I'm wondering if anyone here has or does feel the way I'm feeling? I have no motivation to do anything or interact with anyone. I'm usually very tired as I have 3 C/H during the night every night and 2-3 during the day. All I really ever want to do is sleep, a bit of depression I'm sure. I've never been like this, until the past 2 1/2 years of Clusters. This chronic pain really kicks my ass! Never ending, and if you've read any of my posts, nothing, doctors have tried works to aleviate this condition. I do have an appt. at the Cleveland Clinic with their Neurologists, I so hope that they can help me and restore some quality of life!

yes.....

when not having a hit... its like whats the point.. Im just gonna get another hit.

I think most people that deal with chronic pain also deal with feelings like this, I know I do and have for the last eight years or so. I find myself forcing myself to do what I think I would do if I was not feeling this way and forcing myself to have fun and sometimes I actually do have some fun and feel almost normal if not just for a few minutes. I just keep telling myself I have to continue to force myself to do normal things and try and act normal otherwise the beast is winning and I refuse to let him win. I really feel for you and bet most also feel for you having been there, hang in there and try and force yourself to have some fun and who knows you may find yourself feeling normal if only for a few minutes it is still worth it.
Hang in there and hope the new doctors find something that helps you soon.

Matt

Ras,
Wish I had some magic words but each of us has to find our motivation and change our "attitude" toward this disease.

We've all been where you are and it sounds real familiar, but at some point you're going to have to decide to "live with it" and not let CH win the battle. That's when you learn to "live" between hits. I know - I know -- it ain't easy, but it can be done. I did it and I was probably the most depressed person on this board at one time. But thanks to a lot of good people here - the bastard didn't win and now I live between hits and lead a "fairly" normal life.

And yes, I get tired after a hit and yes, it's not a fun thing, but I refuse to let CH take over my life - some days it's not easy, but I'm tuffer than he is - I just have to keep reminding myself that I am.

Now that's my boot in your butt.. go wash your face and look in the mirror and  :) and say "I'm tuffer than CH and he's NOT going to get me down!" Keep saying that till you believe it!
:-*

Ditto Barb!!!

I went through this very badly in '04 until my wife and best friend ki Ned my ass and made me realize that I was going to get hit regardless of what I was doing so I might as well live and move along withe a smile.

It sucks but being reclusive is worse

Cleveland Clinic is suppose to be really good from what Ive heard.  What meds have you tried?  Have you tried the standard meds such as verapamil, lithium, topamax, elavil, zyprexa, and the list does get longer.  However these are the main meds that help.  Please see your dr about depression.  He can help alot.  I had a real rough time getting hit 8x/day for over 2 years straight before I found something to help me.  I understand what you are going through.  Try melatonin at night it may help you sleep and avoid some pain at night.  Energy drings can help also that have tourine in them.  Some people think exercise helps others thinks it triggers.  Just some things to try to mabe make your life a little better.    

I, like the other responders above, am also chronic. And sure, we all get depressed. It's both a natural reaction and a predictable outcome for constant pain. The key to living in between hits is to prepare well for the cycle we are in, know you are prepared for the hit that is coming, and do what you want in between. It doesn't change the hit that is coming but it does elevate your quality of life even though the hit is coming. When I am in a high chronic cycle, I get hit every two hours for about 20-30 minutes. That's at its worst. This is a hard time and doubly important to follow the steps above. Trips outside the home are short. Constant adjustments to my abortives and reevaluation of my preventatives. But most of all, I intentionally inject into my cycle things I want to and can do while in-between. It isn't easy as was said above, but it can be done. God bless. lance

Depression took me over at first,but I made up my mind that if I cant cure it, I will kick it's ass. Theres a combo of things out there that will help you beat it you just need to keep trying things..  Good Luck!!!