with that, heredity and all....She has had hers for many years and is still getting around well.
prayers
the bbz

Do we need a seperate club for CH'ers with additional shit lol...

Hang in there.

Much love,

E

Life should not be like this, I am sorry that you have to deal with all this, we all know one of these things is more than enough on it's own. Good luck and I will say a prayer for you or two or three.

Prayers & Vibes for you Sweetie...

I know several people that has MS and function great, including Jerry's wife Linda...

Peace & Blessings
Ruthie