New CH.com Forum | |
http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl
Cluster Headache Help and Support >> Getting to Know Ya >> Not sure if I'm doing this right or not. http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1313348859 Message started by Jordyn on Aug 14th, 2011 at 3:07pm |
Title: Not sure if I'm doing this right or not. Post by Jordyn on Aug 14th, 2011 at 3:07pm
Hello. I'm new here. I'm 15, and I've been having cluster headaches and migranes since I was 3 years old. I'm from Battle Creek, Michigan. I have had 6 concussions, not sure if that has to do with anything or not. I used to go to a neurologist until she gave up on me. I take tylonol when I need it, but it just dosen't work. I am on a migrane pill too called fioricet. It dosen't work for a cluster headache. When I get a cluster headache, I get it behind my left eye, and I lose vision in my right eye. The pain makes me want to rip my hair out. I don't know what to do anymore for the pain other than to go to the emergency room, and even the medicine that they give me there dosen't take the pain away fully. Please excuse any misspelled words, I have a migrane right now. :-/
|
Title: Re: Not sure if I'm doing this right or not. Post by vietvet2tours on Aug 14th, 2011 at 3:25pm
You need to see a headache specialist.
Potter |
Title: Re: Not sure if I'm doing this right or not. Post by Jordyn on Aug 14th, 2011 at 3:53pm
Isn't that the same thing as a neurologist? She gave up on me. Tryed me on a ton of medications, and none of them worked. Well. Topamax did, until it irritated my skin.
|
Title: Re: Not sure if I'm doing this right or not. Post by vietvet2tours on Aug 14th, 2011 at 4:06pm Jordyn wrote on Aug 14th, 2011 at 3:53pm:
Nope not the same. Potter |
Title: Re: Not sure if I'm doing this right or not. Post by Jordyn on Aug 14th, 2011 at 4:10pm
Okay, thankyou so much ;D
|
Title: Re: Not sure if I'm doing this right or not. Post by Jordyn on Aug 14th, 2011 at 4:22pm
Thankyou guys so much, I'm glad to be on here. It's amazing to see that people can understand what I'm going through, and are here to support me. Again, thanks so much (:
|
Title: Re: Not sure if I'm doing this right or not. Post by Guiseppi on Aug 14th, 2011 at 5:25pm
Yeah Jordyn, your garden variety GP gets about 4 hours of TOTAL schooling in headache disorders....and there are hundreds of them. Your garden variety neuro doesn't get much more then that. That's why we push so hard to get a referral to headache specialist neuros......hopefully with one that has some experience with CH. Not a guarantee you'll get one that knows how to treat CH.....and we still strongly suggest you educate yourself and learn to be an advocate for yourself. We'll help you all we can.
Joe |
Title: Re: Not sure if I'm doing this right or not. Post by Jordyn on Aug 14th, 2011 at 5:27pm
Okay, I'm really greatfull for all of you guys (:
|
New CH.com Forum » Powered by YaBB 2.4! YaBB © 2000-2009. All Rights Reserved. |