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Message started by sandie99 on Jul 30th, 2011 at 6:44am

Title: The Secret and Ch
Post by sandie99 on Jul 30th, 2011 at 6:44am
I was reading stories at The Secret website. I'm sure that some of you know about Rhonda Byrne's book and dvd, it's her website. I found one story particularly interesting: a story about a woman who - apparently - got rid of ch via The Secret.

It is always interesting to me to see and read all sort of things my fellow clusterheads try to reach blissful PF time. If you wish to read the story, there's the link. She titled the story My "Cluster" of Nightmares cured (and the word cluster is spelled like she did).

Here's the story:
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Sanna

Title: Re: The Secret and Ch
Post by Melissa on Jul 30th, 2011 at 1:54pm
The only thing that bothers me is her use of the word "cured", but as for her CH's ending, I can only pray they still have not come back.

BTW, I do believe in "we get what we give".  It's a personal experience, no matter what the outcome.  Some are already "there", some have a long journey yet ahead of them, but to each their own.

:)

Title: Re: The Secret and Ch
Post by catlind on Jul 30th, 2011 at 4:38pm
The placebo effect is well documented - what isn't well documented is it's opposite - the nocebo effect - just as one can convince their body they are well, they can do the opposite and actually kill - it's most well known documentation lies in those who believe in voodoo and believe they will die once cursed, and indeed, perfectly healthy people have died.

I think rather than placebo effect having any real impact on CHers, it's opposite, nocebo effect, can have drastic and damaging impact.  That's where I personally see tools like the secret and story principle helping.

CH is a rather tricky disorder, it can be confused with a multitude of other ICHD diagnoses, and when an underlying condition is 'cured' the clusters will go away as well.

Regardless, debating the validity of such things is subjective and truly pointless when it comes to CH.  For every 'cured' sufferer, there are many things that one can say contributed.

Another similar tool one can use is Change Your Story Change Your Life - which can be found in it's full book pdf format, free, at storyhealer.com (story principle mentioned above)

I won't say these tools do work or don't work, what I *will* say is that all the tools you can find will help you *manage* your CH and your life.

I've had more than one person tell me that the nutritional supplements I currently use have cured their clusters, and in almost every case, a) they didn't have clusters, and b) they likely went into a lengthy remission because of the vitamin D3, B2, B6, B12, Taurine, Omega 3 etc. that is in the product. 

Those are things that are well documented, so it stands to reason that one MIGHT see significant benefit from the product.

The brain is a powerful organ, and it has abilities to do things we haven't even begun to understand yet - we hardly know that much about CH to begin with - it's only recently been documented through case studies that CH is not only a primary headache disorder, but also a secondary disorder, 2 disorders at least that I know of - Moya Moya (and that is only anecdotal  [smiley=wave.gif] Deej), and pituitary disorders.

So it's clear we simply don't have enough knowledge to unequivocally state something is or is not a cure at this stage in the process.

Just my 2 cents, and bunch of hot air worth ;)

Cat

Title: Re: The Secret and Ch
Post by Brew on Jul 30th, 2011 at 4:59pm
Here's something that's unequivocally true: some people still do whatever they can to sell their books.

Title: Re: The Secret and Ch
Post by Charlie on Jul 30th, 2011 at 5:11pm
:)

Title: Re: The Secret and Ch
Post by Jimi on Jul 30th, 2011 at 6:20pm

Brew wrote on Jul 30th, 2011 at 4:59pm:
Here's something that's unequivocally true: some people still do whatever they can to sell their books.


I agree.

Title: Re: The Secret and Ch
Post by LadyLuv on Aug 2nd, 2011 at 10:57am

Brew wrote on Jul 30th, 2011 at 4:59pm:
Here's something that's unequivocally true: some people still do whatever they can to sell their books.



AMEN...

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