Hi all , well the last 2 months have been sheer hell , and i mean hell on earth , i started with kip 6 head aches that soon followed by regular 9-10 k headaches , walked through hell on earth the last few days , BUT  finally i think my ch's have ceased , its been 48hours + and not a twinge , i had a grande finalay , of a kip 3 for 36 hours non stop , nothing that usualy works, worked, ive never experienced anything like it , i had been hitting the nasal sprays hard for about a week , then out of no where i got a HA  that the nasal spray didnt have any effect on , it wasnt a full blown headache id say a 4or 5 k headache ,i actually thought i had blown a blood vessel in my brain or something , id never experienced this thing in 15 + years , but it lasted 1 n half days , no let up , nothing i did would shake it .then finally it cleared and ive bin pf ever since , its like a miricle , im actually on a euphoric high at the moment .tomorow will be 3rd day pf , feall really clear headed .
So yeah i thought id like to share my uphoria im going through right now , all my empty med things are all over my house including red bull cans , but im now gonna clear up , and play some music , first time in months lol  :D

BTW  i know this little bastard will be back , im wise to the tricks it plays , but atm im lovin life , the good times are all i have to combat this horrific thing .

Hell yeah! Dance, sing, enjoy the pain free times. Just always be prepared for a return engagement. Here's hoping that'll be a while.

Joe

Hoping you stay pain free and you get to enjoy some time without the beast making his pressence known.

Yeah! me too long time sufferer.  Stop the nasal spray, feels like nasal congestion but its more of a referred pain, pressure.  Try ice on your face.  I used to use the nose spray and take percocet, oxycontin, aND NOTHING WORKED.  Finally an ER Doc who was also a sufferer gave me a shot of Torodol 60 mg.s and like magic the pain was gone..he gave me refills as well as a suppository for the nausea I get.  Torodo is an anti-inflamatory, but cannot be used for more than 5 days at it is hard on the kidneys.  next time you have a cluster, go to an ER and ask for Torodol injec, its NOT A NARCOTIC so they won't think you are a druggie.  Knock off the Monster, Redbull actually sets you up for a bad head.  I have been using tjhe Torodol for a couple of years now, works good as does neurontin 300mg TID, less frequent and less severe.  If I miss a dose or two I usually have a headache within 24 hours.

I've been using Red Bull with my oxygen for years, haven't noticed any rebound issues with it. Many of us have found success with 4way nasal spray to alleviate the shadows in between hits.

Toradol is in a group of drugs called nonsteroidal anti-inflammatory drugs (NSAIDs). It works by reducing hormones that cause inflammation and pain in the body.
Toradol is used short-term (5 days or less) to treat moderate to severe pain, usually after surgery. It is used alone or in combination with other medicines.
Toradol may also be used for purposes other than those listed in this medication guide

Glad that it's been providing you some relief. I would be very hesitant to suggest this as a main stream tretament for CH as there are many other options with proven track records that don't have the risks of NSAIDS.

Joe

Yeah! me too long time sufferer.  Stop the nasal spray, feels like nasal congestion but its more of a referred pain, pressure.  Try ice on your face.  I used to use the nose spray and take percocet, oxycontin, aND NOTHING WORKED.  Finally an ER Doc who was also a sufferer gave me a shot of Torodol 60 mg.s and like magic the pain was gone..he gave me refills as well as a suppository for the nausea I get.  Torodo is an anti-inflamatory, but cannot be used for more than 5 days at it is hard on the kidneys.  next time you have a cluster, go to an ER and ask for Torodol injec, its NOT A NARCOTIC so they won't think you are a druggie.  Knock off the Monster, Redbull actually sets you up for a bad head.  I have been using tjhe Torodol for a couple of years now, works good as does neurontin 300mg TID, less frequent and less severe.  If I miss a dose or two I usually have a headache within 24 hours.  I call my CH the Dragon because it feels like my head is being eaten and burned at the same time.

I never meant to suggest Torodol as a mainstream tx for CH, just that if you have been suffering for days, my case usually a bad cluster can last 4 -6 days, and so painful that I actually did not want to live (passive death wish) not suicidal.  I save the Torodol for the really bad times, usually no more than 4-5 injections Per Year.

Quote:

Knock off the Monster, Redbull actually sets you up for a bad head.

You realize that this tosses your credibility out the window, right?

ETA: Allow me to elaborate a bit. The vast majority of CH sufferers at this site find that the combination of caffeine and taurine in energy drinks can actually abort an attack, if not alone, then in concert with high-flow O2.

Wouldn't give it to my dog.

     Potter

jackieeyerly wrote on Aug 29^th, 2011 at 2:33pm:

Knock off the Monster, Redbull actually sets you up for a bad head.

Energy drinks contain:

• Taurine - a calcium Chanel antagonist - just like verapamil
  
• Caffeine - a vaso-constrictor - just like oxygen
  

It's no wonder that they help with CHs, quite the opposite of what many doctors suggest without looking at the facts.

Quote:

my case usually a bad cluster can last 4 -6 days

Typically cluster headaches do not last this long.  I have had shadows that persist for days but I assure you, if I ever had a "bad cluster" that lasted for days, I would no longer be here.