Post by deltadarlin on Jul 7th, 2011 at 7:57pm
Here's your chance to be counted. I received this e-mail from NORD
"Help NORD Develop a Rare Disease Day Curriculum for Biology
Students
-----------------------------------------------------------------
NORD is working with a genetic counseling graduate student to
develop a one-to-three day curriculum about rare diseases for
high school biology classes. Your input is requested in the
development of this important program for students. We sincerely
appreciate your time and valuable input.
We hope to educate students about rare disorders, the related
social issues, what it is like to live with a rare disorder, and
ways to become involved in rare disease advocacy. We are planning
to make this curriculum available in the fall for teachers to use
on Rare Disease Day (February 29) 2012. Teachers will be able to
download the curriculum free-of-charge from the NORD website.
To help us better design the curriculum, we are gathering
suggestions from members of the rare disease community through a
short survey that will take approximately 10-15 minutes of your
time. You are invited to participate in the survey, if you are
a/an:* family member or close friend of an individual with a rare
disorder
* staff/volunteer in a patient support organization for a rare
disorder
* medical professional/health provider working with a rare
disorder
* researcher for a rare disorder"
here is the link to the questionnaire.
START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!! You need to
or 
END PRINTPAGE
"Help NORD Develop a Rare Disease Day Curriculum for Biology
Students
-----------------------------------------------------------------
NORD is working with a genetic counseling graduate student to
develop a one-to-three day curriculum about rare diseases for
high school biology classes. Your input is requested in the
development of this important program for students. We sincerely
appreciate your time and valuable input.
We hope to educate students about rare disorders, the related
social issues, what it is like to live with a rare disorder, and
ways to become involved in rare disease advocacy. We are planning
to make this curriculum available in the fall for teachers to use
on Rare Disease Day (February 29) 2012. Teachers will be able to
download the curriculum free-of-charge from the NORD website.
To help us better design the curriculum, we are gathering
suggestions from members of the rare disease community through a
short survey that will take approximately 10-15 minutes of your
time. You are invited to participate in the survey, if you are
a/an:* family member or close friend of an individual with a rare
disorder
* staff/volunteer in a patient support organization for a rare
disorder
* medical professional/health provider working with a rare
disorder
* researcher for a rare disorder"
here is the link to the questionnaire.
START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!! You need to
or END PRINTPAGE